Re: various - Lee, personal, other

[Guest guest]

Thanks Philip. Right now I am the one seeking answers and information.

Maybe later he will want to.

Lee

> Lee - You were wondering if your son's reaction is due to his age. I

> think each of us responds to diagnosis and illness in her or his own

> way. I think complete ignorance is not helpful, but voracious info

> hunting like many of us do is not necessary for everyone. I was

> diagnosed when I was not quite 21 and I went through phases --

> sometimes I wanted all the info I could get and at other times I

> just lived my life. I would see my doctor regularly and he gave me

> some guidance. As the disease progresses, it's been good for me to

> either be in one of those info hungry phases OR to have an advocate

> with me at my appointments.