Re: Transportion for mito kids

[Guest guest]

Wow this sounds familar!

Every year our school now starts the special needs school in the end

of July. (Year round) We are in Reno , Nevada. Our summers at that time

are about 100 +. a never seemed to sweat. Is this a symptoms of

Mito? Overheated VERY easily. Her bus trip could be 1hr to 1 1/2. They

knew I would throw a fit. I would drive her all of July and August,

until school started for me. They knew they had until then to get it

together. My other beef is that they ordered 20 handicapped buses, in a

year round system that are NOT air conditioned!!!HELLO!

Sorry

GGGGRRRRRR!!!!

Gloria

[Guest guest]

Hi-

Ironically my son does not sweat but only at night on his head. He gets cold

very quickly and turns colors of red, blue and purple. Does anyone else

experience this?

Michele

[Guest guest]

In a message dated 03/08/2000 6:40:10 AM Pacific Standard Time,

michsull@... writes:

> Ironically my son does not sweat but only at night on his head. He gets

cold

> very quickly and turns colors of red, blue and purple. Does anyone else

> experience this?

I think that it is common for patients with mito to have autonomic

dysfunction. All of these symptoms you list could be autonomic issues. My

son has temperature regulation problems and sweats profusely at times,

sometimes related to getting overheated, but sometimes just for no apparent

reason. I have been told that the Tegretol he takes for seizure control

could also potentially help with the sweating episodes. His mito doc told us

that if we notice an increase in sweating episodes, we could check his

Tegretol level and if it is at the low end of the therapeutic range, we could

try increasing it.

Kathy C.

mom to and (Complex I and III defects)

[Guest guest]

In a message dated 3/7/00 10:23:57 PM Pacific Standard Time,

dsrtdwlr@... writes:

<< a never seemed to sweat. Is this a symptoms of

Mito? Overheated VERY easily. >>

Karly doesn't sweat either.

[Guest guest]

Hi Gloria,

I don't know if overheating without sweating is a symptom of mito or

not, But sweats at the drop of a hat. She gets hot very

easily.

I feel for you with the heat situatuation. I grew up in California

where we had 100+ days most of the summer. It can be unbareable

(misspelled that one).

Just wanted to share....

> Wow this sounds familar!

> Every year our school now starts the special needs school in

the end

> of July. (Year round) We are in Reno , Nevada. Our summers at that

time

> are about 100 +. a never seemed to sweat. Is this a symptoms

of

> Mito? Overheated VERY easily. Her bus trip could be 1hr to 1 1/2.

They

> knew I would throw a fit. I would drive her all of July and August,

> until school started for me. They knew they had until then to get it

> together. My other beef is that they ordered 20 handicapped buses,

in a

> year round system that are NOT air conditioned!!!HELLO!

>

> Sorry

>

> GGGGRRRRRR!!!!

> Gloria

[Guest guest]

Michele,

has done this since he was born. I don't know if it is part of the

Mito or not. Be real interest to hear if others have this too. He does not

handle heat well at all, he has to carry a water bottle with him in the

summer, to dump over his head if it get to hot. If he does not cool himself

down, his temp will go over 107!!!! Which he has done.

Ellen

[Guest guest]

Dr.Cohon told us that we need air conditioning and if it got over 85f that

we should not go out but we go out and I have aswiming pool and we take

short breaks in the air conditioning to make sure their not over heating.

You can ask your school to provide your child with a station wagon with air

conditioning and ask them toprovide a fan and to watch your child and if

they seem sluggish to give them something to drink. the cold weather is also

a problem over bundling and sitting in a warm car, they get colder quicker,

to watch for hyertherma. . I'm just very careful, but do got everyday to

play enless it's raining or really cold.

Vange

Re: Transportion for mito kids

> From: dsrtdwlr@...

>

> Wow this sounds familar!

> Every year our school now starts the special needs school in the end

> of July. (Year round) We are in Reno , Nevada. Our summers at that time

> are about 100 +. a never seemed to sweat. Is this a symptoms of

> Mito? Overheated VERY easily. Her bus trip could be 1hr to 1 1/2. They

> knew I would throw a fit. I would drive her all of July and August,

> until school started for me. They knew they had until then to get it

> together. My other beef is that they ordered 20 handicapped buses, in a

> year round system that are NOT air conditioned!!!HELLO!

>

> Sorry

>

> GGGGRRRRRR!!!!

> Gloria

>

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