Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi , Welcome to the group. I am so glad you found it too! is still so young, I am quite confident that if you aggressively reposition him you may definitely avoid the helmet!!! The is a great repo document in our FILES, Repostioning Headquarters section created by Christie, one of our repo moderators. I'm not familiar with tort but plenty others here are so they will be able to help you. You are no overreacting. You are an AWESOME mom who is attentive and aware of her child's needs. GO ERIKA!!! Please keep us posted on 's progress. I found that taking my own dig pics from about the same angles really helped. You should see improvement over the next few weeks if you keep up with repo as much as possible. There are plenty of great pics to view on our site. Take care, Sue Colin F. STARband grad (pics in both our plagio kids and before & afters/Starband > > Hello all! > > I have been lurking in this group for about 2 weeks since our 2 1/2 > mo. old went to his last well child visit. I noticed a knot on > his head when he was about 4 weeks old, but I just thought he > knocked his head on the car seat or tub. However, the dr. said that > he has moderate plagiocephaly and suggested some exercises for his > neck (he prefers to look right, but doesn't have too much of a head > tilt) and advised repositioning. He said the knot on his head was > from the flattening, but it's really hard for me to see. > > Like all of you (I'm sure) I came home frantic and quickly > discovered this group. I've been doing all the suggested techniques > in your files and I took pics, but frankly I'm not seeing any > improvement. It's only been two weeks, but I want to nip this in > the bud to try to avoid a helmet. So I called the dr. back > yesterday, and we are going to start PT at the local children's > hospital next week. > > Anyhow, my questions are as follows: > > 1. was 2 weeks overdue at birth and weighed 10 lbs, 6 oz > (completely normal pregnancy). Does anyone else attribute the tort > to these conditions? > > 2. Does anyone know if BCBS Georgia for Federal employees covers > the helmet? > > 3. Any advice on questions I should ask the the PT? > > 4. Does anyone have experience w/ Backus Children's Hospital in > Savannah, GA? > > Also, if anyone could reassure me that I'm not overreacting, I'd > appreciate that too! My husband thinks this will just go away on > it's own (b/c that's what the baby book says!) and I feel like the > head position police in the house! Thanks so much! > > a & (8/6/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 I just wanted to add that my granddaughter was almost 6 weeks premature and only weighed 4 pounds 10 ounces and had both tort and plagio. She had intrauterine growth restriction and was not growing as she should because of that. We do not know why. I just don't think being large is a key. IMHO and Jennicah in Washington, brachy, tort, Hanger cranial band graduate! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi , Thanks for your response. Well, I have to admit that I still use the swing and bouncy seat b/c has terrible reflux. He's on Zantac 2x/day for that. The dr advised us to let him sleep sitting up at his 2 week checkup. I imagine that's when the knot on his head first started forming. Anyhow, I'm also a big fan of " Happiest Baby on the Block " and I use the swing for his afternoon naps b/c then he sleeps much better at night in his crib. Since the plagio diagnosis, I've made some foam inserts for his head so that I could still use the swing and bouncy seat when I need to. They're not all that great looking, but they seem to do the trick. Don't blame yourself for your son's flatness~ I really think that this is another one of those awareness things. It's like you don't know what you don't know. We rely so heavily on doctors and books to give us the info. All we can do now is try our hardest to fix the problem. I'll keep you posted on our progress. Cheers! a --- In Plagiocephaly , " laura gill " <mamagill@h...> wrote: > Welcome to the group (I'm pretty new myself) and let me just say, my husband > feels the same.... He dosn't understand why i'm at the computer every > chance that i can! He not once has looked my sons condition up (he's > brachy/tort with mild facial asymmetry) nor has he ever read the info we > received from Cranial Tech regarding the DOC Band he's going to get. Plus > he continues to set my son in his swing, bouncy chair, etc.. while i am not > at home. I've pretty much ruled them out since his diagnosis. > > I cannot answer many of your questions but i will say, WOW... What a big > baby. Mine was 8lb 6oz and i thought that was big! I think my sons tort is > related to his size but nothing official has been said. > > Good luck with all the repositioning techniques and be glad your starting > everything early. My son was 4 months old when i noticed the flattness to > his head and i didnt' mention it to his doc's or research it until his 6 > month appt. so i'm pretty much blaming myself on his need of a helmet. > > Keep us posted on your progress and good luck with PT. Be patient, > everything takes time. > > > Ashburn, VA > > >From: " enlarsh " <enlarsh@y...