Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 I am so glad that you were able to bring your son home. We also brought Sydney Ihome today but all of a sudden she has a 101.2 fever and she threw up, more like a child would vomit, not just baby throw up. We are going to see how the next few hours go before we go back. I feel guilty for leaving with her now, although she never had a fever once during our three ay stay so now I am a bit worried. It breaks my heart to have to go through all thoso needle sticks again and we are all exhausted. How does one do this? Its so hard on both my husband and I, as well as for my son. We need to come up with a good plan of action I guess. Its especially hard with everthing being so unpredictable. My husband has missed almost the whole week of work. I am so happy you are at home, hopefully we will stay home too. Emma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Dear Emma, So sorry to hear Sydney has a fever, was running one in the hospital for about 4 days, on and off, and then the night before he came home, the fever was gone, had none the next day, not until we were almost ready to leave, but they let him come home anyway. Do you have any family that can help out in an emergency? Like just to cover things for the first day or two, until you have time to think clearly and get things together, although I know that anytime one child is in the hospital, it still throws things into a tailspin somewhat, even with the best laid plans, at least that is the way it is here at Hectic Grand Central, even when all is well here nothing is smooth running. Hope all is well with Sydney, will talk to ya soon. , mommy of 4, , 15 with a much older mind, Caleb, 6 and a kindergarten pro, finally, , 4 1/2 and the next famous artist, and , 15months with CF and reflux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 , We ended up bringing Sydney back in last night because we were worried about dehdration because she wasnt eating again. It was because she had the fever but she never resumed her feeding schedule fully before we came home the first time. we think she coinsidentally got another bug or wasnt fully over the first one and ended up feeling yucky again. I feel bad for going homw with her only to return the nextt day but we all thought she was over it. I brought her to the drs office and we tried to rehydrate her with an iv for an hour so we could go home and see if that jump startes her but her veins were all bruised from the er. we tried another head vein but it blew when the liquid started so we admitted her and put in a feeding tube with pedialite for the night. Today she did great and we came home, this time i can tell she seems much better even her cough is lighter. My family all lives near us so it is a big help. W have to have a better plan next time htough so my husband doesnt have to miss a whole week of work. Thyre very good about it but things arent done when hes not there. Thanks for your kind words, I must go sleep now for about 15 hrs!!! Emma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 Hello Emma, Do you think that 15 hours is long enough???? 24 might just do the trick. I am sorry that you had to go back, and doubly sorry that Sydney had to go back to the hospital and get stuck some more. Does she already have a feeding tube? had the NG tube for 4 months, and now he is doing great, thank goodness. You mention that things dont get done when your husband isnt home, maybe a plan of attack could be that it is ok when some things dont get done, as long as your little boy (?) I hope I am right with that, is taken care of, then that is the important thing, and the others things like dishes and laundry and cleaning up the toys can wait until you have more time at home, and things settle down. I know that when goes into the hospital, I dont keep up with anything, and whatever can get done when he gets home ok, but as long as the kids are fed and bathed and the homework is done, then that means a good day was had by all. Oh well, I guess I should go and " pound the child " , the breathing treatment is done and now for the battle of percussion. Hope all is well and I am glad that Sydney is feeling better. Love , mommy of 4, , 15 with a much older mind, Caleb, 6 and a kindergarten pro, finally, , 4 1/2 and the next famous artist, and , 15months with CF and reflux and a beautiful smile and bright blue eyes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 , Hi, I am not sure I understand your question about 15 hrs. WHen we went home originally Sydney, she had almost 24 hrs of being back to herself with her eating schedule and her disposition. After dinner at home she developed a fever ,which in turn made her not want to eat again so the drs were worried about her getting dehydrated. They wouldnt have sent us home if they werent comfortable with how she was doing and I surely wouldnt have taken her home! I am happy to say she great now. I quess therewill be lots of ups and downs and the first year can be the hardest. Because she is so new we really dont know what the future holds as i quess is with all cf patients. She never had a feeding tube before, shes actually been extremely lucky because shes never had any seriuos problems other than not gaining weight in the beginning. The main reason they kept us in the hospital was for dehydration from having a virus, which is what everyone has this time of year. It just made her not want to eat and also develop air trapping inher lungs. Her lungs are always clear and after she got her enzymes she started putting on weight immediately. I thank my blessings everyday because I knoe it can be so much worse. As for my household chores, thats not what I eant by things not getting done. I meant that when my husbend is not in his office things back up there , they are wonderful about him taking the time he needs for us, he just worries about his clients and all the hard work hes done there. My parents and other family live in our town so locves to play with them, he also has friends houses that he can go to. WE know hes taken care of really well especially when hes with my mom and dad. That makes me feel better, I just miss him terribly, I never left him before I hsd Sydney, The first time was actually when I had her, fist child syndrome i guess. Its probably good for him since i would like to send him to a small preshcool for a morning or two next year. Well I am so happy is feeling beter. Emma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 Dear Emma, When I said 15 hours, I meant that you probably needed at least 24 hours to catch up on some much needed sleep, I wasnt even thinking of the baby, I am so sorry if you thought that I meant anything mean or harmful. As far as and your husband, I misunderstood that, I just know how it is here, and it gets downright hectic when goes in the hospital. Again I am sorry if I upset you by anything that I wrote, but nothing was intended to hurt you or your family. , mommy of 4, , 15 with a much older mind, Caleb, 6 and a kindergarten pro, finally, , 4 1/2 and the next famous artist, and , 15months with CF and reflux and a beautiful smile and bright blue eyes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 , I hope you recieved my apology last night. I am sooooo sorry , I know that you would never mean any harm to us, I was being too quick and did not reread my e mail, something my husband yelled at me for. When I finally reread it I felt really stupid and awfutll for having thought someone who is going through the similar stuff would try to judge me or make me feel I wasnt doing the best for my children. Its just hard for me to know for myself that I am doing the best I can and that is something I have to get over. I hope you can forgive me and foget , so we can continue to give each other the support we all need. Again I AM SORRY!!!!!! Emma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2000 Report Share Posted October 28, 2000 Forgive you for what?????? I hope all is well with Sydney and , you are doing all you can for your kids and your family, and that is the best you can do, dont put too much pressure on yourself, just do what you can, that is being a great mommy, and good things will come. I will talk to ya later, and I hope you got some good sleep. Love , mommy of 4, , 15 with a much older mind, Caleb, 6 and a kindergarten pro, finally, , 4 1/2 and the next famous artist, and , 15months with CF and reflux and a beautiful smile and bright blue eyes Quote Link to comment Share on other sites More sharing options...
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