Re: Munchausen Syndrome by Proxy

[Guest guest]

I agree with you that there are extremely evil people in this world who do

bizarre things.....but, in my opinions, those things are CRIMINAL child

abuse, not a diagnosis for illness in a child. And other medical disorders

should be ruled out first, not the other way around. There are those docs

who assume MSBP first, then look for CF second as a reason for a child to be

FTT. (for exapmle) In the case of the doctor/ Mom at Vandy--Vandy FAILED TO

MAKE AN ACCURATE DIAGNOSIS because their first assumption was to ASSUME child

abuse. (child had a fatal liver disorder/genetic disorder later diagnosed at

Eggleston.) In the case of the CF families accused, the docs were using this

loose term (MSBP) to argue that the parents wish to " over treat " the child

was obviously MSBP. The case of Starr and Amber on cystic-l that everyone

followed is a good example. And Amber has CF, so she does have one

identifiable disorder....and that did not preclude her from the MSBP frenzy,

which does appear to have taken on more of a witch hunt appearance. Its like

this....just because there is one or two criminals out there doing it, does

not make it so with the high percentage of cases being reported....

anyway, in her case, her family had to suffer from having an open

investigation from child protective services over a period of months.....and

all that goes along with that, just because of an egomaniac doctor who didn't

like Starr, basically.... Doctors don't like to be wrong.....in the end,

Starr was right, and her new doc discovered that she had a major fungal

infection in her port causing all the problems, and once that cleared up.

Amber's health has been better than ever (under the watchful eye of the new

doc.....) So having a diagnosis of CF does not prevent accusations, nor

does it keep them from taking your kids away.

I think its almost too bad that others are fearful to come forward. In chat

rooms, or IM, it is shocking how many docs have made similar accusations

to/about people on this list.

There was another well publicized case where a mom was imprisoned because

they said she was putting amonia in her kids bottles. One child died. Other

children removed.....but later on, the second child got very ill...with

amonia poisoining while living in a foster home (mom was in priosn, so

couldn't ahve done it, right?) Turns out, kids both had rare genetic

disorder that caused stuff to metabolize into amonia in their little

systems..... so this poor mom was in prison, separated from her living

child, grieving for her dead child she was accused of killing....for like 7

years before it was all cleared up. So, I say again, I think that medical

people need to be pretty damn sure before they make allegations that they

really are not trained to diagnose (no forensics training, etc.)

Anyway,. I will get off my soapbox now.....just one more thing to add, how

come DCS will give little kids back to a crack addict knowing she is still

using? but wage an all out war against a family dealing with kids with

chronic illness....who have been proven to do nothing? Just a gripe about

the damage the " system " did to my foster kiddos.....

Take care, and I guess we do have to agree to disagree on this one...

Jen

[Guest guest]

I am ready to be flamed should any of you disagree with me on this, but

please hear me out.

I know that this probably strikes fear into each of our hearts - especially

those of us who have endured hospital stays with our children. Please

understand that our kids have one source of all of their problems - CF.

The kids that suffer at the hands of a sick individual seeking

attention...for whatever reasons...are subjected to various illnesses. I

read once that a mother had put Drano into her baby's bottle of milk - not

enough to kill him - but enough to make him need medical attention. She

did this on more than one occasion and eventually caused permanent damage

to this child's digestive system. These people are able to do this and get

by with it because - unless it is a visable sign of abuse (bruises, broken

bones)or the child is a repeat customer - there is nothing to back up an

investigation of abuse.

Many of these *parents* go from hospital to hospital providing no medical

background for the child - therefore the medical staff assumes they are

looking a clean slate.

had to be hospitalized 3 times within a 6 months time span.

Luckily, besides the fact that we were there, the stay was not that bad.

The staff in general was wonderful - but my purpose was there to comfort my

child - not to have attention slathered on me. Some of these parents (the

majority are mothers) are craving the attention so badly they go to the

extreme - they endanger the health and life of their child. A mom takes

her baby to the ER because he stopped breathing (with the help of a pillow)

but amazingly, once he is in the care of the staff he is fine - until they

leave the room, then another episode happens. I feel I am a very trusting

person - but come on -

I know we all get angry when we think (or know) that someone is innocent of

a crime against their child - but keep in mind - how often do we get even

more angry when something is overlooked?!? When my child is taken to the

hospital or the doctor, not only is she *my* responsibility - she becomes

*theirs*. Just as the police are there to 'Serve and Protect', I feel that

a medical staff at a hospital owes my child the same.

