Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Hello everyone, just wanted to let you know I've posted Emma's halloween & newly decorated DOC band photos (under Emma Clare). I've loved looking at everyone else's pictures, so I figured it was only fair to post my own! Emma has had her band for a week and a half now, and I think we can already see a difference. If nothing else, this new peace of mind I have is incredible, I'm not stressed out while she sleeps....is she on her flat spot? did she escape from her swaddle & sleep positioner? Is she getting worse every day? Yikes. I didn't even realize how stressful it was! She doesn't seem to even know it's there, which is great. The hardest part is the quiet stares and the " ohhhh " 's I get from strangers that are too scared to ask what the band is for. I wish they would just ask!!! Oh well, I'm sure everyone gets that....I'll just tell people that it's from a ski accident or something. (She's very fast!) Mom to Emma, 5 mo. Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) Cleveland, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 ~ I am also in Cleveland Ohio and am glad that Emma is doing so well. We have our 1st appt on Dec 14th at the clinic to see is my daughter will need anything done. Curious as to who you see and what insurance you have. Just in case we need the band. I know my niece also had tort and the band. She went to Rainbows and to the therapist . That is all I know. She is 2 now and she looks great! Tish Emma's new photos > > > Hello everyone, just wanted to let you know I've posted Emma's > halloween & newly decorated DOC band photos (under Emma Clare). > > I've loved looking at everyone else's pictures, so I figured it was > only fair to post my own! > > Emma has had her band for a week and a half now, and I think we can > already see a difference. If nothing else, this new peace of mind I > have is incredible, I'm not stressed out while she sleeps....is she > on her flat spot? did she escape from her swaddle & sleep > positioner? Is she getting worse every day? Yikes. I didn't even > realize how stressful it was! > > She doesn't seem to even know it's there, which is great. The > hardest part is the quiet stares and the " ohhhh " 's I get from > strangers that are too scared to ask what the band is for. I wish > they would just ask!!! Oh well, I'm sure everyone gets that....I'll > just tell people that it's from a ski accident or something. (She's > very fast!) > > > Mom to Emma, 5 mo. > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) > Cleveland, OH > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 , Emma is adorable and I really love the way you decorated her band. That is great that you are already seeing progress and you have such peace of mind now. You must be getting alot more sleep! (I remember getting up every hour of the night when we were repo'ing Aidan - exhausting!) You'll stop noticing the stares, and you will be surprised at how many NICE comments you will get. Last week in the store a woman told me Aidan must be an angel because he's wearing a halo - how sweet is that! Take care, & Aidan in CT 14 months, doc band #1 7/21 doc band #2 scheduled for 11/9 > > Hello everyone, just wanted to let you know I've posted Emma's > halloween & newly decorated DOC band photos (under Emma Clare). > > I've loved looking at everyone else's pictures, so I figured it was > only fair to post my own! > > Emma has had her band for a week and a half now, and I think we can > already see a difference. If nothing else, this new peace of mind I > have is incredible, I'm not stressed out while she sleeps....is she > on her flat spot? did she escape from her swaddle & sleep > positioner? Is she getting worse every day? Yikes. I didn't even > realize how stressful it was! > > She doesn't seem to even know it's there, which is great. The > hardest part is the quiet stares and the " ohhhh " 's I get from > strangers that are too scared to ask what the band is for. I wish > they would just ask!!! Oh well, I'm sure everyone gets that....I'll > just tell people that it's from a ski accident or something. (She's > very fast!) > > > Mom to Emma, 5 mo. > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) > Cleveland, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Thank you for the reassurance...isn't it funny how we let complete strangers alter our perceptions of things? Good luck with band #2 on your little Aidan! , mom to Emma --- In Plagiocephaly , " " <andcable03@y...> wrote: > > , > > Emma is adorable and I really love the way you decorated her band. > That is great that you are already seeing progress and you have such > peace of mind now. You must be getting alot more sleep! (I remember > getting up every hour of the night when we were repo'ing Aidan - > exhausting!) You'll stop noticing the stares, and you will be > surprised at how many NICE comments you will get. Last week in the > store a woman told me Aidan must be an angel because he's wearing a > halo - how sweet is that! > > Take care, > > & Aidan in CT > 14 months, doc band #1 7/21 > doc band #2 scheduled for 11/9 > > --- In Plagiocephaly , " eclarebear " <sarah@p...> wrote: > > > > Hello everyone, just wanted to let you know I've posted Emma's > > halloween & newly decorated DOC band photos (under Emma Clare). > > > > I've loved looking at everyone else's pictures, so I figured it was > > only fair to post my own! > > > > Emma has had her band for a week and a half now, and I think we can > > already see a difference. If nothing else, this new peace of mind > I > > have is incredible, I'm not stressed out while she sleeps....is she > > on her flat spot? did she escape from her swaddle & sleep > > positioner? Is she getting worse every day? Yikes. I didn't even > > realize how stressful it was! > > > > She doesn't seem to even know it's there, which is great. The > > hardest part is the quiet stares and the " ohhhh " 's I get from > > strangers that are too scared to ask what the band is for. I wish > > they would just ask!!! Oh well, I'm sure everyone gets > that....I'll > > just tell people that it's from a ski accident or something. > (She's > > very fast!) > > > > > > Mom to Emma, 5 mo. > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) > > Cleveland, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 , Emma's band looks great! She is a cutie1 I'm glad she's adjusting well. mom to na DOC Grad SOuth Carolinaeclarebear <sarah@...