Re: Got 2nd band today-I am sooo mad!

[Guest guest]

My baby did not have brachy. But I do know that lots of brachy babies

get treated at CT and they have the kind of helmet that you got, with

the opening on top of the head. It still works. The head will fill

out in back before it grows up. I know how frustrating and scary it

all is, but at seven mos your child will get nice correction and you

can trust in CT, you really can.

I personally had no idea how 's helmet worked. It looked like a

toy from the party store and clearly didn't fit him--wobbled all over

the place, bent his ears over, covered one eye sometimes, and you

could fit a sandwich in there on his flat side. But CT is so good

that, as I have said before, they could have wrapped his head in duct

tape and added a piece of boloney on top and I would have been happy.

The end result is what counts. looks sooo good now. If we

could just do something about the bad smells he would be perfect.

When the helmet is made, the creator takes the cast and adds material

to make the head a normal shape. Then she makes the helmet that will

guide the head into growing the correct shape. If she (or he) made

that helmet for your son, then rest assured it is the right kind. His

head won't grow up or out any more, just back.

, 23 mos, DOC Grad 9/7

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

>

> Ok, here is the long story. I'll try to make it short. has

> brachycephaly (flat back and raised height in the back). He had

very

> little assymetry to his head. He just got out of his first band

which

> corrected the assymetry. We now got the 2nd band which will help

his

> brachy (flat back and raised height) I spoke to a few of you on

here

> about bands made specifically for brachy babies....the one where

the

> back comes right over the head. The clinicians at the NJ CT told me

> that it does not actually " hold " the height from getting higher, it

> just helps keep the band in place. A few of you on here told me

that

> the clinicians at your CT told you that that type of band DOES hold

> the height and it is not only used to hold the band from moving.

> ****If you are one of those people PLEASE tell me which CT you go

to

> and which clinician you spoke to.****

>

> I specifically told them at the casting that I want that type of

band

> since 's height is very high, and has nearly no assymetry

now.

> They wrote it in the report that they sent with his cast. I picked

up

> the band today, and it was not that kind. It's the normal kind

where

> the front of one side goes up, and the back of the other side goes

> up. I said to " How is that going to help the height? " She

said

> they made the band that is best for , etc... Well, I

understand

> that, but I want to know how this band is better for than

the

> one that will hold the height as well as let the back come

> out...since the height is his number one problem. Please write back

> if you are one of the people who I spoke to about this already, and

> also write back if you know anything about the bands used for

brachy

> head shapes. Thanks a lot!!!

>

> Marcy and (7 months)

> 2 months in DOC band #1

> Now in Doc band #2

> New Jersey

[Guest guest]

HI Marcy,

I don't think I was one of the people who talked about this with you

in the past, but I can tell you that there is NO such thing as

a " brachy " band. The clinician who told you that the lip all the

way accross the back is just a holding point is correct, it is not

there to prevent further height. YOu don't need to worry about it

growing in height anyway when he's in a band, b/c it's laying flat

on an incline that will make his head like this, and obviously he

can't do that w/the band on. They addressed this in the moderator

conference us mods went to back in March, but when this question was

being debated here a month or two back, I emailed Carol son for

clarification. She confirmed again that the tops are only for

suspension and that a side opening band will still address the

brachy. You don't need to be mad !

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

>

> Ok, here is the long story. I'll try to make it short. has

> brachycephaly (flat back and raised height in the back). He had

very

> little assymetry to his head. He just got out of his first band

which

> corrected the assymetry. We now got the 2nd band which will help

his

> brachy (flat back and raised height) I spoke to a few of you on

here

> about bands made specifically for brachy babies....the one where

the

> back comes right over the head. The clinicians at the NJ CT told

me

> that it does not actually " hold " the height from getting higher,

it

> just helps keep the band in place. A few of you on here told me

that

> the clinicians at your CT told you that that type of band DOES

hold

> the height and it is not only used to hold the band from moving.

