Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 - Our pulm told us about every year and a half is appropriate for replacement. Then just think of it you get a free air pump for your kids toys! LOL! Kathy G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 >Torsten, It's the first time I hear of someone drying the tubing by letting >the compressor on for a while, seems a good idea.. >Anyone else is doing this ? I do! But only for about 5-10 minutes, as it seems pretty dry by then. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 >separately? We have 3 sets per kid, one for reg. nebs, one for Tobi, and >one >for Pulmozyme, but they wear out long before a year....... Do you have any tips for keeping all the parts together, as in not mixing them up with another set, etc.? I have tried using permanent marker, but it doesn't stay. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Daelynn, What bugs me is that the pari neb kits are supposed to be good for a year.....yet they only come with one tubing!!!!!! Do you buy the tubing separately? We have 3 sets per kid, one for reg. nebs, one for Tobi, and one for Pulmozyme, but they wear out long before a year....... Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 We also let the tubing dry out by running the machine 5-10 minutes after the treatments. Since is only on Tobi at the moment, we change out the tubing after each 28 on cycle. We were changing it out about once a month when he was doing more treatments too. Daelynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 VAL, If you ask your center who their PARI REP is , you can have your answes the same day. They can give you his number --It will be the co # and then his/hers voice mail------they should then call you right back ---same day)unless its late and then a morning return call. Hope this helps. If you still don't hear --Call me.1-. LOVE, GrandmMomBEV compressor Thank you all for your answers ! Torsten, It's the first time I hear of someone drying the tubing by letting the compressor on for a while, seems a good idea.. Anyone else is doing this ? In Switzerland, we use the Pari Master as well, would it be the Pari Jet in the USA ? I sent a mail to Pari more than one week ago, but never got any reply on that :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 How about fingernail polish.....It doesnt hurt our nails and is not absorbed into them either. We use that on ERINS.I have used it on many things as well. LOVE, GrandmomBEV Re: compressor >separately? We have 3 sets per kid, one for reg. nebs, one for Tobi, and >one >for Pulmozyme, but they wear out long before a year....... Do you have any tips for keeping all the parts together, as in not mixing them up with another set, etc.? I have tried using permanent marker, but it doesn't stay. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 Jen, I hate to admit this, but since I didn't have a mask and until recently the budget has been overly tight, I have been using a regular neb cup, it has worked and I plan on getting the Pari cup with mask soon. But when my mom passed away she has a ton (I mean at least 30 neb cup and tubing sets), I gave about 1/2 to a friend with a son who has asthma, and used the tubing for the rest. I do think you can buy them separately though. Daelynn (Grandma Bev, I finally registered with your pharmacy, how much would the mask for the pari neb cup be? and I do have a prescription for one, do you need one for medical supplies?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 I used nail polish - I still do on Pari cups - although it comes off eventually. COLOR CODE everything - Lucky Rosemary - 3 kids 10, 7 an 3.5 all with CF. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 That just reminded me of something else. They have electrical tape( & other kind) in colors. Even Bandaids...............They will stay on quite a long time ...yet are expensive to replace..Just my ole brain trying to work-hahah LOVE & HUGDS, GRANDMOMBEV Re: compressor I used nail polish - I still do on Pari cups - although it comes off eventually. COLOR CODE everything - Lucky Rosemary - 3 kids 10, 7 an 3.5 all with CF. *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
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