> wrote: Hello everyone, just wanted to let you know I've posted Emma's halloween & newly decorated DOC band photos (under Emma Clare).I've loved looking at everyone else's pictures, so I figured it was only fair to post my own!Emma has had her band for a week and a half now, and I think we can already see a difference. If nothing else, this new peace of mind I have is incredible, I'm not stressed out while she sleeps....is she on her flat spot? did she escape from her swaddle & sleep positioner? Is she getting worse every day? Yikes. I didn't even realize how stressful it was!She doesn't seem to even know it's there, which is great. The hardest part is the quiet stares and the "ohhhh"'s I get from strangers that are too scared to ask what the band is for. I wish they would just ask!!! Oh well, I'm sure everyone gets that....I'll just tell people that it's from a ski accident or something. (She's very fast!)Mom to Emma, 5 mo.Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)Cleveland, OHFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Tish- We also see at Rainbow, she's a specialist in tort (literally has written the book) and is absolutely wonderful. She also runs the only Ohio location of Cranial Tech (DOC Band people) and is really active in spreading the word on both tort & plagio to the medical community. Our insurance is MedMutual, and was able to get us approved the first time for 100%...she knows what the companies are looking for and will work really hard for you. Unfortunately her practice is out of our network (sigh) so insurance will cover 70%, but that's still WAY better than nothing! Tish, I don't know how old your daughter is, but I would HIGHLY recommend that you see if you can get an earlier appointment! December 14 is a month and a half from now, and time is really of the essence when dealing with plagio. If you are already on this site, then you are aware that it is a possibility. If you do decide to band then you still have to play the waiting game while you wait for insurance approval, get casted, wait for the band to arrive, etc. I don't mean to scare you at all, but I wouldn't wait. If you like, I can give you 's info, where you can contact her directly and get her insight. I think the Clinic might just refer you to her anyway...? I waited 4 weeks from my ped's initial diagnosis until our first scheduled appointment, and in retrospect it makes me sick to my stomach. I would do almost anything to get that time back for Emma's head. Let me know if I can help in any way! You're the first cleveland person that i've run into on this site. (Is your niece's last name Anness, by any chance?) , mom to Emma > ~ > > I am also in Cleveland Ohio and am glad that Emma is doing so well. We have > our 1st appt on Dec 14th at the clinic to see is my daughter will need > anything done. Curious as to who you see and what insurance you have. Just > in case we need the band. > > I know my niece also had tort and the band. She went to Rainbows and to the > therapist . That is all I know. She is 2 now and she looks great! > > Tish > Emma's new photos > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > halloween & newly decorated DOC band photos (under Emma Clare). > > > > I've loved looking at everyone else's pictures, so I figured it was > > only fair to post my own! > > > > Emma has had her band for a week and a half now, and I think we can > > already see a difference. If nothing else, this new peace of mind I > > have is incredible, I'm not stressed out while she sleeps....is she > > on her flat spot? did she escape from her swaddle & sleep > > positioner? Is she getting worse every day? Yikes. I didn't even > > realize how stressful it was! > > > > She doesn't seem to even know it's there, which is great. The > > hardest part is the quiet stares and the " ohhhh " 's I get from > > strangers that are too scared to ask what the band is for. I wish > > they would just ask!!! Oh well, I'm sure everyone gets that....I'll > > just tell people that it's from a ski accident or something. (She's > > very fast!) > > > > > > Mom to Emma, 5 mo. > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) > > Cleveland, OH > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Thank you for your wonderful reply. I know you are not out to scare me as I have seen it with my niece so I know the importance. She was also diagnosed late so I know that the earlier the better. I also have Medical Mutual of Ohio. I would love to go straight to her if possible. Did you need the referral for insurance? Cause if I don't I would go straight to her. I am on a cancellation list but it was the soonest I could get in. I feel like it is my fault we have waited so long. I kept saying to myself well she doesn't have tort so it will get better. also my daughter has a FULL head of hair so it is not noticeable at all when dry. So my brother and SIL didn't really notice either. Any info you have would be great and I thank you. Oh and no that isn't their last name. She has been out of the band for a year now. Tish Emma's new photos > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > > halloween & newly decorated DOC band photos (under Emma Clare). > > > > > > I've loved looking at everyone else's pictures, so I figured it > was > > > only fair to post my own! > > > > > > Emma has had her band for a week and a half now, and I think we > can > > > already see a difference. If nothing else, this new peace of > mind I > > > have is incredible, I'm not