> > >Reply-Plagiocephaly > >Plagiocephaly > >Subject: Another new one... > >Date: Thu, 21 Oct 2004 17:21:56 -0000 > > > > > >Hello all! > > > >I have been lurking in this group for about 2 weeks since our 2 1/2 > >mo. old went to his last well child visit. I noticed a knot on > >his head when he was about 4 weeks old, but I just thought he > >knocked his head on the car seat or tub. However, the dr. said that > >he has moderate plagiocephaly and suggested some exercises for his > >neck (he prefers to look right, but doesn't have too much of a head > >tilt) and advised repositioning. He said the knot on his head was > >from the flattening, but it's really hard for me to see. > > > >Like all of you (I'm sure) I came home frantic and quickly > >discovered this group. I've been doing all the suggested techniques > >in your files and I took pics, but frankly I'm not seeing any > >improvement. It's only been two weeks, but I want to nip this in > >the bud to try to avoid a helmet. So I called the dr. back > >yesterday, and we are going to start PT at the local children's > >hospital next week. > > > >Anyhow, my questions are as follows: > > > >1. was 2 weeks overdue at birth and weighed 10 lbs, 6 oz > >(completely normal pregnancy). Does anyone else attribute the tort > >to these conditions? > > > >2. Does anyone know if BCBS Georgia for Federal employees covers > >the helmet? > > > >3. Any advice on questions I should ask the the PT? > > > >4. Does anyone have experience w/ Backus Children's Hospital in > >Savannah, GA? > > > >Also, if anyone could reassure me that I'm not overreacting, I'd > >appreciate that too! My husband thinks this will just go away on > >it's own (b/c that's what the baby book says!) and I feel like the > >head position police in the house! Thanks so much! > > > >a & (8/6/04) > > > > > > > > _________________________________________________________________ > On the road to retirement? Check out MSN Life Events for advice on how to > get there! http://lifeevents.msn.com/category.aspx?cid=Retirement Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 You know, MacKenzie was 10 lbs., 3 ounces, two weeks early, lol. Her tort was resolved becuase she was/is so nosey and HAD to look around all the time, but I often wonder if that's the reason we have the plagio, since she was smushed in there! > > Hello all! > > I have been lurking in this group for about 2 weeks since our 2 1/2 > mo. old went to his last well child visit. I noticed a knot on > his head when he was about 4 weeks old, but I just thought he > knocked his head on the car seat or tub. However, the dr. said that > he has moderate plagiocephaly and suggested some exercises for his > neck (he prefers to look right, but doesn't have too much of a head > tilt) and advised repositioning. He said the knot on his head was > from the flattening, but it's really hard for me to see. > > Like all of you (I'm sure) I came home frantic and quickly > discovered this group. I've been doing all the suggested techniques > in your files and I took pics, but frankly I'm not seeing any > improvement. It's only been two weeks, but I want to nip this in > the bud to try to avoid a helmet. So I called the dr. back > yesterday, and we are going to start PT at the local children's > hospital next week. > > Anyhow, my questions are as follows: > > 1. was 2 weeks overdue at birth and weighed 10 lbs, 6 oz > (completely normal pregnancy). Does anyone else attribute the tort > to these conditions? > > 2. Does anyone know if BCBS Georgia for Federal employees covers > the helmet? > > 3. Any advice on questions I should ask the the PT? > > 4. Does anyone have experience w/ Backus Children's Hospital in > Savannah, GA? > > Also, if anyone could reassure me that I'm not overreacting, I'd > appreciate that too! My husband thinks this will just go away on > it's own (b/c that's what the baby book says!) and I feel like the > head position police in the house! Thanks so much! > > a & (8/6/04) Quote Link to comment Share on other sites More sharing options...
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