Re: Meagan has Pseudo

[Guest guest]

,

I am really sorry to hear about 's culture. I don't get the insurance

paying for an injectable form of tobra and not TOBI, TOBI is the only

inhaled antibiotic that is FDA approved. I don't know how to convince them

she really needs TOBI, Jen?????? any hints?

I don't know what else to say but I have heard a lot of people do go

straight to IV's as soon as the child's culture shows pseudo. As

cultured it around 14 yrs ago, things were different and now the thinking

has changed.

Well I have to be going , to make you all jealous, I am going for a massage

and a chiropractor treatment,. then to my water exercise class. Yesterday I

joined a self-help class for fibromyalgia and later today I have an appt

with my regular doc. is due home Monday! We survived!!

sending love and positive thoughts,

[Guest guest]

Hi ,

major bummer for you! Hopefully the Tobra will work for Meagan and fight nails

and toes to give it for an extended period of time. You know, that you only have

to do a medline cross search for Pseudomonas AND Hoiby and you'll have plenty of

arguments for agressive treatment. I think state of the art in Denmark now is,

to begin with the combo of oral Cipro and inhaled Colistin (despite of the

preservatives) for at least three months and to alternate between Colistin and

Tobra thereafter to prevent resistance.

Have you asked, whether the pseudo is mucoid or not? Hope you get rid of that

bug soon and see an improvement in Meagan. It's heartwarming to see, how caring

Kailin is about her sister, despite of her own health problems.

My well-wishes go out to your family!

Bye-bye

Torsten