stressed out while she sleeps....is > she > > > on her flat spot? did she escape from her swaddle & sleep > > > positioner? Is she getting worse every day? Yikes. I didn't > even > > > realize how stressful it was! > > > > > > She doesn't seem to even know it's there, which is great. The > > > hardest part is the quiet stares and the " ohhhh " 's I get from > > > strangers that are too scared to ask what the band is for. I wish > > > they would just ask!!! Oh well, I'm sure everyone gets > that....I'll > > > just tell people that it's from a ski accident or something. > (She's > > > very fast!) > > > > > > > > > Mom to Emma, 5 mo. > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Tish, Your ped or family dr can write the referal and the eventual RX if needed. Ours did. We never saw a specialist. Does your insurance require the specialist? If not then I suggest making an appointment with your child's dr. Take the CT severity assesment charts, the AAP guidelines, and some other research. Have a heart to heart with dr. Explain you really would like an earlier evaluation could he just write the referall. I'm sure would be happy to explain her findings to him/her with her recommendations. AAP Proposal Nov. 2003News article outlining new guidelines for treatment of deformational plagiocephaly are proposed 11/5/03http://www.docguide.com/news/content.nsf/news/8525697700573E1885256DD5007FCDB8?OpenDocument & id=48DDE4A73E09A969852568880078C249 & c=Paediatrics & count=10.htm Severity Assesment of Plagiocephaly Assessing the severity of plagiocephaly can be very subjective. In an attempt to standardize the classification of plagiocephaly, Cranial Technologies has developed assessment tools mom to na DOC Grad SC PS Yes I am all over the severity charts and AAP article today J & J <baz@...> wrote: Thank you for your wonderful reply. I know you are not out to scare me as Ihave seen it with my niece so I know the importance. She was also diagnosedlate so I know that the earlier the better. I also have Medical Mutual ofOhio. I would love to go straight to her if possible. Did you need thereferral for insurance? Cause if I don't I would go straight to her. I amon a cancellation list but it was the soonest I could get in. I feel like itis my fault we have waited so long. I kept saying to myself well she doesn'thave tort so it will get better. also my daughter has a FULL head of hair soit is not noticeable at all when dry. So my brother and SIL didn't reallynotice either. Any info you have would be great and I thank you. Oh and nothat isn't their last name. She has been out of the band for a year now.Tish----- Original Message ----- From: "eclarebear" <sarah@...><Plagiocephaly >Sent: Wednesday, November 03, 2004 2:54 PMSubject: Re: Emma's new photos>>> Tish->> We also see at Rainbow, she's a specialist in tort (literally> has written the book) and is absolutely wonderful. She also runs the> only Ohio location of Cranial Tech (DOC Band people) and is really> active in spreading the word on both tort & plagio to the medical> community.>> Our insurance is MedMutual, and was able to get us approved the> first time for 100%...she knows what the companies are looking for> and will work really hard for you. Unfortunately her practice is out> of our network (sigh) so insurance will cover 70%, but that's still> WAY better than nothing!>> Tish, I don't know how old your daughter is, but I would HIGHLY> recommend that you see if you can get an earlier appointment!> December 14 is a month and a half from now, and time is really of the> essence when dealing with plagio. If you are already on this site,> then you are aware that it is a possibility. If you do decide to> band then you still have to play the waiting game while you wait for> insurance approval, get casted, wait for the band to arrive, etc. I> don't mean to scare you at all, but I wouldn't wait.>> If you like, I can give you 's info, where you can contact her> directly and get her insight. I think the Clinic might just refer> you to her anyway...?>> I waited 4 weeks from my ped's initial diagnosis until our first> scheduled appointment, and in retrospect it makes me sick to my> stomach. I would do almost anything to get that time back for Emma's> head.>> Let me know if I can help in any way! You're the first cleveland> person that i've run into on this site. (Is your niece's last name> Anness, by any chance?)>> , mom to Emma>>>> > > ~> >> > I am also in Cleveland Ohio and am glad that Emma is doing so well.> We have> > our 1st appt on Dec 14th at the clinic to see is my daughter will> need> > anything done. Curious as to who you see and what insurance you> have. Just> > in case we need the band.> >> > I know my niece also had tort and the band. She went to Rainbows> and to the> > therapist . That is all I know. She is 2 now and she looks> great!> >> > Tish> > Emma's new photos> >> >> > >> > >> > > Hello everyone, just wanted to let you know I've posted Emma's> > > halloween & newly decorated DOC band photos (under Emma Clare).> > >> > > I've loved looking at everyone else's pictures, so I figured it> was> > > only fair to post my own!> > >> > > Emma has had her band for a week and a half now, and I think we> can> > > already see a difference. If nothing else, this new peace of> mind I> > > have is incredible, I'm not stressed out while she sleeps....is> she> > > on her flat spot? did she escape from her swaddle & sleep> > > positioner? Is she getting worse every day? Yikes. I didn't> even> > > realize how stressful it was!> > >> > > She doesn't seem to even know it's there, which is great. The> > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > strangers that are too scared to ask what the band is for. I wish> > > they would just ask!!! Oh well, I'm sure everyone gets> that....I'll> > > just tell people that it's from a ski accident or something.> (She's> > > very fast!)> > >> > > > > > Mom to Emma, 5 mo.> > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)> > > Cleveland, OH> > >> > >> > >> > >> > >> > >> > >> > > For more plagio info, go to www.plagiocephaly.org/support> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 I just called and will wait for a call back to see if I can just go to them or need to see the specialist. Hopefully she knows how my insurance works or I will make some calls tomorrow. I know I don't need referrals for regular things but will see. Thanks! Tish Emma's new photos> >> >> > >> > >> > > Hello everyone, just wanted to let you know I've posted Emma's> > > halloween & newly decorated DOC band photos (under Emma Clare).> > >> > > I've loved looking at everyone else's pictures, so I figured it> was> > > only fair to post my own!> > >> > > Emma has had her band for a week and a half now, and I think we> can> > > already see a difference. If nothing else, this new peace of> mind I> > > have is incredible, I'm not stressed out while she sleeps....is> she> > > on her flat spot? did she escape from her swaddle & sleep> > > positioner? Is she getting worse every day? Yikes. I didn't> even> > > realize how stressful it was!> > >> > > She doesn't seem to even know it's there, which is great. The> > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > strangers that are too scared to ask what the band is for. I wish> > > they would just ask!!! Oh well, I'm sure everyone gets> that....I'll> > > just tell people that it's from a ski accident or something.> (She's> > > very fast!)> > >> > > > > > Mom to Emma, 5 mo.> > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)> > > Cleveland, OH> > >> > >> > >> > >> > >> > >> > >> > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Tish- First of all, it is NOT your fault!!!! It's your fault that she's getting help, that's all! And that makes you a wonderful mom. With us, we got a perscription from our ped for . That's all she needed. We had our first appt on oct 9, insurance was approved oct 11, she was casted oct 16 and got her band on the 25th. Here it is nov 3 and she's already improving... I would call your pediatrician, see if they'll give you a perscription for banding & fax it to . If not, then i'm not sure...call her & see what she recommends...I'm pretty confident that she will get you around whatever hurdles come your way. Karmel-Ross Straight Ahead (ha ha) 440-460-0923 440-460-1767 fax BTW, I saw the pictures you posted of your daughter! She's BEAUTIFUL! Good luck! , mom to Emma > > > ~ > > > > > > I am also in Cleveland Ohio and am glad that Emma is doing so well. > > We have > > > our 1st appt on Dec 14th at the clinic to see is my daughter will > > need > > > anything done. Curious as to who you see and what insurance you > > have. Just > > > in case we need the band. > > > > > > I know my niece also had tort and the band. She went to Rainbows > > and to the > > > therapist . That is all I know. She is 2 now and she looks > > great! > > > > > > Tish > > > Emma's new photos > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > > > halloween & newly decorated DOC band photos (under Emma Clare). > > > > > > > > I've loved looking at everyone else's pictures, so I figured it > > was > > > > only fair to post my own! > > > > > > > > Emma has had her band for a week and a half now, and I think we > > can > > > > already see a difference. If nothing else, this new peace of > > mind I > > > > have is incredible, I'm not stressed out while she sleeps....is > > she > > > > on her flat spot? did she escape from her swaddle & sleep > > > > positioner? Is she getting worse every day? Yikes. I didn't > > even > > > > realize how stressful it was! > > > > > > > > She doesn't seem to even know it's there, which is great. The > > > > hardest part is the quiet stares and the " ohhhh " 's I get from > > > > strangers that are too scared to ask what the band is for. I wish > > > > they would just ask!!! Oh well, I'm sure everyone gets > > that....I'll > > > > just tell people that it's from a ski accident or something. > > (She's > > > > very fast!) > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks) > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Thanks . I have a call in to and will call my office if I need an RX I am sure they will give it. I am scared yet want to get moving. Thanks for the compliments on my daughter. Also so glad Emma got help so fast. I will go look at your pics! Tish Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > > > > halloween & newly decorated DOC band photos (under Emma > Clare). > > > > > > > > > > I've loved looking at everyone else's pictures, so I figured > it > > > was > > > > > only fair to post my own! > > > > > > > > > > Emma has had her band for a week and a half now, and I think > we > > > can > > > > > already see a difference. If nothing else, this new peace of > > > mind I > > > > > have is incredible, I'm not stressed out while she > sleeps....is > > > she > > > > > on her flat spot? did she escape from her swaddle & sleep > > > > > positioner? Is she getting worse every day? Yikes. I didn't > > > even > > > > > realize how stressful it was! > > > > > > > > > > She doesn't seem to even know it's there, which is great. The > > > > > hardest part is the quiet stares and the " ohhhh " 's I get from > > > > > strangers that are too scared to ask what the band is for. I > wish > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > that....I'll > > > > > just tell people that it's from a ski accident or something. > > > (She's > > > > > very fast!) > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 > weeks) > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Oh what a doll she is. I love the flowers you put on! Tish Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > > > > halloween & newly decorated DOC band photos (under Emma > Clare). > > > > > > > > > > I've loved looking at everyone else's pictures, so I figured > it > > > was > > > > > only fair to post my own! > > > > > > > > > > Emma has had her band for a week and a half now, and I think > we > > > can > > > > > already see a difference. If nothing else, this new peace of > > > mind I > > > > > have is incredible, I'm not stressed out while she > sleeps....is > > > she > > > > > on her flat spot? did she escape from her swaddle & sleep > > > > > positioner? Is she getting worse every day? Yikes. I didn't > > > even > > > > > realize how stressful it was! > > > > > > > > > > She doesn't seem to even know it's there, which is great. The > > > > > hardest part is the quiet stares and the " ohhhh " 's I get from > > > > > strangers that are too scared to ask what the band is for. I > wish > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > that....I'll > > > > > just tell people that it's from a ski accident or something. > > > (She's > > > > > very fast!) > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 > weeks) > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Well I called yesterday and she is going to see Teagan either tomorrow or Saturday for a free consultation. Then if necessary we will go through the steps to get it covered by insurance. My brother emailed me and really thinks she does not have a severe case. She has no misalignment on her face that we all can tell. But curious to see what she measures and what says. Do any of you know of specific measurements that they go by to asses the cases. So I have some sort of number to go by or is that not how it works? My brother feels that is a little pushy when it comes to the band and doesn't want Teagan to unnecessarily be subjected to it. I know my niece was borderline but also had the tort and a slight bulge in her forehead and slight ear mis alignment so they chose to go with it. They only did one band though and suggested two. McKenna now is fine so they are happy with their decision. Again any suggestions, observations etc are so much appreciated. I am so happy to have found this group. Tish Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > > > > halloween & newly decorated DOC band photos (under Emma > Clare). > > > > > > > > > > I've loved looking at everyone else's pictures, so I figured > it > > > was > > > > > only fair to post my own! > > > > > > > > > > Emma has had her band for a week and a half now, and I think > we > > > can > > > > > already see a difference. If nothing else, this new peace of > > > mind I > > > > > have is incredible, I'm not stressed out while she > sleeps....is > > > she > > > > > on her flat spot? did she escape from her swaddle & sleep > > > > > positioner? Is she getting worse every day? Yikes. I didn't > > > even > > > > > realize how stressful it was! > > > > > > > > > > She doesn't seem to even know it's there, which is great. The > > > > > hardest part is the quiet stares and the " ohhhh " 's I get from > > > > > strangers that are too scared to ask what the band is for. I > wish > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > that....I'll > > > > > just tell people that it's from a ski accident or something. > > > (She's > > > > > very fast!) > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 > weeks) > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hello Ladies, I just wanted to add my $.02, my daughter takes my grandson Chase to Straight Ahead and I have gone to some appointments with her and they are wonderful people! Chase is in his second band and is doing great. His first band was on from April to Sept and he will be in the second band for at least 2 more months. I don't understand the numbers to well but he went from a 24 to a 13. I know he still has a long way to go to get his ears right, but he looks great already. BTW bring him up from Groveport Ohio (3 hrs. one way) every week or two to see and they both love her. Billie Emma's new photos> > >> > >> > > >> > > >> > > > Hello everyone, just wanted to let you know I've posted Emma's> > > > halloween & newly decorated DOC band photos (under Emma Clare).> > > >> > > > I've loved looking at everyone else's pictures, so I figured it> > was> > > > only fair to post my own!> > > >> > > > Emma has had her band for a week and a half now, and I think we> > can> > > > already see a difference. If nothing else, this new peace of> > mind I> > > > have is incredible, I'm not stressed out while she sleeps....is> > she> > > > on her flat spot? did she escape from her swaddle & sleep> > > > positioner? Is she getting worse every day? Yikes. I didn't> > even> > > > realize how stressful it was!> > > >> > > > She doesn't seem to even know it's there, which is great. The> > > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > > strangers that are too scared to ask what the band is for. I wish> > > > they would just ask!!! Oh well, I'm sure everyone gets> > that....I'll> > > > just tell people that it's from a ski accident or something.> > (She's> > > > very fast!)> > > >> > > > > > > > Mom to Emma, 5 mo.> > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)> > > > Cleveland, OH> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Emma's new photos> > >> > >> > > >> > > >> > > > Hello everyone, just wanted to let you know I've posted Emma's> > > > halloween & newly decorated DOC band photos (under Emma Clare).> > > >> > > > I've loved looking at everyone else's pictures, so I figured it> > was> > > > only fair to post my own!> > > >> > > > Emma has had her band for a week and a half now, and I think we> > can> > > > already see a difference. If nothing else, this new peace of> > mind I> > > > have is incredible, I'm not stressed out while she sleeps....is> > she> > > > on her flat spot? did she escape from her swaddle & sleep> > > > positioner? Is she getting worse every day? Yikes. I didn't> > even> > > > realize how stressful it was!> > > >> > > > She doesn't seem to even know it's there, which is great. The> > > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > > strangers that are too scared to ask what the band is for. I wish> > > > they would just ask!!! Oh well, I'm sure everyone gets> > that....I'll> > > > just tell people that it's from a ski accident or something.