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A PSC problem?

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I wrote a few weeks ago about my husband's hiccups, which resolved

after 12 miserable days and nights. (If anyone ever has this problem,

you know who to ask for suggestions.) The hiccups were perhaps in

response to a bloated stomach. Nothing seemed to be moving along into

his ilium (he gave up his ulcerated colon in surgery when 16; he was

Dx'd w/PSC in 1989.) The bloated stomach emptied itself now and then

through projectile vomiting. Sounds like a blockage, right? We went to

the doc on San Island off Seattle (where we were visiting our

kids) concerned about dehydration and a blockage. On Xray, a blockage

was ruled out; Terry was hydrated via IV. A couple liters and a couple

of days and a few billion hiccups and the stomach/gut finally kicked in

and did that they were supposed to do. Then the persistent diarrhea

began. We figured the hiccups were the diaphragm's response to days of

pressure on his diaphragm.

We're now back on our little remote island in Maine and, as of last

night, he seems to be gearing up for the same scenario. His abdomen is

distended; he is burping lots; hardly anything seems to be moving

through his ileostomy. I'm sitting here waiting for hiccups. But none

so far. :)

Any observations/thoughts would be appreciated, aside from the obvious:

get him to a doc. The trouble is his hospital is Lahey in Burlington,

Mass., and we're on an island in Maine. He saw a primary care doc on

San Island who offered only an IV (as a medic, I can set him up

myself as needed); and he saw a G.I. doc in Key West when we got

there—we live half the year in Florida and half in Maine—who really had

no clue. Actually, he did put him on cholestyramine for the diarrhea.

Don't know if it helped. (He did take a packet this morning.) So it

seems, if he is to see someone, it should be a hep in Mass. His hep

moved to a different hospital and I'm trying to set up something with a

new one at Lahey. It really is no problem, except it all has to happen.

No jaundice; no itching (he has been jaundiced for about a week every

couple of years but not now, and has never been itchy) and really no

pain. Discomfort with the distention and mildly nauseous.

Does any of this sound familiar to anyone?

Loie

& Lois Cowan

authors@...

& Lois Cowan

authors@...

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