done with band...now TOT collar????

[Guest guest]

Hello all!

So, our little Emma is an official DOCband grad!!! It was wierd for

the first day or so, now I just LOVE having her fuzzy little head

back. 2 months of repo & 2 months of banding, and she's looking

absolutely wonderful.

The problem now is her darn tilt...it seemed to be under control,

but suddenly it's back with vengence. Our therapist is recommending

the TOT collar...after the DOC, i'm thinking it will be no

biggie...but can anyone tell me of their experiences with it? Is it

pretty common for tortbabies? This tilt kills me, I thought she was

doing so well...but now that her band is off, maybe I was having a

false sense of completion. How long does it take to feel really

good about the correction, or will I just feel like I need to

stretch her for the next 20 years? Tort is such a sneaky thing, it

makes me crazy.

Thank you! I posted a message on the tort group too, but I was

hoping maybe someone here has had a TOT experience? Or experience

with taping?

It's difficult, because everyone (hubby, family, friends) thinks she

now is perfect (and yes, of course she is) but the dumb tilt is just

so apparant to me, and in the way she compensates with her shoulders

for the tightness. It makes me crazy.

, mommy to Emma

tort/plagio/DOC band grad

Cleveland, OH

[Guest guest]

Congratulations on Emma's graduation!!!! I am not familiar with the TOT

collar. Please keep us posted on your decision.

Angie and Jenna(STAR grad)

done with band...now TOT collar????

>

>

> Hello all!

>

> So, our little Emma is an official DOCband grad!!! It was wierd for

> the first day or so, now I just LOVE having her fuzzy little head

> back. 2 months of repo & 2 months of banding, and she's looking

> absolutely wonderful.

>

> The problem now is her darn tilt...it seemed to be under control,

> but suddenly it's back with vengence. Our therapist is recommending

> the TOT collar...after the DOC, i'm thinking it will be no

> biggie...but can anyone tell me of their experiences with it? Is it

> pretty common for tortbabies? This tilt kills me, I thought she was

> doing so well...but now that her band is off, maybe I was having a

> false sense of completion. How long does it take to feel really

> good about the correction, or will I just feel like I need to

> stretch her for the next 20 years? Tort is such a sneaky thing, it

> makes me crazy.

>

> Thank you! I posted a message on the tort group too, but I was

> hoping maybe someone here has had a TOT experience? Or experience

> with taping?

>

> It's difficult, because everyone (hubby, family, friends) thinks she

> now is perfect (and yes, of course she is) but the dumb tilt is just

> so apparant to me, and in the way she compensates with her shoulders

> for the tightness. It makes me crazy.

>

> , mommy to Emma

> tort/plagio/DOC band grad

> Cleveland, OH

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Congrats ! GL with the tort.

Tish

Teagan 4/25/04

Plagio/Tort/DOC band 11/26/04

done with band...now TOT collar????

>

>

> Hello all!

>

> So, our little Emma is an official DOCband grad!!! It was wierd for

> the first day or so, now I just LOVE having her fuzzy little head

> back. 2 months of repo & 2 months of banding, and she's looking

> absolutely wonderful.

>

> The problem now is her darn tilt...it seemed to be under control,

> but suddenly it's back with vengence. Our therapist is recommending

> the TOT collar...after the DOC, i'm thinking it will be no

> biggie...but can anyone tell me of their experiences with it? Is it

> pretty common for tortbabies? This tilt kills me, I thought she was

> doing so well...but now that her band is off, maybe I was having a

> false sense of completion. How long does it take to feel really

> good about the correction, or will I just feel like I need to

> stretch her for the next 20 years? Tort is such a sneaky thing, it

> makes me crazy.

>

> Thank you! I posted a message on the tort group too, but I was

> hoping maybe someone here has had a TOT experience? Or experience

> with taping?

>

> It's difficult, because everyone (hubby, family, friends) thinks she

> now is perfect (and yes, of course she is) but the dumb tilt is just

> so apparant to me, and in the way she compensates with her shoulders

> for the tightness. It makes me crazy.

>

> , mommy to Emma

> tort/plagio/DOC band grad

> Cleveland, OH

>

>

>

>

>

>

> For more plagio info