Please check out the following website for one situation.

http://more.abcnews.go.com/sections/us/munchausen1119_ptl/index.html

Totally off of the above subject - but running along the same lines. I

tuned into The Learning Channel last night and stayed there just a few

minutes. The subject was 'Maternity Ward'.. I thought, great...babies!

The first segment showed a woman laying strapped in a hosp bed. She was

about 6 months along. She was HIV +. She had tuberculosis. She was

ripped on heroine.

Our children are so blessed. Yes, my child gets on my nerves at times, but

I love her with every inch of my soul.

I had mixed feeling towards this *woman*, but what I felt for her unborn

baby hit me where I live.

Be thankful for today.

[Guest guest]

,

This is not a flame. I can realize that sometimes it really does happen. And

I agree wholeheartedly that it needs to be stopped if it is happening. My

problem is with the many, many times the accusation gets tossed out without

any investigation first. The doctors on the show didn't have any cameras or

any evidence to go on. I personally think it was just a personality

conflict. And when that happens not only does the mother suffer but the

child does too! And if there are more children at home they suffer too! All

because the doctors and/or nurses didn't like the mother. Or didn't like how

the mother took control of her child's healthcare. I don't think an

accusation should EVER be made without evidence!

Just my opinion, take it for what its worth....

Ronda

> Re: Munchausen Syndrome by Proxy

>

>

>

>

> I am ready to be flamed should any of you disagree with me on this, but

> please hear me out.

>

> I know that this probably strikes fear into each of our hearts -

> especially

> those of us who have endured hospital stays with our children. Please

> understand that our kids have one source of all of their problems - CF.

> The kids that suffer at the hands of a sick individual seeking

> attention...for whatever reasons...are subjected to various illnesses. I

> read once that a mother had put Drano into her baby's bottle of milk - not

> enough to kill him - but enough to make him need medical attention. She

> did this on more than one occasion and eventually caused permanent damage

> to this child's digestive system. These people are able to do

> this and get

> by with it because - unless it is a visable sign of abuse (bruises, broken

> bones)or the child is a repeat customer - there is nothing to back up an

> investigation of abuse.

> Many of these *parents* go from hospital to hospital providing no medical

> background for the child - therefore the medical staff assumes they are

> looking a clean slate.

>

> had to be hospitalized 3 times within a 6 months time span.

> Luckily, besides the fact that we were there, the stay was not that bad.

> The staff in general was wonderful - but my purpose was there to

> comfort my

> child - not to have attention slathered on me. Some of these

> parents (the

> majority are mothers) are craving the attention so badly they go to the

> extreme - they endanger the health and life of their child. A mom takes

> her baby to the ER because he stopped breathing (with the help of

> a pillow)

> but amazingly, once he is in the care of the staff he is fine - until they

> leave the room, then another episode happens. I feel I am a very trusting

> person - but come on -

>

> I know we all get angry when we think (or know) that someone is

> innocent of

> a crime against their child - but keep in mind - how often do we get even

> more angry when something is overlooked?!? When my child is taken to the

> hospital or the doctor, not only is she *my* responsibility - she becomes

> *theirs*. Just as the police are there to 'Serve and Protect', I

> feel that

> a medical staff at a hospital owes my child the same.

>

> Please check out the following website for one situation.

>

> http://more.abcnews.go.com/sections/us/munchausen1119_ptl/index.html

>

>

> Totally off of the above subject - but running along the same lines. I

> tuned into The Learning Channel last night and stayed there just a few

> minutes. The subject was 'Maternity Ward'.. I thought, great...babies!

> The first segment showed a woman laying strapped in a hosp bed. She was

> about 6 months along. She was HIV +. She had tuberculosis. She was

> ripped on heroine.

>

> Our children are so blessed. Yes, my child gets on my nerves at

> times, but

> I love her with every inch of my soul.

> I had mixed feeling towards this *woman*, but what I felt for her unborn

> baby hit me where I live.

>

> Be thankful for today.

>

>

>

>

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

>

[Guest guest]

Ronda,

I totally agree with you. nuff said

" Ronda Charette " on 08/14/2000 12:01:33 PM

Please respond to cfparentsegroups

To: cfparentsegroups

cc: (bcc: -Holmes/Louisville/Humana)

Subject: RE: Munchausen Syndrome by Proxy

,

This is not a flame. I can realize that sometimes it really does happen.

