Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 You can do Angel flight http://www.angelflightamerica.org/ and get there for 9am and be back at work in the afternoon. A employer is more understanding than you would exsect if you ask first nicely to someone high up in management and maybe offer to take work home or stay later another day. Where there is a will there is a way.. you just have to work around it. I got there with 3 kids in a old car and made it.. taking off work would have neen easier than driving through Miami to a area I dident know in a car I was scared to drive. We did it and you can. Lorraine. Mom to a Doc grad. > In my continuing efforts to explore all options, I called the closest cranial tech location (about 4 hours one way) to me this morning. Unfortunately, they only have Monday through Friday regular business hours (no weekend hours). They welcomed me to come in for the eval, but I'm not sure it's worth it because there is no way we could follow through. My wife or I wouldn't be able to take off 1 or 2 days from work each week to travel 4 hours each way and still keep our jobs. Is there any benefit to still going for the eval knowing that no folllow through is going to be possible? Also, what other options re:helmets are there besides cranial tech? Has anyone here had helmet treatment performed by one of your local doctors (i.e., a neurosurgeon or plastic surgeon)? Even though the specialist we saw said he doesn't think my son will need it (we'll see at follow-up in 2/05), I got the impression that if we want a helmet, he will do it. I didn't ask him what brand he uses, but maybe I'll call and find out before the follow-up appointment. > > Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Where are you? There are a lot of options besides CT. Look in the Database for something closer to you. A lot of members have used STARbands (orthomerica.com) and Hanger. If your pediatrician doesn't have any suggestions, look in the phonebook for someplace that does prothetics and ask them. It is important to use an orthotist (the tech that adjusts the helmets) who has experience. You don't want someone to learn on your child. I had to travel 5 hours (one way) to CT and couldn't have done it if I worked outside the home. Threre were a LOT of grandmothers there with kids, probably for that reason. My daughter had scaphacephaly from in utero constraint, which is rare and difficult to treat. If we had " just " (no offence to anyone) had mild plagio, I may have considered more local options. Orthotists have more condition correcting plagio with typical presentations. > In my continuing efforts to explore all options, I called the closest cranial tech location (about 4 hours one way) to me this morning. Unfortunately, they only have Monday through Friday regular business hours (no weekend hours). They welcomed me to come in for the eval, but I'm not sure it's worth it because there is no way we could follow through. My wife or I wouldn't be able to take off 1 or 2 days from work each week to travel 4 hours each way and still keep our jobs. Is there any benefit to still going for the eval knowing that no folllow through is going to be possible? Also, what other options re:helmets are there besides cranial tech? Has anyone here had helmet treatment performed by one of your local doctors (i.e., a neurosurgeon or plastic surgeon)? Even though the specialist we saw said he doesn't think my son will need it (we'll see at follow-up in 2/05), I got the impression that if we want a helmet, he will do it. I didn't ask him what brand he uses, but maybe I'll call and find out before the follow-up appointment. > > Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 There is a Hanger office right near my house and I spoke with them today. I felt very comfortable after our conversation. If we do get a helmet, I think we'll go with them. Re: Cranial Tech a no go Where are you? There are a lot of options besides CT. Look in the Database for something closer to you. A lot of members have used STARbands (orthomerica.com) and Hanger. If your pediatrician doesn't have any suggestions, look in the phonebook for someplace that does prothetics and ask them. It is important to use an orthotist (the tech that adjusts the helmets) who has experience. You don't want someone to learn on your child. Quote Link to comment Share on other sites More sharing options...
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