> > (She's> > > > very fast!)> > > >> > > > > > > > Mom to Emma, 5 mo.> > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)> > > > Cleveland, OH> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Oh and we are lucky that Straight Ahead is only a 1/2 hour from us! Tish Emma's new photos> > >> > >> > > >> > > >> > > > Hello everyone, just wanted to let you know I've posted Emma's> > > > halloween & newly decorated DOC band photos (under Emma Clare).> > > >> > > > I've loved looking at everyone else's pictures, so I figured it> > was> > > > only fair to post my own!> > > >> > > > Emma has had her band for a week and a half now, and I think we> > can> > > > already see a difference. If nothing else, this new peace of> > mind I> > > > have is incredible, I'm not stressed out while she sleeps....is> > she> > > > on her flat spot? did she escape from her swaddle & sleep> > > > positioner? Is she getting worse every day? Yikes. I didn't> > even> > > > realize how stressful it was!> > > >> > > > She doesn't seem to even know it's there, which is great. The> > > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > > strangers that are too scared to ask what the band is for. I wish> > > > they would just ask!!! Oh well, I'm sure everyone gets> > that....I'll> > > > just tell people that it's from a ski accident or something.> > (She's> > > > very fast!)> > > >> > > > > > > > Mom to Emma, 5 mo.> > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)> > > > Cleveland, OH> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Thanks Billie for jumping in. I think it is great to know people that are going to the same clinic as us and that there is so much support out there. I will keep you posted as to how our consultation goes. I am off on Fridays and am here on line at work. Maybe I will hook up home computer this weekend but otherwise wont be on until Monday to update. Tish Emma's new photos> > >> > >> > > >> > > >> > > > Hello everyone, just wanted to let you know I've posted Emma's> > > > halloween & newly decorated DOC band photos (under Emma Clare).> > > >> > > > I've loved looking at everyone else's pictures, so I figured it> > was> > > > only fair to post my own!> > > >> > > > Emma has had her band for a week and a half now, and I think we> > can> > > > already see a difference. If nothing else, this new peace of> > mind I> > > > have is incredible, I'm not stressed out while she sleeps....is> > she> > > > on her flat spot? did she escape from her swaddle & sleep> > > > positioner? Is she getting worse every day? Yikes. I didn't> > even> > > > realize how stressful it was!> > > >> > > > She doesn't seem to even know it's there, which is great. The> > > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > > strangers that are too scared to ask what the band is for. I wish> > > > they would just ask!!! Oh well, I'm sure everyone gets> > that....I'll> > > > just tell people that it's from a ski accident or something.> > (She's> > > > very fast!)> > > >> > > > > > > > Mom to Emma, 5 mo.> > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 weeks)> > > > Cleveland, OH> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Tish, that's wonderful!!! I'm so glad you found this group, too! I know it helped me when I was losing my mind last month...and Billie, thank you for writing in, i'm glad you've had such a good experience at straight ahead! Maybe we'll run into each other there someday. In terms of measurements (and someone PLEASE correct me if I'm wrong!!!) they take the difference between the head measurements (front, back, side, etc.) and total it up. Anything over 10mm becomes a medical necessity and insurance will cover it. Normal is a 0-3mm difference, which we all probably have. 3-9mm is mild, 10-15mm is moderate, and 15mm+ is severe. They also put the score on a bell curve (if you remember those from school!) in terms of standard deviations. Anything over 2SD should seriously be considered, over 3SD should definately be treated. Emma had a 15mm difference and 2.5SD, so being borderline I think we could have gone either way. Our family members didn't notice it until we pointed it out (or looked at her in a mirror), but she definately was missing volume in the rear and her face had some assymetry (esp. her cheeks,which repo was helping) what finally pushed me over the edge was the potential mommy-guilt, thinking I could have helped her more. I know that I didn't want regets. I'm still surprised at how relieved I am to have banded Emma, though. That's not the emotion I was expecting! Either way, you'll make the best decision for Teagan (great name, btw!) be it banding or not. Good luck tomorrow, and please keep us updated! , mom to Emma, 5 mo. Tort/Plagio/DOC band 10/25 > > > > > ~ > > > > > > > > > > I am also in Cleveland Ohio and am glad that Emma is doing so > > well. > > > > We have > > > > > our 1st appt on Dec 14th at the clinic to see is my daughter > > will > > > > need > > > > > anything done. Curious as to who you see and what insurance you > > > > have. Just > > > > > in case we need the band. > > > > > > > > > > I know my niece also had tort and the band. She went to Rainbows > > > > and to the > > > > > therapist . That is all I know. She is 2 now and she looks > > > > great! > > > > > > > > > > Tish > > > > > Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted Emma's > > > > > > halloween & newly decorated DOC band photos (under Emma > > Clare). > > > > > > > > > > > > I've loved looking at everyone else's pictures, so I figured > > it > > > > was > > > > > > only fair to post my own! > > > > > > > > > > > > Emma has had her band for a week and a half now, and I think > > we > > > > can > > > > > > already see a difference. If nothing else, this new peace of > > > > mind I > > > > > > have is incredible, I'm not stressed out while she > > sleeps....is > > > > she > > > > > > on her flat spot? did she escape from her