And

I agree wholeheartedly that it needs to be stopped if it is happening. My

problem is with the many, many times the accusation gets tossed out without

any investigation first. The doctors on the show didn't have any cameras or

any evidence to go on. I personally think it was just a personality

conflict. And when that happens not only does the mother suffer but the

child does too! And if there are more children at home they suffer too! All

because the doctors and/or nurses didn't like the mother. Or didn't like

how

the mother took control of her child's healthcare. I don't think an

accusation should EVER be made without evidence!

Just my opinion, take it for what its worth....

Ronda

> Re: Munchausen Syndrome by Proxy

>

>

>

>

> I am ready to be flamed should any of you disagree with me on this, but

> please hear me out.

>

> I know that this probably strikes fear into each of our hearts -

> especially

> those of us who have endured hospital stays with our children. Please

> understand that our kids have one source of all of their problems - CF.

> The kids that suffer at the hands of a sick individual seeking

> attention...for whatever reasons...are subjected to various illnesses.

I

> read once that a mother had put Drano into her baby's bottle of milk -

not

> enough to kill him - but enough to make him need medical attention. She

> did this on more than one occasion and eventually caused permanent damage

> to this child's digestive system. These people are able to do

> this and get

> by with it because - unless it is a visable sign of abuse (bruises,

broken

> bones)or the child is a repeat customer - there is nothing to back up an

> investigation of abuse.

> Many of these *parents* go from hospital to hospital providing no medical

> background for the child - therefore the medical staff assumes they are

> looking a clean slate.

>

> had to be hospitalized 3 times within a 6 months time span.

> Luckily, besides the fact that we were there, the stay was not that bad.

> The staff in general was wonderful - but my purpose was there to

> comfort my

> child - not to have attention slathered on me. Some of these

> parents (the

> majority are mothers) are craving the attention so badly they go to the

> extreme - they endanger the health and life of their child. A mom takes

> her baby to the ER because he stopped breathing (with the help of

> a pillow)

> but amazingly, once he is in the care of the staff he is fine - until

they

> leave the room, then another episode happens. I feel I am a very

trusting

> person - but come on -

>

> I know we all get angry when we think (or know) that someone is

> innocent of

> a crime against their child - but keep in mind - how often do we get even

> more angry when something is overlooked?!? When my child is taken to the

> hospital or the doctor, not only is she *my* responsibility - she becomes

> *theirs*. Just as the police are there to 'Serve and Protect', I

> feel that

> a medical staff at a hospital owes my child the same.

>

> Please check out the following website for one situation.

>

> http://more.abcnews.go.com/sections/us/munchausen1119_ptl/index.html

>

>

> Totally off of the above subject - but running along the same lines. I

> tuned into The Learning Channel last night and stayed there just a few

> minutes. The subject was 'Maternity Ward'.. I thought, great...babies!

> The first segment showed a woman laying strapped in a hosp bed. She was

> about 6 months along. She was HIV +. She had tuberculosis. She was

> ripped on heroine.

>

> Our children are so blessed. Yes, my child gets on my nerves at

> times, but

> I love her with every inch of my soul.

> I had mixed feeling towards this *woman*, but what I felt for her unborn

> baby hit me where I live.

>

> Be thankful for today.

>

>

>

>

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

>

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

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_________________________________________________

[Guest guest]

,

I TOTALLY agree with you. It is beyond comprehension that someone would

make their baby sick on purpose. When Bradyn was in the NICU the baby next

to him was born addicted to heroin or something - otherwise she would have

been perfect. It was sickening. BUT it is also scary that many of us have

the same characteristics that fit the munchausens by proxy syndrome.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

>,

>And I totally agree with YOU!

>I guess what I wanted to do was to be a devil's advocate and give another

>point of view. I didn't mean to step on any toes.

>

I don't think you did.

:-)

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

,

And I totally agree with YOU!

I guess what I wanted to do was to be a devil's advocate and give another

point of view. I didn't mean to step on any toes.

" " on 08/15/2000 01:58:35 AM

Please respond to cfparentsegroups

To: cfparentsegroups

cc: (bcc: -Holmes/Louisville/Humana)

Subject: Re: Munchausen Syndrome by Proxy

,

I TOTALLY agree with you. It is beyond comprehension that someone would

make their baby sick on purpose. When Bradyn was in the NICU the baby next

to him was born addicted to heroin or something - otherwise she would have

been perfect. It was sickening. BUT it is also scary that many of us have

the same characteristics that fit the munchausens by proxy syndrome.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

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