Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 In a message dated 1/19/00 10:03:33 AM Eastern Standard Time, DNunno@... writes: << Does mito cause autism or contribute to it? Is there a connection? I am interested in anyone's experiences. Thanks for your help. >> and - I am not a doctor or an expert, but I have noticed that there are several people on this list and elsewhere whose children have mito that either report autistic-like behaviors or a diagnosis of autism. I know of one child who was diagnosed with autism as a toddler, but at age 7 the label was removed. Funny, but some of his mito symptoms are worse now than when he had the autism label. Hmmmm. I am not sure about the relationship . . . but it certainly seems to be related. Kathy C. Mom to and (mito encephalomyopathy, complex I and III) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 In a message dated 1/19/00 12:36:07 PM Eastern Standard Time, zullo@... writes: << Dr. Kelley will be speaking on mitochondria and autism at the following minisymposium! 2nd NIH Mitochondria Minisymposium; 14, 15 March 2000. " Mitochondria:Interaction of Two Genomes " Web Page: <http://www.nih.gov/sigs/mito/March2000.html> J. Zullo, PhD Laboratory of Biochemical Genetics >> Thanks for the info! Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 Our daughter, , is diagnosed with autism as well. For us, the autism diagnosis describes her behaviorally, and aides us in developing her IEP. It is also helpful in our efforts to make her quality of life a priority. Although the autism diagnosis (around age 5) came before the Mito diagnosis (age 11), looking back, the numerous diagnoses that she has received over the years (Including developmental delay, pervasive developmental disorder, MMR, Speech Delayed, Ataxia, Failure to Thrive, .....) can all be attributed to her deteriorating condition due to the Mito. That is purely our impression mixed in with opinions from various medical and mental health professionals. There may be others on the list with a more scientific or research-based explanation, but that is our experience. Best of luck to you and your children. ML -- Lou mom to ,14 Complex I & III (our happy,little entertainer); Jeff 16 and Greg 10 (typical active boys) ---------- > >To: " 'mitoonelist' " <mitoonelist> >Subject: Autism and Mito >Date: Wed, Jan 19, 2000, 8:01 AM > > > > Is anyone's child diagnosed with autism as well as mito. My oldest son > (,4) has had a Mitochondrial Encephalomyopathy dx since 1998. Our > youngest, n, has been medically OK so far, but has just been dx with > autism at 22 months and the neurologist says that probably is too, > from what we tell him (appt. next month). Does mito cause autism or > contribute to it? Is there a connection? I am interested in anyone's > experiences. Thanks for your help. > & Nunno > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 Dr. Kelley will be speaking on mitochondria and autism at the following minisymposium! 2nd NIH Mitochondria Minisymposium; 14, 15 March 2000. " Mitochondria:Interaction of Two Genomes " Web Page: <http://www.nih.gov/sigs/mito/March2000.html> J. Zullo, PhD Laboratory of Biochemical Genetics NIMH-NIH; Bldg. 10, Rm. 2D56; 9000 Rockville Pike Bethesda, MD 20892 ; FAX zullo@... New Mitochondria Interest Group Web Page: <http://www.nih.gov/sigs/mito/> First generation Mitochondria Interest Group Web Page: <http://www-lecb.ncifcrf.gov/~zullo/migDB/> Phage-Tech Interest Group (PhTIG) Web Page: <http://www.nih.gov/sigs/phtig/> Re: Autism and Mito From: KCorley309@... In a message dated 1/19/00 10:03:33 AM Eastern Standard Time, DNunno@... writes: << Does mito cause autism or contribute to it? Is there a connection? I am interested in anyone's experiences. Thanks for your help. >> and - I am not a doctor or an expert, but I have noticed that there are several people on this list and elsewhere whose children have mito that either report autistic-like behaviors or a diagnosis of autism. I know of one child who was diagnosed with autism as a toddler, but at age 7 the label was removed. Funny, but some of his mito symptoms are worse now than when he had the autism label. Hmmmm. I am not sure about the relationship . . . but it certainly seems to be related. Kathy C. Mom to and (mito encephalomyopathy, complex I and III) --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 In a message dated 1/19/00 10:03:35 AM Eastern Standard Time, DNunno@... writes: << s anyone's child diagnosed with autism as well as mito. >> My son Clayton sees Dr. Kelley and has been placed on the autism spectrum as well as given a diagnosis of mito. I do not know how common it is BUT Dr. Kelley has told me that he has seen several kids like Clayton. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 Our son son just turned 9 and is diagnosed with Asperger's Syndrome (high functioning autism) as well as refractory seizures and Mito. Our son was always well ahead of himself developmentally, In fact as a preschooler he was always quite gifted, but hyperactive. He wasn't diagnosed with Asperger's until age 6, seizures at age 7, and mito at age 8. I truly believe that the Mito is the route to all his problems. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 In a message dated 01/19/2000 6:23:01 PM Pacific Standard Time, Dalsmith@... writes: << He wasn't diagnosed with Asperger's until age 6, seizures at age 7, and mito at age 8. I truly believe that the Mito is the route to all his problems. Laurel >> Now you tell son to behave himself when he becomes 9!! Unless he gives you the winning numbers to the Lottery... I completely agree with mito being the root of all Staci's problems. Hang in there! We didn't enlist in this battle, we were drafted. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2000 Report Share Posted January 20, 2000 , That is so true. But, don't you sometimes wish you could be a " draft dodger " for a day ! By the way, after this past year we have told son that we will only allow positive things this year - so far so good Laurel Quote Link to comment Share on other sites More sharing options...
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