swaddle & sleep > > > > > > positioner? Is she getting worse every day? Yikes. I didn't > > > > even > > > > > > realize how stressful it was! > > > > > > > > > > > > She doesn't seem to even know it's there, which is great. The > > > > > > hardest part is the quiet stares and the " ohhhh " 's I get from > > > > > > strangers that are too scared to ask what the band is for. I > > wish > > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > > that....I'll > > > > > > just tell people that it's from a ski accident or something. > > > > (She's > > > > > > very fast!) > > > > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 > > weeks) > > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Thanks Sara. I appreciate all the information. I know my niece was borderline and what decided for them was her ears were off and they figured she couldn't even wear sunglasses. So I think that I will get her measurements and go from there. I am not against the band at all just obviously would prefer not to have to. But like you said I would feel like an awful Mommy if I COULD do so something and DIDN'T! Tish Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted > Emma's > > > > > > > halloween & newly decorated DOC band photos (under Emma > > > Clare). > > > > > > > > > > > > > > I've loved looking at everyone else's pictures, so I > figured > > > it > > > > > was > > > > > > > only fair to post my own! > > > > > > > > > > > > > > Emma has had her band for a week and a half now, and I > think > > > we > > > > > can > > > > > > > already see a difference. If nothing else, this new > peace of > > > > > mind I > > > > > > > have is incredible, I'm not stressed out while she > > > sleeps....is > > > > > she > > > > > > > on her flat spot? did she escape from her swaddle & sleep > > > > > > > positioner? Is she getting worse every day? Yikes. I > didn't > > > > > even > > > > > > > realize how stressful it was! > > > > > > > > > > > > > > She doesn't seem to even know it's there, which is > great. The > > > > > > > hardest part is the quiet stares and the " ohhhh " 's I get > from > > > > > > > strangers that are too scared to ask what the band is > for. I > > > wish > > > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > > > that....I'll > > > > > > > just tell people that it's from a ski accident or > something. > > > > > (She's > > > > > > > very fast!) > > > > > > > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 > > > weeks) > > > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Tish, That is great that you got an appointment with . My therapist from CT in Charlotte usually used 6 mm asymmetry as the go no go point. Other factors were involved too - is their any facial asymmetry and is most of the asymmetry captured in the measurement. The measurements are 2D while the head is 3D. Sometimes there is asymmetry above or below the measurement line that is not truely captured. Most research says that 0-3 mm is average asymmetry and less than 6 mm is mild. Let us know how the evaluation goes. mom to na DOC Grad SCJ & J <baz@...> wrote: Well I called yesterday and she is going to see Teagan either tomorrowor Saturday for a free consultation. Then if necessary we will go throughthe steps to get it covered by insurance. My brother emailed me and reallythinks she does not have a severe case. She has no misalignment on her facethat we all can tell. But curious to see what she measures and what says.Do any of you know of specific measurements that they go by to asses thecases. So I have some sort of number to go by or is that not how it works?My brother feels that is a little pushy when it comes to the band anddoesn't want Teagan to unnecessarily be subjected to it. I know my niece wasborderline but also had the tort and a slight bulge in her forehead andslight ear mis alignment so they chose to go with it. They only did one bandthough and suggested two. McKenna now is fine so they are happy withtheir decision.Again any suggestions, observations etc are so much appreciated. I am sohappy to have found this group.Tish Emma's new photos> > > >> > > >> > > > >> > > > >> > > > > Hello everyone, just wanted to let you know I've posted Emma's> > > > > halloween & newly decorated DOC band photos (under Emma> Clare).> > > > >> > > > > I've loved looking at everyone else's pictures, so I figured> it> > > was> > > > > only fair to post my own!> > > > >> > > > > Emma has had her band for a week and a half now, and I think> we> > > can> > > > > already see a difference. If nothing else, this new peace of> > > mind I> > > > > have is incredible, I'm not stressed out while she> sleeps....is> > > she> > > > > on her flat spot? did she escape from her swaddle & sleep> > > > > positioner? Is she getting worse every day? Yikes. I didn't> > > even> > > > > realize how stressful it was!> > > > >> > > > > She doesn't seem to even know it's there, which is great. The> > > > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > > > strangers that are too scared to ask what the band is for. I> wish> > > > > they would just ask!!! Oh well, I'm sure everyone gets> > > that....I'll> > > > > just tell people that it's from a ski accident or something.> > > (She's> > > > > very fast!)> > > > >> > > > > > > > > > Mom to Emma, 5 mo.> > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2> weeks)> > > > > Cleveland, OH> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Thanks will do! Tish Emma's new photos> > > >> > > >> > > > >> > > > >> > > > > Hello everyone, just wanted to let you know I've posted Emma's> > > > > halloween & newly decorated DOC band photos (under Emma> Clare).> > > > >> > > > > I've loved looking at everyone else's pictures, so I figured> it> > > was> > > > > only fair to post my own!> > > > >> > > > > Emma has had her band for a week and a half now, and I think> we> > > can> > > > > already see a difference. If nothing else, this new peace of> > > mind I> > > > > have is incredible, I'm not stressed out while she> sleeps....is> > > she> > > > > on her flat spot? did she escape from her swaddle & sleep> > > > > positioner? Is she getting worse every day? Yikes. I didn't> > > even> > > > > realize how stressful it was!