Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Carol, I was also given Methadone for the pain. Yes, it is given to people with addictions to get them weaned off, but can be a good pain killer as well. I am narcotic resistant so it didn't do anything for me, but might be worth a try for your sister. Best of Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Carol I found that instead of taking pain meds, I have been much better off using a scooter, sitting to dry my hair, wash dishes, cook, etc. When I cut back on the standing and walking I am able to tolerate the pain that is left. I still get some, but it usually telling me that I have overdone it. I know we are all different, but going this road has worked for me. I do take Lamictal all the time and Quinine when the muscle pain gets bad. laurie Reply-To: Date: Tue, 03 Sep 2002 19:42:30 -0400 To: Subject: Pain Hi All.... My oldest sister lives in Oregon and was diagnosed early this Spring. My symptoms seem to be progressing like hers did....at least at this early stage for me. What I wanted to ask is " Is anyone familiar with the use of Methadone for pain treatment? " She has been on so many medications for pain due to her neuropathy. She is currently on Neurontin, MSContin and now they add METHADONE!!!! When she told me that I was floored! I mean, isn't that what they give heroin addicts? She broke down and got a cane. I know that was hard for her. I think I have her 85% convinced to get a scooter. Problem is...her ex-husband cancelled her health insurance with 48 hours notice. I am trying to facilitate her registration with the MDA in Oregon through her doctor's office at OHSU so perhaps something can be paid through MDA. She is trying to procure private health insurance, but the private insurance company wants to see ALL of her MEDICAL RECORDS. She is sure that she'll be denied once they get a crack the records... She has been denied Disability twice (without a lawyer). I keep telling her to get a lawyer and get cracking. I worry about her a great deal and even though she's my big sister, I feel obligated to take care of her. Even if I'm 3000 miles away. Intellectually, she understands that she has mito but she is not embracing and using the support that is out there (like us!). Terri Mason...if you're still out there...would you mind emailing me again at dupont313@... with your info. My sister lives near you and treats at OSHU. We've corresponded before. I understand from speaking with Cori at Steiner's office that you are having a picnic this weekend! Thanks! Carol Quote Link to comment Share on other sites More sharing options...
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