Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Christie Great to have you back!!!!! I love your posts on these topics and am glad to have your thoughts on these matters. It's interesting what you say about the orthotics industry not wanting to establish clinical standards- why is this? (I would think it would be desirable to have an agreed standard of care) Hannah (mum to Lucia, London, UK) Cranio grad > > > > > > > > From: " redlocks2003 " <redlocks@i...> > > > Date: 2004/12/29 Wed PM 02:56:27 EST > > > Plagiocephaly > > > Subject: Re: Comforting Article > > > It is certainly encouraging that improvement in rounding >and > > >symmetry was noted over time in this study. > > > > Yes, but not being an expert in this area, I have no way of > knowing what these numbers actually " look like " on a diagram in > terms of amount of head distortion. One thing that was interesting > was that the maximum (in addition to the means) did drop at the 2 > year mark. So that means that even the " worst " amount of distortion > improved somewhat by the 2 year mark. But what this would acutually > look like on a diagram I have no idea... > > > > > > >My own opinion about this study is that the measurement > >threshholds > > >for what is considered to be an actual plagiocephaly or > > >brachycephaly case is much, much too high, resulting in an > >absurdly > > >low 3% occurrence recorded at the 2 years of age mark. With >more > > >appropriate threshholds, the results would have appeared > > >differently. > > > > I'm 99% sure there was a table in there that addressed this very > issue. Actually, I'm positive because I remember looking at it very > closely. They had a table that showed how the results would look > using a variety of different thresholds. I think the " worst " one > was something like 12% at 2 year follow-up, but the number of > earlier cases also seemed unrealistically high using that number > (something like 25% or 30% if I recall). > > > > > Reading between the lines of our communique, my > > >impression was that they really don't care for helmets and > >bands. > > >He basically said, " We don't do helmets and bands, we do >this > > >instead " in so many words. > > > > Interesting. > > > > >Although approved of by their ethics commitee, I was >disturbed to > > >read that NONE of the parents was given any advice at all >about > > >their child's headshape. This is the equivalent of saying >DO > > >NOTHING about it, including any general repositioning. > > > > Yeah, pretty amazing. > > > > > I don't know > > >if you saw the measurements charts, but some of these babies >had > > >really high asymmetry or cephalic ratio measurements during >the > > >study. > > > > Unfortunately, I'm ignorant about how these numbers translate into > what a kid would like visually. > > > > > > > > >>Although helmet treatment is available in New Zealand, no case > was > > considered severe enough to be referred for such treatment by their > > health professional.<< > > > > >When you think about the word " concerned, " what exactly does >that > > >mean? If you are a parent, and you do not know of any >treatment > at > > >all, whether it be repo or a band, for your babies' >misshapen > head, > > >than what exactly are you going to insist be done about it? >Are > you > > >going to stay officially, " concerned? " > > > > I don't know. If the norm there is not to band, that may > influence it. Of course the other possibility is that some > kids " looked bad " to their parents and their heads either improved, > got covered with hair, or their parents " got used to it. " I really > wish the article broke down cases into mild, moderate, and severe, > and then talked about what happened with each group at the 2 year > mark. Is it possible that some of the " mild " kids were still " mild " > at 2 years while some of the " severe " kids no longer had the > condition? Or, did the final 3% consist entirely of kids who were > the most severe to begin with? I'd really like to know that info, > but I couldn't find it. > > > > > > > > >More studies are > > >due out soon on this subject, including the study out of > >Childrens > > >in Atlanta (CHOA) which is a huge one that compares natural > >rounding > > >to repositioning to banding. > > > > Is there a way to get any preliminary data from them on thier > findings so far? > > > > Would you please post if you >come > > >across anything else? It's very helpful to have group >members in > > >the medical community that can get access to these documents! > > > > > > Sure. If anyone is interested in a specific article that they > come across, I'd be happy to look it up. I have access to the full > text for most of these articles on our network, and for the ones > that I don't, our library has most of the major medical journals in > print. Quote Link to comment Share on other sites More sharing options...
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