Re: Me, My Lungs, and way too many doctors

[Guest guest]

I appreciate your humor. I hope you get your breathing problems given some attention. I never heard of using an inclined bed or having to stay on your back for a sleep study. I had a hard enough time sleeping on a flat comfy bed in any position I wanted.

Please let us know what the other docs have to say.

laurie

Reply-To:

Date: Sat, 05 Oct 2002 03:25:28 -0000

To:

Subject: Me, My Lungs, and way too many doctors

Hi All...

Just wanted to drop a hello to all, and share with you all a slight

update in Jennland.

I had a PFT several days ago that showed " Severe Restrictive

Ventilatory Defect " . I spoke with my Neuro (Teri Heimen )

who thinks that this is all due to fatigue and weakness, and didn't

seem too into doing much about it untill I had my sleep study (was

last night).

I didn't sleep during the Damn sleep study! My arse hurt so much

after sitting in my wheelchiar for twelve hours (all day during

school) that when they made me sleep on an inclined bed with my head

up about three pillows worth, and on my back, I kept having back

spasms down into my legs, and it really really hurt! I tried to no

avail to explain to the technition that when you sit all day, you

need to releive pressure in the, um...in the uhhh...neither regions

because otherwise it realy hurts, and he just didn't get it, so I

didn't sleep, then had to get up and go to school...thank god for

lecture classes in big lecture halls, because that's were I got my

sleep! Darn it! Anyway, I don't really agree with my neuro; however,

I see the pulmonologist in a week, and the cardiologist this coming

week. My breathing stinks, and is becoming more and more

uncomfortable.

Other then that, school is going well, I like my classes, and my

professors are being pretty supportive.

Thought that I would share my slightly off centered sense of humor

with you...I told my mother, Mitochondria are sort of like sperm...if

in the wrong place at the wrong time...they can cause you a lifetime

of hell.

Thinking of you all.

L. Di Pietro

(21 Mito)

Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

I appreciate your humor. I hope you get your breathing problems given some attention. I never heard of using an inclined bed or having to stay on your back for a sleep study. I had a hard enough time sleeping on a flat comfy bed in any position I wanted.

Please let us know what the other docs have to say.

laurie

Reply-To:

Date: Sat, 05 Oct 2002 03:25:28 -0000

To:

Subject: Me, My Lungs, and way too many doctors

Hi All...

Just wanted to drop a hello to all, and share with you all a slight

update in Jennland.

I had a PFT several days ago that showed " Severe Restrictive

Ventilatory Defect " . I spoke with my Neuro (Teri Heimen )

who thinks that this is all due to fatigue and weakness, and didn't

seem too into doing much about it untill I had my sleep study (was

last night).

I didn't sleep during the Damn sleep study! My arse hurt so much

after sitting in my wheelchiar for twelve hours (all day during

school) that when they made me sleep on an inclined bed with my head

up about three pillows worth, and on my back, I kept having back

spasms down into my legs, and it really really hurt! I tried to no

avail to explain to the technition that when you sit all day, you

need to releive pressure in the, um...in the uhhh...neither regions

because otherwise it realy hurts, and he just didn't get it, so I

didn't sleep, then had to get up and go to school...thank god for

lecture classes in big lecture halls, because that's were I got my

sleep! Darn it! Anyway, I don't really agree with my neuro; however,

I see the pulmonologist in a week, and the cardiologist this coming

week. My breathing stinks, and is becoming more and more

uncomfortable.

Other then that, school is going well, I like my classes, and my

professors are being pretty supportive.

Thought that I would share my slightly off centered sense of humor

with you...I told my mother, Mitochondria are sort of like sperm...if

in the wrong place at the wrong time...they can cause you a lifetime

of hell.

Thinking of you all.

L. Di Pietro

(21 Mito)

Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

jennifer,

hey there, sounds like you got too many things going on at once like me right

now. i dont see how you do school but- i was going to go back this semester

(been doing online since i dropped out about 2 yrs ago) but this semester was

going to train to be a medical transcriptionist but the class got cancelled

grrr. But im kinda glad it did cuz right after it was my body decided it

really wanted to mess with me. Dont ya hate those sleep studies? i got one of

them next week, i dont see how they think we can sleep with all that stuff

hooked up to us and then some. ive had it done before and was shocked that i

slept at all. they needed to be sympathetic to your butt pain. hehe. but i do

know how that is, pain in the butt isnt it? lol well, im sorry you are having

so many problems with breathing. im having to go to a pulmonologist after i

see my cardiologist next week cuz of everything going on with my heart and

lungs right now. and darn brochitis decided to sneak its way into me and

brought its friends pleurisy and upper respiratory infection with him, grrr.