> ****If you are one of those people PLEASE tell me which CT you go

to

> and which clinician you spoke to.****

>

> I specifically told them at the casting that I want that type of

band

> since 's height is very high, and has nearly no assymetry

now.

> They wrote it in the report that they sent with his cast. I picked

up

> the band today, and it was not that kind. It's the normal kind

where

> the front of one side goes up, and the back of the other side goes

> up. I said to " How is that going to help the height? " She

said

> they made the band that is best for , etc... Well, I

understand

> that, but I want to know how this band is better for than

the

> one that will hold the height as well as let the back come

> out...since the height is his number one problem. Please write

back

> if you are one of the people who I spoke to about this already,

and

> also write back if you know anything about the bands used for

brachy

> head shapes. Thanks a lot!!!

>

> Marcy and (7 months)

> 2 months in DOC band #1

> Now in Doc band #2

> New Jersey

[Guest guest]

I agree also with and . The band, wether it has a top

peice or not, is going to be different looking regardless. One

creator makes each band so every single one is a custom design. My

son did have the top peice, but it never actually touched his head.

He received great correction especially with his head height. If you

are still feeling anxious you can see for yourself in the D

folder under plagio kids. I think he still has another photo album

under DOCband photos as well.

Good luck,

Crista-Grayslake, Il

D-13 mo today-brachy DOCgrad

--- In Plagiocephaly , " cowtroy8 " <cowtroy8@a...>

wrote:

>

> Ok, here is the long story. I'll try to make it short. has

> brachycephaly (flat back and raised height in the back). He had

very

> little assymetry to his head. He just got out of his first band

which

> corrected the assymetry. We now got the 2nd band which will help

his

> brachy (flat back and raised height) I spoke to a few of you on

here

> about bands made specifically for brachy babies....the one where

the

> back comes right over the head. The clinicians at the NJ CT told me

> that it does not actually " hold " the height from getting higher, it

> just helps keep the band in place. A few of you on here told me

that

> the clinicians at your CT told you that that type of band DOES hold

> the height and it is not only used to hold the band from moving.

> ****If you are one of those people PLEASE tell me which CT you go

to

> and which clinician you spoke to.****

>

> I specifically told them at the casting that I want that type of

band

> since 's height is very high, and has nearly no assymetry

now.

> They wrote it in the report that they sent with his cast. I picked

up

> the band today, and it was not that kind. It's the normal kind

where

> the front of one side goes up, and the back of the other side goes

> up. I said to " How is that going to help the height? " She

said

> they made the band that is best for , etc... Well, I

understand

> that, but I want to know how this band is better for than

the

> one that will hold the height as well as let the back come

> out...since the height is his number one problem. Please write back

> if you are one of the people who I spoke to about this already, and

> also write back if you know anything about the bands used for

brachy

> head shapes. Thanks a lot!!!

>

> Marcy and (7 months)

> 2 months in DOC band #1

> Now in Doc band #2

> New Jersey

[Guest guest]

Hi . I am sure I can trust them at CT and that is why I left

there saying " ok, you all know what you are doing " . I really do trust

them and have confindence in them, but they confuse me. The clinician

contradicts herself. I really like her, but I am not sure what to

think. She first says that it doesn't hold the height, but then when

I asked her who is the other band intended for? What kind of head

shape? When do they make those type of bands? She says it is for

babies that have very bad head height...So that means that it holds

the height, right? I don't know. I guess I am looking into things too

much. I should be more like you and just let the professionals do

their job. I guess its just because I am paying $6000 out of my

pocket and I just want this to work out for the best!! Thanks for

your reassurance .