> > > > >> > > > > She doesn't seem to even know it's there, which is great. The> > > > > hardest part is the quiet stares and the "ohhhh"'s I get from> > > > > strangers that are too scared to ask what the band is for. I> wish> > > > > they would just ask!!! Oh well, I'm sure everyone gets> > > that....I'll> > > > > just tell people that it's from a ski accident or something.> > > (She's> > > > > very fast!)> > > > >> > > > > > > > > > Mom to Emma, 5 mo.> > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2> weeks)> > > > > Cleveland, OH> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Emma is so pretty and so is her band! Sue Colin F., 13 mos. STARband grad 9/04 brachy > > > > Thank you for your wonderful reply. I know you are not out to > scare > > > me as I > > > > have seen it with my niece so I know the importance. She was > also > > > diagnosed > > > > late so I know that the earlier the better. I also have Medical > > > Mutual of > > > > Ohio. I would love to go straight to her if possible. Did you > need > > > the > > > > referral for insurance? Cause if I don't I would go straight to > > > her. I am > > > > on a cancellation list but it was the soonest I could get in. I > > > feel like it > > > > is my fault we have waited so long. I kept saying to myself well > > > she doesn't > > > > have tort so it will get better. also my daughter has a FULL > head > > > of hair so > > > > it is not noticeable at all when dry. So my brother and SIL > didn't > > > really > > > > notice either. Any info you have would be great and I thank > you. Oh > > > and no > > > > that isn't their last name. She has been out of the band for a > year > > > now. > > > > > > > > Tish > > > > Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted > Emma's > > > > > > > halloween & newly decorated DOC band photos (under Emma > > > Clare). > > > > > > > > > > > > > > I've loved looking at everyone else's pictures, so I > figured > > > it > > > > > was > > > > > > > only fair to post my own! > > > > > > > > > > > > > > Emma has had her band for a week and a half now, and I > think > > > we > > > > > can > > > > > > > already see a difference. If nothing else, this new > peace of > > > > > mind I > > > > > > > have is incredible, I'm not stressed out while she > > > sleeps....is > > > > > she > > > > > > > on her flat spot? did she escape from her swaddle & sleep > > > > > > > positioner? Is she getting worse every day? Yikes. I > didn't > > > > > even > > > > > > > realize how stressful it was! > > > > > > > > > > > > > > She doesn't seem to even know it's there, which is > great. The > > > > > > > hardest part is the quiet stares and the " ohhhh " 's I get > from > > > > > > > strangers that are too scared to ask what the band is > for. I > > > wish > > > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > > > that....I'll > > > > > > > just tell people that it's from a ski accident or > something. > > > > > (She's > > > > > > > very fast!) > > > > > > > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 1/2 > > > weeks) > > > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info, go to www.plagiocephaly.org/support > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Thanks!!! Colin is adorable too...does he still have those great dimples? Congrats on being DONE!!! > > > > > > > ~ > > > > > > > > > > > > > > I am also in Cleveland Ohio and am glad that Emma is > doing > > so > > > > well. > > > > > > We have > > > > > > > our 1st appt on Dec 14th at the clinic to see is my > daughter > > > > will > > > > > > need > > > > > > > anything done. Curious as to who you see and what > insurance > > you > > > > > > have. Just > > > > > > > in case we need the band. > > > > > > > > > > > > > > I know my niece also had tort and the band. She went to > > Rainbows > > > > > > and to the > > > > > > > therapist . That is all I know. She is 2 now and she > > looks > > > > > > great! > > > > > > > > > > > > > > Tish > > > > > > > Emma's new photos > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, just wanted to let you know I've posted > > Emma's > > > > > > > > halloween & newly decorated DOC band photos (under Emma > > > > Clare). > > > > > > > > > > > > > > > > I've loved looking at everyone else's pictures, so I > > figured > > > > it > > > > > > was > > > > > > > > only fair to post my own! > > > > > > > > > > > > > > > > Emma has had her band for a week and a half now, and I > > think > > > > we > > > > > > can > > > > > > > > already see a difference. If nothing else, this new > > peace of > > > > > > mind I > > > > > > > > have is incredible, I'm not stressed out while she > > > > sleeps....is > > > > > > she > > > > > > > > on her flat spot? did she escape from her swaddle & > sleep > > > > > > > > positioner? Is she getting worse every day? Yikes. I > > didn't > > > > > > even > > > > > > > > realize how stressful it was! > > > > > > > > > > > > > > > > She doesn't seem to even know it's there, which is > > great. The > > > > > > > > hardest part is the quiet stares and the " ohhhh " 's I > get > > from > > > > > > > > strangers that are too scared to ask what the band is > > for. I > > > > wish > > > > > > > > they would just ask!!! Oh well, I'm sure everyone gets > > > > > > that....I'll > > > > > > > > just tell people that it's from a ski accident or > > something. > > > > > > (She's > > > > > > > > very fast!) > > > > > > > > > > > > > > > > > > > > > > > > Mom to Emma, 5 mo. > > > > > > > > Tort(getting much better, finally!)/Plagio(Doc Band 1 > 1/2 > > > > weeks) > > > > > > > > Cleveland, OH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > For more plagio info, go to > www.plagiocephaly.org/support > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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