wife (new member) to husband diagnosed with PSC looking for understanding

[Guest guest]

My name is , I just joined the group today and my husband, , was diagnosed with PSC at the age of 19 (he's now 26). We were just married last July and have a beautiful son together who's now 1. I didn't know my now husband when he was diagnosed and do not know a lot about the disease. I am hoping to gain a better understanding of what my husband is going through and what we may be going through as a family later in life.

I have been with for 3 1/2 years, and since then he has had no problems, until recently.

's doctors thought everything looked great at his last check up about 6 months ago, although last week he became ill. It started with him feeling a pain in his upper abdomen (which happens quite often) and then he vomited through the night. The next day the whites of his eyes looked yellow (he had jaudice once before when he had his original surgery at age 19). We of course went to the doctor to have blood work done. Two of his test were high (My husband doen't remember which ones) and the doctor wants him to go next week to drink some kind of dye and see if he was passing gal stones. He thinks this may be causing the yellowing of his skin and eyes.

With all this happening and this being so new to my life with him, I am reaching for some kind of understanding and support so I can be there for him as much as I can. We won't know anything more until more tests next week, if we find anything out at all. We seem to get such vauge answers every time he is seen by the doctor, and it's very scary. I feel like the only time we are going to get something done or have any of our questions anwered is if he ends up in the hospital again.

Thanks for listening and I like I said before, this is all so new to me, so forgive me if I don't know the correct terminology for things I may post. Hopefully through this group I will learn more each day!

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