Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 As my Mom always said...... take care of yourself as best you can and live your life to the fullest! You can't limit yourself especially if you are feeling healthy! Make contact with a hospital/doctor down there if you can and GO FOR IT!!! xxooxx Travelling Hi everyone,I'm wondering about everyones experiences and advice for travelling with PSC (and UC). Next year I was thinking of travelling to South Africa as a part of a volunteer program. My mom is worried about the type of medical care available there. This is probably a long shotbut does anyone know anything about this haha? Anyways travelling is my passion and I would like to hear from other people who like to travel and the experiences they have had. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 I travel a lot, but have not done so in the "Third World." Nonetheless, my doc recommends taking some Cipro along whenever I wander. It may be a good idea to have a summary of your condition translated into whatever local language you may encounter. 39, PSC 98 I'm wondering about everyones experiences and advice for travellingwith PSC (and UC). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 CCFA has a website with great travel information: http://www.ccfa.org/living/travel One of the important things that I found from ccfa that I would have never thought of is to know the names of medication in the country you are traveling in. Until I read that I had assumed that the meds were named the same. I agree with Gema - enjoy your life, live to the fullest! LINDA (Mom of Suzanne, 16; UC 1/04, PSC 3/04) I'm wondering about everyones experiences and advice for travelling with PSC (and UC). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Take along copies of applicable medical history, sufficient medications, a " stash " of Cipro (or your antibiotic of choice), get medivac transport insurance. I'd also recommend a satellite phone - they're pretty reasonable to rent now. With UC, travel to many parts of the world is not advised(your GI will be able to tell you what areas). If I remember correctly, Africa, South America and Asia are not recommended. Of course, Peg's Phil routinely travels to Asia on business. Your GI should be able to find you a contact for medical centers. South Africa MAY be OK. See http://www.doh.gov.za/docs/news/2002/nz0423.html My first out-of-country trip after diagnosis was a little spooky (you never know what will happen with PSC!), but with the above, I don't worry about it so much anymore. I DO take a satellite phone on wilderness trips. Travel is fun, but it's your life you're dealing with - not all countries have the medical care available that we do. Your mom is right to be worried. Good luck! Arne 55 - UC 1977 - PSC 2000 Alive and (mostly) well in Minnesota Hi everyone, I'm wondering about everyones experiences and advice for travelling with PSC (and UC). Next year I was thinking of travelling to South Africa as a part of a volunteer program. My mom is worried about the type of medical care available there... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 I went to South Africa last summer. I do not have PSC, my daughter does. You can go to several sights on Google for travel immunizations to find out what shots you need. My husband is a physician, who provides the shots, the only one in our county in South Texas. They must be ordered way in advance. You must take Malaria pills for at least a week before going and, I think, 2 weeks after. One of the side effects is, they cause you to have very strange dreams. It's very odd. Most people in South Africa speak English. Depending on where you will be, depends on the type of medical care they will offer. I must say the experience of traveling Africa was the best experience I've ever had, and I have traveled a lot. If I can be of more help, let me know. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Another thing is to get an Hepatitis A immunization. Marti --- jllowery@... wrote: > > I travel a lot, but have not done so in the " Third > World. " Nonetheless, my > doc recommends taking some Cipro along whenever I > wander. It may be a good > idea to have a summary of your condition translated > into whatever local > language you may encounter. > > > > > > 39, PSC 98 > > > In a message dated 5/31/2005 6:17:19 AM Central > Standard Time, > llduq@... writes: > > I'm wondering about everyones experiences and > advice for travelling > with PSC (and UC). > > > > > __________________________________ Yahoo! Mail Mobile Take Yahoo! Mail with you! Check email on your mobile phone. http://mobile.yahoo.com/learn/mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 What about traveling after transplant?brewit_87 wrote: Hi everyone,I'm wondering about everyones experiences and advice for travelling with PSC (and UC). Next year I was thinking of travelling to South Africa as a part of a volunteer program. My mom is worried about the type of medical care available there. This is probably a long shotbut does anyone know anything about this haha? Anyways travelling is my passion and I would like to hear from other people who like to travel and the experiences they have had. Thanks.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Your local health dept can tell you what diseases are common in the area you wish to go to. Check with them about immunizations Marti --- Tina Finn wrote: > What about traveling after transplant? > > brewit_87 wrote:Hi everyone, > I'm wondering about everyones experiences and advice > for travelling > with PSC (and UC). Next year I was thinking of > travelling to South > Africa as a part of a volunteer program. My mom is > worried about the > type of medical care available there. This is > probably a long shot > but does anyone know anything about this haha? > Anyways travelling is > my passion and I would like to hear from other > people who like to > travel and the experiences they have had. Thanks. > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 I have also done a fair bit of traveling overseas (including SA) since my diagnosis. I think everyone else has covered the basics such as having lots of medication on hand, etc. - the only thing I would add (if others have already suggested this, my apologies as I have not got to all the replies yet) is to be sure to have a very detailed medical history and anticipated problems in writing that is stored somewhere accessible (I keep mine with my ID/passport) in case you are unable to communicate for some reason. In SA, there is very capable medical care as long as you are near one of the big cities - but in remote areas (esp if going to other countries in the area) it is quite possible to get a very long days drive from anything other than the most basic medical. My biggest fear when I will be any distance from serious medical care is a ruptured esophageal variceal and bleeding - this can be serious anywhere - so it may be worth screening for these. Depending on level liver disease, may also want to check with your Dr about taking various medications - esp things like antimalarials, or even Imodium which may be a problem in liver patients. The emergency evacution insurance programs also add some peace of mind - and may be available thru a sponsoring organization if that is who is arranging your trip. However, I did find when I tried to personally sign up for the SOS program, that virtually any preexisting condition was reason for exclusion - ie they would still evacuate you if you fell and broke your leg or back etc, but would not do so if you had a PSC-related problem. Having said all this, I hope (within reason) that you decide to go - I always felt to do otherwise is letting PSC win, and everyone should follow their passions! UC 1978, PSC 1996 -----Original Message-----From: [mailto: ]On Behalf Of brewit_87Sent: Monday, May 30, 2005 7:55 PMTo: Subject: TravellingHi everyone,I'm wondering about everyones experiences and advice for travelling with PSC (and UC). Next year I was thinking of travelling to South Africa as a part of a volunteer program. My mom is worried about the type of medical care available there. This is probably a long shotbut does anyone know anything about this haha? Anyways travelling is my passion and I would like to hear from other people who like to travel and the experiences they have had. Thanks. Quote Link to comment Share on other sites More sharing options...
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