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Since I am really new to this, I am not sure how this works, but

here's my story.

Three years ago I had my thyroid out due to the cancer, I have had

radiation treatments and have now had 2 clean bills of health. The

last time I went to my Dr. he reduced me to .112 mcg of Synthroid. I

started gaining weight and feeling tired all the time. Seems I had

been taking twice that amount and felt good and was keeping my weight

down. Anyone got any suggestions as to what to do? What are others

taking and how do you handle the tiredness and aching muscles. He

says that is all part of it???? But then I have gotten mixed

information from him before. I have started experiencing chest pains

on occassion and he says it is nothing?

Any answer/comments will be appreciated. Thanks in advance

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Did he say why he decreased your medication by half? Seems to me that is

quite a reduction. Has he done any blood work? When was the med

decreased? Any mention of future blood work? Any other doctor you can see

about this?

This is your life, you need to assert yourself and take control of your

treatment.

Good Luck,

Helen, TT 2/02

RAI 4/02

Scan 5/02

HP

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Comobley -

It sounds like you have been trusting the doctors to treat you, without

trying to understand for yourself what is going on. Until now :-)

Do you know for sure that you had been taking twice the amount of

Synthroid? If a 50% reduction was appropriate, then you were tremendously

overmedicated before (although it sounds as if you were feeling fine).

Who is the doctor who reduced your medication? It may be that s/he

doesn't have an understanding of thyroid cancer protocol and the fact that

it is recommended to have your TSH (thyroid stimulating hormone) suppressed

to a level that would be considered hyperthyroid for other people.

I agree with Helen; you need to assert yourself and take control of your

treatment.

First, however, you need to educate yourself about your health issues,

thyroid cancer in particular, so that you can understand what is going on

and be in a better position to asses your doctors' capabilities. I do

agree that regardless of their medical abilities, your doctors should be

able to hear your complaints and explain his or her thinking to you, but

that's another conversation.

If you don't already have copies of your medical records, now is a good

time to start acquiring them. You should have copies of everything -

pathology, surgery, treatment, and every blood test report. It doesn't

matter that you may not understand everything that's written in them; it's

a good first step to knowing what is going on with your health and your

body.

good luck -

NYC

comobley wrote:

> Since I am really new to this, I am not sure how this works, but

> here's my story.

>

> Three years ago I had my thyroid out due to the cancer, I have had

> radiation treatments and have now had 2 clean bills of health. The

> last time I went to my Dr. he reduced me to .112 mcg of Synthroid. I

> started gaining weight and feeling tired all the time. Seems I had

> been taking twice that amount and felt good and was keeping my weight

> down. Anyone got any suggestions as to what to do? What are others

> taking and how do you handle the tiredness and aching muscles. He

> says that is all part of it???? But then I have gotten mixed

> information from him before. I have started experiencing chest pains

> on occassion and he says it is nothing?

>

> Any answer/comments will be appreciated. Thanks in advance

>

>

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