Re: questions to ask craniofacial team

[Guest guest]

Hmmm, I can't think of many. Hopefully others will have more. I

couldn't find a list in our files. I can't remember all of your

info. on the triplets.

I don't think I asked much. How about: what is the severity (if any)

of each of their heads (mild, moderate, severe). Can you take any

measurements?

I'm sure that he will just tell you what he thinks and knows as far

as repo vs. helmet therapy.

Did you *want* to get a helmet or only if he recommends it? If you

want to and he doesn't, you need to firmly ask for the prescription

(s). Again, I can't remember all of your details so hopefully I have

not spoken out of turn. Good luck !

Sue

Colin F.

STARband grad

--- In Plagiocephaly , " cpdevries " <cdevries@c...>

wrote:

>

> I am going to see Dr. Shinno at the West LA Kaiser tomorrow

morning.

> Dr. Shinno is going to look at all three of the triplets, Grant for

> his plagio and the other two for their slightly odd head shapes.

> Does anyone have any suggestions as to what questions I should ask

> that I may not think of. I hate it when I go to the doctor and get

> asked, did you ask about ________? or What about_________? and I

> can't answer the question but wish I could.

>

> Thanks for any suggestions.

>

>

[Guest guest]

Thanks Sue!

I do think I want the band, I don't see much difference with the repo and

they were already 7 months old this month on the 9th. I would

prefer my baby(ies) not need the band but I have to realize that it is

only temporary. One of my girls was fitted for glasses last week

and I am pretty unhappy that she needs them. I guess I am going

through a little bit of wishing there was something I could do and upset

to think that I maybe should have done something sooner or been able to

prevent them needing a band here or glasses there. I guess I just

have to be happy that they are all healthy and not having more serious

health complications that are more common with supertwins...I just can't

help it to sulk a little bit.

And just a refresher, since no one can remember everyone's

circumstances...

Grant has tort and plagio, his forehead, face/cheeks are off and his ears

are very misaligned.

Kennedy has a flat spot on the right side of her head

Madison has a large bump/lump on the back of her head where her soft spot

used to be.

Thanks again!

At 12:14 AM 10/19/2004 +0000, you wrote:

Hmmm, I can't think of many.

Hopefully others will have more. I

couldn't find a list in our files. I can't remember all of your

info. on the triplets.

I don't think I asked much. How about: what is the severity (if

any)

of each of their heads (mild, moderate, severe). Can you take any

measurements?

I'm sure that he will just tell you what he thinks and knows as far

as repo vs. helmet therapy.

Did you *want* to get a helmet or only if he recommends it? If you

want to and he doesn't, you need to firmly ask for the prescription

(s). Again, I can't remember all of your details so hopefully I

have

not spoken out of turn. Good luck !

Sue

Colin F.

STARband grad

--- In Plagiocephaly , " cpdevries "

<cdevries@c...>

wrote:

>

> I am going to see Dr. Shinno at the West LA Kaiser tomorrow

morning.

> Dr. Shinno is going to look at all three of the triplets, Grant for

> his plagio and the other two for their slightly odd head

shapes.

> Does anyone have any suggestions as to what questions I should ask

> that I may not think of. I hate it when I go to the doctor and

get

> asked, did you ask about ________? or What about_________? and I

> can't answer the question but wish I could.

>

> Thanks for any suggestions.

>

>

For more plagio info, go to

www.plagiocephaly.org/support

[Guest guest]

,

Check out this link, I think you'll find it helpful.

http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htm

Good luck at your appointment tomorrow, please let us know how you

make out.

--- In Plagiocephaly , " cpdevries " <cdevries@c...>

wrote:

>

> I am going to see Dr. Shinno at the West LA Kaiser tomorrow

morning.

> Dr. Shinno is going to look at all three of the triplets, Grant for

> his plagio and the other two for their slightly odd head shapes.

> Does anyone have any suggestions as to what questions I should ask

> that I may not think of. I hate it when I go to the doctor and get

> asked, did you ask about ________? or What about_________? and I

> can't answer the question but wish I could.

>

> Thanks for any suggestions.

>

>

[Guest guest]

Here are some links to questions that might be helpful.

Cranial Tech's Questions to Ask the Doctor or Orthotist:The quality of treatment available varies widely for children with plagiocephaly. One way to avoid pitfalls is to be aware of them. Print this page and use it for your research.http://www.cranialtech.com/Treatment/selecting.html

Questions To Ask The Doctor and Orthotist/Clinician Once an official diagnosis is made and a course of treatment is planned, many children are referred to an Orthotist or Treatment Facility in order to obtain cranial orthosis. Here is a list of questions to ask the Orthotist/Clinician. http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htm

Questions for the DoctorIt is important to ask any questions that concern you. WRITE DOWN the questions you want to ask, and take a pen (or a mini tape recorder) with you so you can write down the answers given. Here are some suggested questions for you doctor and/or orthotist. Please feel free to print this page...http://www.plagiocephaly.org/support/questions.htm

mom to naSue <justsue5@...> wrote:

Hmmm, I can't think of many. Hopefully others will have more. I couldn't find a list in our files. I can't remember all of your info. on the triplets.I don't think I asked much. How about: what is the severity (if any) of each of their heads (mild, moderate, severe). Can you take any measurements? I'm sure that he will just tell you what he thinks and knows as far as repo vs. helmet therapy.Did you *want* to get a helmet or only if he recommends it? If you want to and he doesn't, you need to firmly ask for the prescription(s). Again, I can't remember all of your details so hopefully I have not spoken out of turn. Good luck !SueColin F.STARband grad>

> I am going to see Dr. Shinno at the West LA Kaiser tomorrow morning. > Dr. Shinno is going to look at all three of the triplets, Grant for > his plagio and the other two for their slightly odd head shapes. > Does anyone have any suggestions as to what questions I should ask > that I may not think of. I hate it when I go to the doctor and get > asked, did you ask about ________? or What about_________? and I > can't answer the question but wish I could.> > Thanks for any suggestions.> > For more plagio info