course, im jacked up on high steroids and cough syrup w/hydrocodone in it, so

im feeling purdy good right now lol. i hope they figure out exactly whats

going on with your lungs soon. My dr thinks i have something called shrinking

lung syndrome (think thats what its called) cuz of how my diaphram is

elevated on one side and pushing up on my left lung too much. wonder if that

is a mito problem. hrm. who knows. anyways, glad that your school is going

well and professors are understanding. keep up the good work with school, you

motivate me to go and try again with it. :-) Oh, like your little sperm

analogy. hehe. im thinking of you and sending you healing hopes.

take care,

adrienne

[Guest guest]

Yo Jen,

I saw Dr. for 9 years. I eventually left her because her office

misplaced test results and generally i felt that she was not giving me

proper attention. I spoke to her on several occasions about these issues and

she would always promise to do better but in the end I came to the

conclusion that she had too many patients. If you are concerned about your

test result stay on her so that you get proper attention. Dave

Me, My Lungs, and way too many doctors

> Hi All...

>

> Just wanted to drop a hello to all, and share with you all a slight

> update in Jennland.

>

> I had a PFT several days ago that showed " Severe Restrictive

> Ventilatory Defect " . I spoke with my Neuro (Teri Heimen )

> who thinks that this is all due to fatigue and weakness, and didn't

> seem too into doing much about it untill I had my sleep study (was

> last night).

>

> I didn't sleep during the Damn sleep study! My arse hurt so much

> after sitting in my wheelchiar for twelve hours (all day during

> school) that when they made me sleep on an inclined bed with my head

> up about three pillows worth, and on my back, I kept having back

> spasms down into my legs, and it really really hurt! I tried to no

> avail to explain to the technition that when you sit all day, you

> need to releive pressure in the, um...in the uhhh...neither regions

> because otherwise it realy hurts, and he just didn't get it, so I

> didn't sleep, then had to get up and go to school...thank god for

> lecture classes in big lecture halls, because that's were I got my

> sleep! Darn it! Anyway, I don't really agree with my neuro; however,

> I see the pulmonologist in a week, and the cardiologist this coming

> week. My breathing stinks, and is becoming more and more

> uncomfortable.

>

> Other then that, school is going well, I like my classes, and my

> professors are being pretty supportive.

>

> Thought that I would share my slightly off centered sense of humor

> with you...I told my mother, Mitochondria are sort of like sperm...if

> in the wrong place at the wrong time...they can cause you a lifetime

> of hell.

>

> Thinking of you all.

> L. Di Pietro

> (21 Mito)

>

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded of

their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

>

[Guest guest]

Adrienne,

I've been thinking of you too with all of your current problems and

what not...

yeah, butt pain hurts! lol

Talk to you soon!

> jennifer,

> hey there, sounds like you got too many things going on at once

like me right

> now. i dont see how you do school but- i was going to go back this

semester

> (been doing online since i dropped out about 2 yrs ago) but this

semester was

> going to train to be a medical transcriptionist but the class got

cancelled

> grrr. But im kinda glad it did cuz right after it was my body

decided it

> really wanted to mess with me. Dont ya hate those sleep studies? i

got one of

> them next week, i dont see how they think we can sleep with all

that stuff

> hooked up to us and then some. ive had it done before and was

shocked that i

> slept at all. they needed to be sympathetic to your butt pain.

hehe. but i do

> know how that is, pain in the butt isnt it? lol well, im sorry you

are having

> so many problems with breathing. im having to go to a pulmonologist

after i

> see my cardiologist next week cuz of everything going on with my

heart and

> lungs right now. and darn brochitis decided to sneak its way into

me and

> brought its friends pleurisy and upper respiratory infection with

him, grrr.

> course, im jacked up on high steroids and cough syrup w/hydrocodone

in it, so

> im feeling purdy good right now lol. i hope they figure out exactly

whats

> going on with your lungs soon. My dr thinks i have something called

shrinking

> lung syndrome (think thats what its called) cuz of how my diaphram

is

> elevated on one side and pushing up on my left lung too much.

wonder if that

> is a mito problem. hrm. who knows. anyways, glad that your school

is going

> well and professors are understanding. keep up the good work with

school, you

> motivate me to go and try again with it. :-) Oh, like your little

sperm

> analogy. hehe. im thinking of you and sending you healing hopes.

> take care,

> adrienne

[Guest guest]

I couldn't sleep when I had my sleep study either.

