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Re: neurosurgeon question

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We saw Dr Stilnicki in Margate south Florida and found him from the

Cranial Technologies web site. He dident push me into it, he just

pointed out how to look down and see the Plagio and hold my hands on

her face and see how symetrical she was. After that I was happy to go

and get casted. Until that visit I dident understand why my

Peadtrician was mentioning the Plagio with every visit as she went

for check ups.

Lorraine.

>

> Are neurosurgeon usually against the band or for it?

> Just curious, I am taking my daughter to a neurosurgeon next month.

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It really just depends... seems like, so far as a " craniofacial team "

goes (usally a neuro + plastic surgeon), the plastic surgeon is a

little more sympathetic to " cosmetic " issues and often has a better

bedside manner. That isn't to say that a neuro won't band, they can

just have a more challenging communication style. And that is a BIG

stereotype-- I am sure there are plenty of neurosurgeons with top-

drawer bedside manners.

By the time you get to a specialist, they are usually pretty educated

about plagio. It is the pediatricians who keep saying " it will round

out. " Seems like with most specialists, if your child is " borderline "

they will ask you what you want to do. If you are even CONSIDERING

banding, get a script and letter of mediacl necessity-- you don't

have to use it, but you'll have one ready to go if you choose to try

helmet therapy.

>

> Are neurosurgeon usually against the band or for it?

> Just curious, I am taking my daughter to a neurosurgeon next month.

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It depends on the neurosurgeon. ;) I know that doesn't help you but

it's the truth.

mom to na

>

> Are neurosurgeon usually against the band or for it?

> Just curious, I am taking my daughter to a neurosurgeon next month.

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Every one told me to see a neurosurgeon, but we got our referal from

a Neurologist (who we saw because of the hypotonia). It realy

depends on the doctor. From what I was told the Rx can come from any

doctor. It just depends on what that doctors views are. I think we

got ours from the Neuro because he said he sees lots of kids with

the problem and he dosn't know alot about the bands. I think we are

the guinipig for him. If it works maybe he will refer more kids to

CT. You can always call ahead of time to the doctor you are going to

see and ask him what he thinks of the band. It's better then wasing

time seeing someone who won't refer. Hope that helps a little. ^_^

mom to , CA

-ONH

-Central Hypotonia (soon to start PT & OT)

-Torticollis (mostly resolved)

-Brachy/Plagio (soon to be DOCbanded)

>

> Are neurosurgeon usually against the band or for it?

> Just curious, I am taking my daughter to a neurosurgeon next month.

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It really depends on the doctor. Who will you be seeing? Maybe

someone here has seen the same one and can give you an idea of their

experience. In my case, the neuro we saw was for the band in severe

cases like my daughters, but when it came time for her to need a

second band after outgrowing her first in 10 weeks(she was still

considered moderate at that point), he wouldn't write us the

prescription. We got it from our ped instead though. Good luck.

, mom to Hannah, DOCgrad 7/29

Cape Cod, Ma

>

> Are neurosurgeon usually against the band or for it?

> Just curious, I am taking my daughter to a neurosurgeon next month.

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