Re: Got 2nd band today-I am sooo mad! SARAH

[Guest guest]

Hi ,

Thanks for responding. If you don't mind me asking, who is Carol

son? I am happy to hear that you've heard about some things at

the conference. If there is no brachy band though, then do you know

in what cases they would use that other kind of band? I spoke to a

few moms in the waiting room last week and their babies had the other

kind. I am curious why they got that kind. Do you know what the

criteria is or the reason why each type of band is chosen to be uses?

I hate to say that I am mad, but I will just be so upset if his head

height doesn't look better at the end of his 2nd band treatment.

Thanks a lot!

Marcy and (7 months)

2 months in DOC band # 1

Now in Doc band #2

New Jersey

> >

> > Ok, here is the long story. I'll try to make it short. has

> > brachycephaly (flat back and raised height in the back). He had

> very

> > little assymetry to his head. He just got out of his first band

> which

> > corrected the assymetry. We now got the 2nd band which will help

> his

> > brachy (flat back and raised height) I spoke to a few of you on

> here

> > about bands made specifically for brachy babies....the one where

> the

> > back comes right over the head. The clinicians at the NJ CT told

> me

> > that it does not actually " hold " the height from getting higher,

> it

> > just helps keep the band in place. A few of you on here told me

> that

> > the clinicians at your CT told you that that type of band DOES

> hold

> > the height and it is not only used to hold the band from moving.

> > ****If you are one of those people PLEASE tell me which CT you go

> to

> > and which clinician you spoke to.****

> >

> > I specifically told them at the casting that I want that type of

> band

> > since 's height is very high, and has nearly no assymetry

> now.

> > They wrote it in the report that they sent with his cast. I

picked

> up

> > the band today, and it was not that kind. It's the normal kind

> where

> > the front of one side goes up, and the back of the other side

goes

> > up. I said to " How is that going to help the height? " She

> said

> > they made the band that is best for , etc... Well, I

> understand

> > that, but I want to know how this band is better for than

> the

> > one that will hold the height as well as let the back come

> > out...since the height is his number one problem. Please write

> back

> > if you are one of the people who I spoke to about this already,

> and

> > also write back if you know anything about the bands used for

> brachy

> > head shapes. Thanks a lot!!!

> >

> > Marcy and (7 months)

> > 2 months in DOC band #1

> > Now in Doc band #2

> > New Jersey

[Guest guest]

Marcy,

Carol is the president of Cranial Tech. She did most of the

conference for us mods, along with parts from Tim Littlefield (VP)

and Jeanne Pomatto (founder/CEO). It is Jeanne who still

individually designs each helmet. The helmet you are referring to

can be used on bracy babies who have no assymetries. There may be

even a slight assymetry that Jeanne notices that would cause there

to need a side cap like the one you got in order to keep the band

from shifting and twisting. That cap you are referring to is used

as a holding point to keep the band from slipping downward in some

cases. If a baby has a steep upward slope, there is no place for

that band to hang on to. It is the lying flat on an angle that

actually causes the head to grow upward like that, so the helmet

eliminates that, and the head can grow properly. You can't actually

correct the height once it's there, but the band takes away the

external pressures and lets the rest of the head catch up (the

forehead area and back in your case), making it fill in in the

needed areas. Regardless of where the caps are on his band, it will

do the same thing. Hope that helps!

> > >

> > > Ok, here is the long story. I'll try to make it short.

has

> > > brachycephaly (flat back and raised height in the back). He

had

> > very

> > > little assymetry to his head. He just got out of his first

band

> > which

> > > corrected the assymetry. We now got the 2nd band which will

help

> > his

> > > brachy (flat back and raised height) I spoke to a few of you

on

> > here

> > > about bands made specifically for brachy babies....the one

where

> > the

> > > back comes right over the head. The clinicians at the NJ CT

told

> > me

> > > that it does not actually " hold " the height from getting

higher,

> > it

> > > just helps keep the band in place. A few of you on here told

me

> > that

> > > the clinicians at your CT told you that that type of band DOES

> > hold

> > > the height and it is not only used to hold the band from

moving.

> > > ****If you are one of those people PLEASE tell me which CT you

go

> > to

> > > and which clinician you spoke to.****

> > >

> > > I specifically told them at the casting that I want that type

of

> > band

> > > since 's height is very high, and has nearly no

assymetry

> > now.

> > > They wrote it in the report that they sent with his cast. I

> picked

> > up

> > > the band today, and it was not that kind. It's the normal kind

> > where

> > > the front of one side goes up, and the back of the other side

> goes

> > > up. I said to " How is that going to help the height? "

She

> > said

> > > they made the band that is best for , etc... Well, I

> > understand

> > > that, but I want to know how this band is better for

than

> > the

> > > one that will hold the height as well as let the back come

> > > out...since the height is his number one problem. Please write

> > back

> > > if you are one of the people who I spoke to about this

already,

> > and

> > > also write back if you know anything about the bands used for

> > brachy

> > > head shapes. Thanks a lot!!!

> > >

> > > Marcy and (7 months)

> > > 2 months in DOC band #1

> > > Now in Doc band #2

> > > New Jersey

[Guest guest]

, You answered SO many of my questions about the bands. Thank

you so much! I actually feel much better now after reading your post.

