Re: today's update on Mike

[Guest guest]

Patti, think positive...I know it is hard...but if they are getting him

off the respirator and up today...that is FANTASTIC!!!! You all are in

our prayers!!!!! I've been there, I know where you are at!!!!!

today's update on Mike

I'm freaking....

I spoke to the transplant surgeon......first of all, the new liver is

doing

great, they are watching the hepatic artery...

I'm worried about the tumour they found, Dr. McAllister told me it was

the

size of a lemon, in his belly, it's called a 'deltoid tumour', they

don't

have the biopsy report yet. What concerned me is that he said if they'd

found it before they opened him up they probably wouldn't have done the

surgery....does this mean he has cancer? Will the immunosuppressants

aggrivate it? I don't know what to do, it's so hard being so far away

and

only getting answers second hand....he said most times these things are

benign, so now, we wait again.

That's all I have folks, they are getting him off the respirator today

and

getting him up.

Thanks for your thoughts and well wishes, you have no idea how much it

means

to me.

Patti

" I used to have a handle on life - but it broke off "

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[Guest guest]

>

> " I'm freaking.... " Patti

Dear Patti:

Just take things one day and one issue at a time. I know it must be

so much more difficult to deal with not being right there with Mike.

Sounds to me like Mike's situation right now is exactly where it

should be. He's no doubt thrilled to get that respirator out of his

mouth and, of course, it's great news that his new liver is doing so

well. The two of you will be in my prayers.

I hadn't checked my e-mail all weekend until late Monday night after

returning from Omaha where I had my third annual post-tx checkup

earlier that day. Just remember: Mike is the latest in a long string

of blessings and miracles. Hang on.

One more thing: I was touched to read your comments regarding the

donor family and what they must be going through. Even if you never

learn anything about the donor, that family will be part of your

life forever.

Rich in KC

Crohn's, cryptogenic cirrhosis, lv txs 5/23 & 26/2001

[Guest guest]

Patti , wow! I hadn't checked my mail in a week and I couldn't believe

the news! I just kept scrolling to get all the updates with my heart

pounding out of my chest. I'll be praying ... and passing the request

along. Oh yeah, I forgot your last name! . There's too much going on

right now. I have serious brain FOG . Hang in there! Love ya Faith

('s mom)

[Guest guest]

Patti,

Please don't waste nervous energy over something that you have no control

over. He is in capable hands and they FOUND the tumour.......

Why concentrate on all the obstacles along the journey instead of fixing you

thoughts and prayers on reaching the destination ??

I have no idea what he is going through but my time will come.......he along

with myself is quite a sick man....but we have been given a second

chance...don't look at it any other way

Tony B ( UK )

PSC 99

UC 00

currently the transplant list

today's update on Mike

>

>

> I'm freaking....

> I spoke to the transplant surgeon......first of all, the new liver is

> doing

> great, they are watching the hepatic artery...

> I'm worried about the tumour they found, Dr. McAllister told me it was

> the

> size of a lemon, in his belly, it's called a 'deltoid tumour', they

> don't

> have the biopsy report yet. What concerned me is that he said if they'd

>

> found it before they opened him up they probably wouldn't have done the

> surgery....does this mean he has cancer? Will the immunosuppressants

> aggrivate it? I don't know what to do, it's so hard being so far away

> and

> only getting answers second hand....he said most times these things are

> benign, so now, we wait again.

> That's all I have folks, they are getting him off the respirator today

> and

> getting him up.

> Thanks for your thoughts and well wishes, you have no idea how much it

> means

> to me.

>

> Patti

>

>

> " I used to have a handle on life - but it broke off "

>

> _________________________________________________________________

> MSN Premium with Virus Guard and Firewall* from McAfee® Security : 2

> months

> FREE*

> http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU

> =http://hotmail.com/enca & HL=Market_MSNIS_Taglines

>

>

>

>

>

>

[Guest guest]

Patti,

Try to relax. You'll make yourself sick with the anxiety. Let the Docs

get the whole picture. It sounds like things have been done just in

time. Your are in my prayers. Remember prayer does help.

Rob (Mr. Itch)

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