Guest guest Posted September 6, 1999 Report Share Posted September 6, 1999 In a message dated 9/5/99 10:32:33 PM Eastern Daylight Time, nosvida@... writes: << Nice to meet you all and I look forward to learning more from you all. Callan >> Hello and welcome to the list Callan! Shanno Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 1999 Report Share Posted September 6, 1999 WELLCOME CALLEN! this was my first week also though I am still in moderate on the test strip!!but lost 7 bs so far sonot worried about the ketosis yet!!!Temptations are hard to beat...I had made a cake and also macaroni salad for a cook out tomorrow and I won't have any,,,,taking my " soft rolls " I made today for my burger tomorrow!!!LOL well good luck yu are at the right place for support this list is great and I am happy to behere and hope you are also..good luck tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Hi, I have been an " on again, " " off again " Atkins adict for over 20 years, since his first book came out. I have lost.....regained when I fell back....etc, etc.. I need to focus, since I know it is the only Diet and lifestyle that works for me...so here I go.....getting serious, buckling down.....behaving.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Welcome ---- I think this group really helps me...good luck... Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 , Welcome to the list!! Good Luck!! Hugs, Penny 173/162/130 Visit my family at: <A HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " > Home Page</A> <A HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " >http://www.ge ocities.com/heartland/pines/6116/wilson.html</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Welcome we are here for support when you need us. Love the begining of your addy it fits me to shopncook add a clean to that to and that is me days lol --- ShopnCook@... wrote: > From: ShopnCook@... > > Hi, I have been an " on again, " " off again " Atkins > adict for over 20 years, > since his first book came out. I have > lost.....regained when I fell > back....etc, etc.. > I need to focus, since I know it is the only Diet > and lifestyle that works > for me...so here I go.....getting serious, buckling > down.....behaving.... > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 1999 Report Share Posted September 9, 1999 Hi , i'm a chef too...sometimes it's great (think leftover filet mignon) sometimes it sucks (think leftover lasagne) but i try to make a stockpile of stuff I can eat in our walk in, and no one touches it...except for my G(%#)#%@(*DAMM PORK RINDS!!!! yes, they made FUN of me when i lugged my case of pork rinds in there, but soon they were coveting my porkrinds....secretly sneaking them at first then BLATANTLY STEALING THEM....those weasles...trouble is, they are lower in fat than potato chips, lower in salt, lower in calories, and higher in protein, so no matter how anyone eats, they fit right in..... i'm gonna start hiding them.... good luck! Celia ><< Hi, I have been an " on again, " " off again " Atkins adict for over 20 >years, >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 , Welcome to the list!! Hugs, Penny 173/160/130 Visit my family at: <A HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " > Home Page</A> <A HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " >http://www.ge ocities.com/heartland/pines/6116/wilson.html</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 Hi, I'm Michele. I've been on this w-o-l since June 23. As of last week, I've lost 30 pounds. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 Michele, Thats Great!! Welcome to the list!! Hugs, Penny 173/160/130 Visit my family at: <A HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " > Home Page</A> <A HREF= " http://www.geocities.com/heartland/pines/6116/wilson.html " >http://www.ge ocities.com/heartland/pines/6116/wilson.html</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 In a message dated 8/20/2000 7:23:10 PM Pacific Daylight Time, daelwill@... writes: > Why is only on Tobi for two weeks at a time? has been on the 28 > on/off for over a year now, and the sinus stuff has been kept under control > as well. Our clinic (Packard Children's) does do the 28 on/off protocol for some people but not for us. I'm thinking it might be time. Especially since Ricky's a lot more neb compliant ever since we got the Vest in June. I'm also wondering if he might benefit from Pulmozyme... Which would probably bring our grand total nebbing time to about 45-60 minutes. Becky Whicker beckerbuns@... or letscurecf@... mom of Ricky (11/26/95) with CF and Andy (3/18/98) no CF Shop the web and raise money for CFRI! http://www.geocities.com/beckerbuns/store.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Becky, I would go for the tobi and pulmozyme....I think it has alot to do with how healthy is right now, and can't imagine how sick Mallory would be without those two things. Our ENT told us that he thinks Mallory would be on ivs constantly if it were not for Tobi. Take care, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Becky, Why is only on Tobi for two weeks at a time? has been on the 28 on/off for over a year now, and the sinus stuff has been kept under control as well. Just a thought, Daelynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 I think I would push for the 28 on/off now, especially since he doesn't seem to be responding right now. was on Pulmozyme as well, but recently able to stop since he hardly ever coughs and when he is doing pulmozyme he doesn't cough either. So we will put it on the back burner until it seems like he needs it. I truly believe that the Tobi has helped keep his sinuses better, he uses a mask. Good luck, Daelynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Hi newbies I have been gone for the past two weeks and have been on " no mail " , but I do know we have had several new people join. Welcome to all of you. I am a 60 year old female with a confirmed mitochondrial disorder. I live in Michigan. My sister ( on the list), her daughter, one of my sons and my mother have diagnosed mito. My other son and two brothers are thought to have it too. I am still teaching special needs students. I work with only 1-3 students at a time and do the paperwork for about 100 special education students in the school district I am assigned to. I am looking forward to retirement in a couple of years. I use a scooter except inside the house where I can bounce off the walls - hopefully :-). My symptoms include muscle weakness and cramping, myoclonus, neuropathy, spleep apnea, asthma, some heart involvement and kidney wasting of magnesium, and phosphorus. I think that is about it in a nutshell. laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Laurie, if you don't mind can you explain what Kidney wasting is? Also you mention " magnesium " does your blood work show that you are low on " magn " ? The reason I am asking I have kidney failure, they are small, and one of the symptoms is it shows I am low on magnesium, so I take a tablet for it every morning. Now I thought it was because I take fluid pills for my legs and feet swelling. I have not had this long, and there is so much I don't know. intro > Hi newbies > > I have been gone for the past two weeks and have been on " no mail " , but I do > know we have had several new people join. Welcome to all of you. > > I am a 60 year old female with a confirmed mitochondrial disorder. I live in > Michigan. My sister ( on the list), her daughter, one of my sons and > my mother have diagnosed mito. My other son and two brothers are thought to > have it too. > > I am still teaching special needs students. I work with only 1-3 students at > a time and do the paperwork for about 100 special education students in the > school district I am assigned to. I am looking forward to retirement in a > couple of years. > > I use a scooter except inside the house where I can bounce off the walls - > hopefully :-). My symptoms include muscle weakness and cramping, myoclonus, > neuropathy, spleep apnea, asthma, some heart involvement and kidney wasting > of magnesium, and phosphorus. > > I think that is about it in a nutshell. > > laurie > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Quote Link to comment Share on other sites More sharing options...
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