I wish they would've explained it to me like that today at CT. I

think I would;ve left feeling alot happier.

Marcy and (7 months)

2 months in DOC band # 1

Now in Doc band #2

New Jersey

> > > >

> > > > Ok, here is the long story. I'll try to make it short.

> has

> > > > brachycephaly (flat back and raised height in the back). He

> had

> > > very

> > > > little assymetry to his head. He just got out of his first

> band

> > > which

> > > > corrected the assymetry. We now got the 2nd band which will

> help

> > > his

> > > > brachy (flat back and raised height) I spoke to a few of you

> on

> > > here

> > > > about bands made specifically for brachy babies....the one

> where

> > > the

> > > > back comes right over the head. The clinicians at the NJ CT

> told

> > > me

> > > > that it does not actually " hold " the height from getting

> higher,

> > > it

> > > > just helps keep the band in place. A few of you on here told

> me

> > > that

> > > > the clinicians at your CT told you that that type of band

DOES

> > > hold

> > > > the height and it is not only used to hold the band from

> moving.

> > > > ****If you are one of those people PLEASE tell me which CT

you

> go

> > > to

> > > > and which clinician you spoke to.****

> > > >

> > > > I specifically told them at the casting that I want that type

> of

> > > band

> > > > since 's height is very high, and has nearly no

> assymetry

> > > now.

> > > > They wrote it in the report that they sent with his cast. I

> > picked

> > > up

> > > > the band today, and it was not that kind. It's the normal

kind

> > > where

> > > > the front of one side goes up, and the back of the other side

> > goes

> > > > up. I said to " How is that going to help the height? "

> She

> > > said

> > > > they made the band that is best for , etc... Well, I

> > > understand

> > > > that, but I want to know how this band is better for

> than

> > > the

> > > > one that will hold the height as well as let the back come

> > > > out...since the height is his number one problem. Please

write

> > > back

> > > > if you are one of the people who I spoke to about this

> already,

> > > and

> > > > also write back if you know anything about the bands used for

> > > brachy

> > > > head shapes. Thanks a lot!!!

> > > >

> > > > Marcy and (7 months)

> > > > 2 months in DOC band #1

> > > > Now in Doc band #2

> > > > New Jersey

[Guest guest]

Hi Marcy,

Hope I am not " butting " in to your conversations. When 's head gets more

growth in length (i.e more rounding in back) then the increased posterior head

height

will be much less noticable and his head will have a much more normal look to

it. I

would still be careful about time spent in inclined seating arrangements though

as I

believe, even though the band is on, that the upward pressure on the band from

the

inclined seating arrangement will at least be passed to the skull at the top

back of the

band where it meets the head and thus cause a bit of upward pressure at the top

of

the band. Could this still contribute to head height? I don't know but I think

that it

could and this was also the opinion of one of our treating CT clinicians. Just

my two

cents.

Regards,

Mark (dad to , DOCgrad 1/19/04)

> > > > >

> > > > > Ok, here is the long story. I'll try to make it short.

> > has

> > > > > brachycephaly (flat back and raised height in the back). He

> > had

> > > > very

> > > > > little assymetry to his head. He just got out of his first

> > band

> > > > which

> > > > > corrected the assymetry. We now got the 2nd band which will

> > help

> > > > his

> > > > > brachy (flat back and raised height) I spoke to a few of you

> > on

> > > > here

> > > > > about bands made specifically for brachy babies....the one

> > where

> > > > the

> > > > > back comes right over the head. The clinicians at the NJ CT

> > told

> > > > me

> > > > > that it does not actually " hold " the height from getting

> > higher,

> > > > it

> > > > > just helps keep the band in place. A few of you on here told

> > me

> > > > that

> > > > > the clinicians at your CT told you that that type of band

> DOES

> > > > hold

> > > > > the height and it is not only used to hold the band from

> > moving.

> > > > > ****If you are one of those people PLEASE tell me which CT

> you

> > go

> > > > to

> > > > > and which clinician you spoke to.****

> > > > >

> > > > > I specifically told them at the casting that I want that type

> > of

> > > > band

> > > > > since 's height is very high, and has nearly no

> > assymetry

> > > > now.

> > > > > They wrote it in the report that they sent with his cast. I

> > > picked

> > > > up

> > > > > the band today, and it was not that kind. It's the normal

> kind

> > > > where

> > > > > the front of one side goes up, and the back of the other side

> > > goes

> > > > > up. I said to " How is that going to help the height? "

> > She

> > > > said

> > > > > they made the band that is best for , etc... Well, I

> > > > understand

> > > > > that, but I want to know how this band is better for

> > than

> > > > the

> > > > > one that will hold the height as well as let the back come

> > > > > out...since the height is his number one problem. Please

> write

> > > > back

> > > > > if you are one of the people who I spoke to about this

> > already,

> > > > and

> > > > > also write back if you know anything about the bands used for

> > > > brachy

> > > > > head shapes. Thanks a lot!!!

> > > > >

> > > > > Marcy and (7 months)

> > > > > 2 months in DOC band #1

> > > > > Now in Doc band #2

> > > > > New Jersey