Your latest ALK PHOS numbers -- a poll

[Guest guest]

1) Latest ALK #'s and the lowest and highest numbers since diagnosis: 864

2) Number of years since diagnosis; 2 mo

3) Whether you are experiencing symptoms or listed for transplant: fatigue,

lack of concentration, itching

4) Whether taking Urso: 1200mg/3TID

[Guest guest]

> I am curious, if you don't mind posting them, please answer these

> four questions (should take only a minute):

>

> 1) Latest ALK #'s and the lowest and highest numbers since diagnosis

458 - After my transplant in April 98, Alk Phos bottomed out at 43 in

July 98, by the time recurrance was diagnosed in 2001 it was up to 138

and hit a peak of 878 in Sept 2003

> 2) Number of years since diagnosis;

16 & 4 (for recurrance)

> 3) Whether you are experiencing symptoms or listed for transplant

Listed Feb 2005, have fatigue, itching and irregular sleep patterns

> 4) Whether taking Urso

Yes, at medium dosage - 17mg/kg/day