Marcy and (7 months)

2 months in DOC band # 1

Now in Doc band #2

New Jersey

> >

> > Ok, here is the long story. I'll try to make it short. has

> > brachycephaly (flat back and raised height in the back). He had

> very

> > little assymetry to his head. He just got out of his first band

> which

> > corrected the assymetry. We now got the 2nd band which will help

> his

> > brachy (flat back and raised height) I spoke to a few of you on

> here

> > about bands made specifically for brachy babies....the one where

> the

> > back comes right over the head. The clinicians at the NJ CT told

me

> > that it does not actually " hold " the height from getting higher,

it

> > just helps keep the band in place. A few of you on here told me

> that

> > the clinicians at your CT told you that that type of band DOES

hold

> > the height and it is not only used to hold the band from moving.

> > ****If you are one of those people PLEASE tell me which CT you go

> to

> > and which clinician you spoke to.****

> >

> > I specifically told them at the casting that I want that type of

> band

> > since 's height is very high, and has nearly no assymetry

> now.

> > They wrote it in the report that they sent with his cast. I

picked

> up

> > the band today, and it was not that kind. It's the normal kind

> where

> > the front of one side goes up, and the back of the other side

goes

> > up. I said to " How is that going to help the height? " She

> said

> > they made the band that is best for , etc... Well, I

> understand

> > that, but I want to know how this band is better for than

> the

> > one that will hold the height as well as let the back come

> > out...since the height is his number one problem. Please write

back

> > if you are one of the people who I spoke to about this already,

and

> > also write back if you know anything about the bands used for

> brachy

> > head shapes. Thanks a lot!!!

> >

> > Marcy and (7 months)

> > 2 months in DOC band #1

> > Now in Doc band #2

> > New Jersey

[Guest guest]

Marcy, that made me cackle--I don't trust ANYBODY!!! Not one single

person, ever, not after what happened to . You are absolutely

right to question this and dig deeper and try to get all the

information. CT just seemed so professional and knowledgeable to me,

and they were the only chance had at correction, so I closed

my eyes and put my faith in them. I had no choice. They came through

for and somehow got him round again. If he had been seven

months old I probably would have bugged them to death with questions

and demands about every little thing. Keep bugging and questioning!

But do it here too and hopefully others can reassure you.

, 23 mos, DOC Grad 9/7

> > >

> > > Ok, here is the long story. I'll try to make it short.

has

> > > brachycephaly (flat back and raised height in the back). He had

> > very

> > > little assymetry to his head. He just got out of his first band

> > which

> > > corrected the assymetry. We now got the 2nd band which will

help

> > his

> > > brachy (flat back and raised height) I spoke to a few of you on

> > here

> > > about bands made specifically for brachy babies....the one

where

> > the

> > > back comes right over the head. The clinicians at the NJ CT

told

> me

> > > that it does not actually " hold " the height from getting

higher,

> it

> > > just helps keep the band in place. A few of you on here told me

> > that

> > > the clinicians at your CT told you that that type of band DOES

> hold

> > > the height and it is not only used to hold the band from

moving.

> > > ****If you are one of those people PLEASE tell me which CT you

go

> > to

> > > and which clinician you spoke to.****

> > >

> > > I specifically told them at the casting that I want that type

of

> > band

> > > since 's height is very high, and has nearly no assymetry

> > now.

> > > They wrote it in the report that they sent with his cast. I

> picked

> > up

> > > the band today, and it was not that kind. It's the normal kind

> > where

> > > the front of one side goes up, and the back of the other side

> goes

> > > up. I said to " How is that going to help the height? " She

> > said

> > > they made the band that is best for , etc... Well, I

> > understand

> > > that, but I want to know how this band is better for

than

> > the

> > > one that will hold the height as well as let the back come

> > > out...since the height is his number one problem. Please write

> back

> > > if you are one of the people who I spoke to about this already,

> and

> > > also write back if you know anything about the bands used for

> > brachy

> > > head shapes. Thanks a lot!!!

> > >

> > > Marcy and (7 months)

> > > 2 months in DOC band #1

> > > Now in Doc band #2

> > > New Jersey