Re: Donations to Partners Seeking a Cure

[Guest guest]

Hi ;

Thanks for your very kind donation in honor of (Deb), and in

memory of Shauna. Yes, the " Fdn.Bio.Ed.Res. " is no longer needed ...

this Foundation adopted us temporarily until PSC Partners Seeking a

Cure got official 501©3 status. I'm pleased that you liked the

newsletters! By the way, if you'd like to write an article, we'd love

to have one from you. Glad to hear that Fred is well enough to be doing

this kind of handiwork. Since Fred has PSC, does his climb up the

ladder represent an unusual case of ascending cholangitis? [sorry,

, I couldn't resist that one!].

Best regards,

Dave R.

(father of (19); PSC 07/03; UC 08/03)

[Guest guest]

Dear ,

You are right that the check can now be made out to PSC Partners

Seeking a Cure since we now have our own 501[c]3. It can now also be

sent directly to us at

PSC Partners Seeking a Cure

5237 So. Kenton Way

Englewood,CO.

80111

It can still go through the accountant if that is how you sent it but

it saves us money if it comes directly now.

The newsletter this month was split into two parts since there was a

lot of material from the conference. The update on the donations will

be in the next newsletter.

I think that it is wonderful that not only are you honoring Shauna's

memory but that you are also honoring 's life and future!

and I have been in touch and we have a great company ready to

supply sporting auction items at a sporting event in the Cleveland

area. If you are interested in helping with this just let him

know. It can be any sporting event, a golf tournament, a tennis

tournament, ect.

Thank you , thank you, thank you for all your support.

Lee

> I've been catching up and reading the wonderful PSC newsletters, and

> made

> out a check to send to PSC/Partners Seeking a Cure, but didn't notice

> any

> donation info in the last newsletter. I went to the PSC website

> however; and

> saw there is an updated address. (I had made out the check to

> Fdn.Bio.Ed.Res./PSC - I'm guessing that name is no longer viable?)

>

> So I printed out the new donation form and will write a new check -

> which I

> am sending in HONOR of (Deb) Boyd, and in MEMORY of Shauna

> Saunders.

>

> You ALL rock! BTW, from Cleveland, I'm from Cleveland too -

> Brecksville/Broadview Hts./Lakewood. It is a GREAT place to be from!

>

> , mostly devoted wife of Fred, PSC 3/04, who's doing well and

> currently painting the outside of our three story house while standing

> precariously on a 40-foot ladder and making his wife nuts. (Fred is

> 57, by

> the way.)

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear Lee-

I will send check directly to address you gave. Thanks.

> and I have been in touch and we have a great company ready

to supply sporting auction items at a sporting event in the

Cleveland area. If you are interested in helping with this

just let him know. It can be any sporting event, a golf tournament,

a tennis tournament, ect. >

, feel free to write me off list at fshus@.... What

you're doing sounds very interesting. And thank YOU Lee, and others

for ALL your tireless efforts.

BTW, I explained to Fred (PSC 3/04) about the " hitting the wall, "

discussed in the newsletter, and that, yes, he's doing OK now, but

who knows the future of this unpredictable disease? Can't take

anything for granted. Am TRYING to get him more interested in

reading the research. Because he's completely asymptomatic except

for off and on fatigue, learning about PSC is not uppermost in his

mind, yet he LOVES researching anything having to do with the brain.

It's like living with a psychiatrist/psychologist. I jokingly call

him " Sigmund Fred. " So if anyone has any questions on WHY you get

depressed/anxious/fearful, ie., the chemistry behind it, he can

explain it!

, wife of Fred, PSC 3/04, age 57, who's getting ready to

climb up on a 40-foot ladder again and paint the house, while I pray

and go nuts.

[Guest guest]

Fred is my

kind of guy. We do have a great group, don’t we? Ive never been to Cleveland,

(have been to Dayton and Cincinnati (sp)), Ive been to New York, Baltimore,

Atlanta, Chicago, Denver, Indianapolis, etc, etc. and I think all cities are

good places to be from as in “away

from”. Tell Fred good luck for me.

Sam

Dx 01,

listed 03

-----Original

Message-----

From:

[mailto: ]On Behalf

Of Hussey

Sent: Friday, May 13, 2005 8:29 PM

To:

Subject: Donations

to Partners Seeking a Cure

I've been catching up and reading the wonderful PSC newsletters,

and made

out a check to send to PSC/Partners Seeking a Cure, but didn't notice any

donation info in the last newsletter. I went to the PSC website however;

and

saw there is an updated address. (I had made out the check to

Fdn.Bio.Ed.Res./PSC - I'm guessing that name is no longer viable?)

So I printed out the new donation form and will write a new check - which I

am sending in HONOR of (Deb) Boyd, and in MEMORY of Shauna Saunders.

You ALL rock! BTW, from Cleveland, I'm from Cleveland too -

Brecksville/Broadview Hts./Lakewood. It is a GREAT place to be from!

, mostly devoted wife of Fred, PSC 3/04, who's doing well and

currently painting the outside of our three story house while standing

precariously on a 40-foot ladder and making his wife nuts. (Fred is 57, by

the way.)

[Guest guest]

- , " " <rhodesdavid@i...>

wrote:

>I'm pleased that you liked the newsletters! By the way, if you'd

like to write an article, we'd love to have one from you.>>

I've thought of that, but do not know what I'd write about. I almost

feel " guilty " contributing, since Fred's doing so well - what to

write??? If you can think of a topic from my perspective, let me

know. (And Dave, you're on my " Shameless Hussey " enewsletter list,

so you KNOW how I write.)

Glad to hear that Fred is well enough to be doing

> this kind of handiwork. Since Fred has PSC, does his climb up the

> ladder represent an unusual case of ascending cholangitis? [sorry,

> , I couldn't resist that one!].

>

HAHAHAHA! Since Fred IS doing so well, and never had any cholangitis

symptoms, I would say he has ascending colon, heart, lungs, liver,

etc. Everything but the brain goes up the ladder with him.

Hussey, shameless wife of Fred, PSC 3/04, and who also may

have the bowel stuff to go with the PSC but refuses to get the

ascending colonoscopy to find out.)

[Guest guest]

Hi ,

Thanks in advance for the donation. You can make out the check either to Fdn.Bio.Ed.Res./PSC or to PSC Partners Seeking a Cure. We appreciate your support! Thanks also for reminding us to add the donation info in each newsletter.

Thanks!!

Ricky

Donations to Partners Seeking a Cure

I've been catching up and reading the wonderful PSC newsletters, and made out a check to send to PSC/Partners Seeking a Cure, but didn't notice any donation info in the last newsletter. I went to the PSC website however; and saw there is an updated address. (I had made out the check to Fdn.Bio.Ed.Res./PSC - I'm guessing that name is no longer viable?)