Re: Ultrasound wrong! Not CF - much milder metatarsus adductus

[Guest guest]

What a great 8000 message!!!!

I'm one of those silent members of this board. I read, but don't have

much time to reply, but I just want to let you know that I'm SO HAPPY

for you guys!!! God does WONDERS and I sure believe this is one of

them.

God bless your little bundle!!

Andreina and Simon Andres (unilateral club foot 10/04/00)

[Guest guest]

,

That is WONDERFUL news! So glad to hear that everything turned out to be ok

and that your new little one is here and healthy. Our second child was born

with bilateral clubfeet, but our first child's feet at birth were turned in

(not like clubfeet though) but noticable. We questioned them right away at

birth and they were able to stretch them easily to the regular possition and

said that it was something that would correct itself. Although her feet

still turned in quite a bit when she first started walking, they were right,

she is now four and her feet are completely straight. She was diagnosed with

a very mild case of metatarsus in each foot but she never recieved any

treatment for it and by the age of 3 you could'nt tell she ever had the

inturning. It was a little bit of a problem though when learning to walk,

she would trip quite a bit and it was noticable to us and others that she

looked " pigeon toed " and the more tired her feet got, the more they looked

turned in. All of this though she grew out of and she has absolutely no

problems now, even when this little energizer bunny has been on her feet all

day long.

Anyway, just wanted to fill you in on our " metatarsus " experience. Enjoy

your new little boy!

Holly and (feb. 11, 2000 bilateral, Michigan)

Ultrasound wrong! Not CF - much milder

metatarsus adductus

>Well it certainly has been an emotional rollercoaster of a pregnancy.

>It turns out that the perinatologist was wrong about Ian's feet and

>wrists. There is no arthrogryposis in his wrists and the problem with

>his feet is not club foot, but rather bilateral metatarsus adductus

>which is the fancy name for a positional abnormality.

>

>When we saw our local orthopedist last Thursday, when Ian was just 3

>days old, I burst into tears upon hearing his medical opinion. He

>explained why Ian's feet were not clubbed - - supple, possible to

>move the heel into proper position, etc. He recommended gentle

>manipulations at home to bring the feet into alignment, and another

>visit to re-check in 2 months. He also checked the hands and wrists,

>as well as the rest of his joints, and said that there was no

>arthrogryposis.

>

>Then we went to the pediatrician for our first check-up, and he

>shared the orthopedist's poing of view. By this time, we were elated -

> and it was not just a side-effect of new parenthood and sleep

>deprivation. (Side note: I delivered the baby at a hospital where my

>pediatrician does not have rights, so the baby was initially

>evaluated by a different pediatrician. The pediatrician in the

>hospital called his feet " mild bilateral talipes " in her written

>report.)

>

>Just to cover all the bases, when we got home from the expedition to

>see both doctors, I called Dr. Colburn. We had an appointment with

>him for the following week as well as plane tickets. Dr. Colburn

>spent a generous half an hour on the phone with me listening to what

>the orthopedist had told us and re-confirming that it sounded like

>the correct diagnosis and line of treatment. He also pointed out that

>if physical manipulations at home did not work after 2 months, it

>would still be possible to take stronger measures with casts. (Dr.

>Colburn also mentioned that he is about to publish a paper

>demonstrating that he has been able to duplicate success with the

>Ponseti method. He also said that the HMO in which he pratices,

>Kaiser Permanente, is going to give Dr. Colburn the " air time " to

>spread the word within the HMO about the Ponseti method.)

>

>We are relieved that our little bundle of joy only has a positional

>problem. Thanks to all of you for your support throughout this

>pregnancy.

>

>And for those of you who have been diagnosed in utero via ultrasound -

> - take heart - - the diagnosis can be WRONG!

>

> and Ian (born June 18, 2001)

>

>

>

>