>

>I didn't sleep during the Damn sleep study! My arse hurt so much

>after sitting in my wheelchiar for twelve hours (all day during

>school) that when they made me sleep on an inclined bed with my head

>up about three pillows worth, and on my back, I kept having back

>spasms down into my legs, and it really really hurt! I tried to no

>avail to explain to the technition that when you sit all day, you

>need to releive pressure in the, um...in the uhhh...neither regions

>because otherwise it realy hurts, and he just didn't get it, so I

>didn't sleep, then had to get up and go to school...thank god for

>lecture classes in big lecture halls, because that's were I got my

>sleep! Darn it! Anyway, I don't really agree with my neuro; however,

>I see the pulmonologist in a week, and the cardiologist this coming

>week. My breathing stinks, and is becoming more and more

>uncomfortable.

>

>O

>

[Guest guest]

:

I am so sorry that you are going through a rough patch right now. Please know that I am thinking of you all the time.....

Carol

Me, My Lungs, and way too many doctors

Hi All...Just wanted to drop a hello to all, and share with you all a slight update in Jennland.I had a PFT several days ago that showed "Severe Restrictive Ventilatory Defect". I spoke with my Neuro (Teri Heimen ) who thinks that this is all due to fatigue and weakness, and didn't seem too into doing much about it untill I had my sleep study (was last night). I didn't sleep during the Damn sleep study! My arse hurt so much after sitting in my wheelchiar for twelve hours (all day during school) that when they made me sleep on an inclined bed with my head up about three pillows worth, and on my back, I kept having back spasms down into my legs, and it really really hurt! I tried to no avail to explain to the technition that when you sit all day, you need to releive pressure in the, um...in the uhhh...neither regions because otherwise it realy hurts, and he just didn't get it, so I didn't sleep, then had to get up and go to school...thank god for lecture classes in big lecture halls, because that's were I got my sleep! Darn it! Anyway, I don't really agree with my neuro; however, I see the pulmonologist in a week, and the cardiologist this coming week. My breathing stinks, and is becoming more and more uncomfortable.Other then that, school is going well, I like my classes, and my professors are being pretty supportive.Thought that I would share my slightly off centered sense of humor with you...I told my mother, Mitochondria are sort of like sperm...if in the wrong place at the wrong time...they can cause you a lifetime of hell.Thinking of you all. L. Di Pietro (21 Mito)Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

[Guest guest]

Carol,

How's it going with Lynch?

-jenn di pietro

(21 Mito)

> :

>

> I am so sorry that you are going through a rough patch right now.

Please know that I am thinking of you all the time.....

>

> Carol

>

>

> Me, My Lungs, and way too many doctors

>

>

> Hi All...

>

> Just wanted to drop a hello to all, and share with you all a

slight

> update in Jennland.

>

> I had a PFT several days ago that showed " Severe Restrictive

> Ventilatory Defect " . I spoke with my Neuro (Teri Heimen

)

> who thinks that this is all due to fatigue and weakness, and

didn't

> seem too into doing much about it untill I had my sleep study

(was

> last night).

>

> I didn't sleep during the Damn sleep study! My arse hurt so much

> after sitting in my wheelchiar for twelve hours (all day during

> school) that when they made me sleep on an inclined bed with my

head

> up about three pillows worth, and on my back, I kept having back

> spasms down into my legs, and it really really hurt! I tried to

no

> avail to explain to the technition that when you sit all day, you

> need to releive pressure in the, um...in the uhhh...neither

regions

> because otherwise it realy hurts, and he just didn't get it, so I

> didn't sleep, then had to get up and go to school...thank god for

> lecture classes in big lecture halls, because that's were I got

my

> sleep! Darn it! Anyway, I don't really agree with my neuro;

however,

> I see the pulmonologist in a week, and the cardiologist this

coming

> week. My breathing stinks, and is becoming more and more

> uncomfortable.

>

> Other then that, school is going well, I like my classes, and my

> professors are being pretty supportive.

>

> Thought that I would share my slightly off centered sense of

humor

> with you...I told my mother, Mitochondria are sort of like

sperm...if

> in the wrong place at the wrong time...they can cause you a

lifetime

> of hell.

>

> Thinking of you all.

> L. Di Pietro

> (21 Mito)

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

>

[Guest guest]

Laurie,

i have to lie on my for me sleep study and the results come accurate-- good

luck. keep us post and hope you feel good -- me with lifetime oxygen so me

no how it like two have breath problem -- meditate!!!!!!!!!!!!!!!!!!!!

Eileen