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Re: NF on Telivision

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Sorry Marnie,ive only been here for a month.Asked BC NF if there were any

other people with NF2.My Apologys Marnie

NF on Telivision

> Pam

> You said...................

> When your in a province where so far he's the only one with NF2 makes it

> even worse.

>

>

> I may be wrong here but I remember you posting you had moved to Edmonton

to

> be near your son's Doc's. I also live in ALBERTA, as well as and

> Dee-Ann. I also have met a few other ladies that have it!!!! So sorry

> your son is NOT the only one with NF2 in the province.

> Marnie

>

>

>

>

>

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Like I said,I HAVE ONLY BEEN HERE A MONTH.!!!!!!!!!!!! MY MISTAKE

NF on Telivision

> Pam

> You said...................

> When your in a province where so far he's the only one with NF2 makes it

> even worse.

>

>

> I may be wrong here but I remember you posting you had moved to Edmonton

to

> be near your son's Doc's. I also live in ALBERTA, as well as and

> Dee-Ann. I also have met a few other ladies that have it!!!! So sorry

> your son is NOT the only one with NF2 in the province.

> Marnie

>

>

>

>

>

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from the land down under, where woman glow, and men thunder, da de da

da da.............

Hey , have you been talking with Marcus? More "Men at Work" huh???

June

from Maine, the land of the lobster and shhhhhhh... Bush :o( BOTH OF THEM!!!! AHHHHHHHH

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Marnie,

I think that you have enough to have a weekend get-together in your

province - so I can't come - though I would love to. He he he he just to

give and bad time.......

Be Bad,

....

NF on Telivision

>

> Pam

> You said...................

> When your in a province where so far he's the only one with NF2 makes it

> even worse.

>

>

> I may be wrong here but I remember you posting you had moved to Edmonton

to

> be near your son's Doc's. I also live in ALBERTA, as well as and

> Dee-Ann. I also have met a few other ladies that have it!!!! So sorry

> your son is NOT the only one with NF2 in the province.

> Marnie

>

>

>

>

>

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Don't be too sensitive - we all like a back rub.

Be Bad,

from the land down under, where woman glow, and men thunder, da de da

da da.............

NF on Telivision

>

>

> > Pam

> > You said...................

> > When your in a province where so far he's the only one with NF2 makes it

> > even worse.

> >

> >

> > I may be wrong here but I remember you posting you had moved to Edmonton

> to

> > be near your son's Doc's. I also live in ALBERTA, as well as and

> > Dee-Ann. I also have met a few other ladies that have it!!!! So sorry

> > your son is NOT the only one with NF2 in the province.

> > Marnie

> >

> >

> >

> >

> >

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Re: NF on Telivision

from the land down under, where woman glow, and men thunder, da de dada da.............

_____________________________________________________

Are you sure its thunder.Maybe you all just got gas.

Jimmy

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Hi Marnie,Pam here.Was wondering if there is a support group here in

Alberta.

NF on Telivision

> Bri

> Sheesh and we would love to have you too!!

> That means no " battery acid " as well.

> Hugs

> Marnie

>

>

>

>

>

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Marnie,You interested in starting a support group if i can find out if there

are more people in AB???? Lemme know

NF on Telivision

> Pam

> Ask your Neuro when I was diagnosed I phoned a lady in Edmonton but she

had

> just passed away. That was in 1991 and I don't know of any other

> group. That is why I am one the crew. I had very good intentions of

> starting one till I found out how rare this disease is.

> Sorry but Brain Tumor support group were blown away with the info I gave

> them. Sooooooo no help there.

> Marnie

>

>

>

>

>

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How far up in Alberta do you live ? If you don't find a group in Alberta,

One of the Crewbees here live in Duluth Minnesota and I live in

Minneapolis., we could all Get Tougher sometime. And I'm planning on

going to the NF2 Con in Las Vegas next march. I would love to go to the Oz

convention, but I don't have the bux to make it. hehehe

Hi Marnie,Pam here.Was wondering if there is a support group here in

Alberta.

NF on Telivision

> Bri

> Sheesh and we would love to have you too!!

> That means no " battery acid " as well.

> Hugs

> Marnie

>

>

>

>

>

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Subject: NF on Telivision

Sheryn Says:

Oh...and hey, lets not forget Philip and Susie Friesen a far ways north of

Edmonton. I believe it was that mentioned that he had been told by a

Dr. in Edmonton that there are some NF2ers in Red Deer as well.

> Pam

> You said...................

> When your in a province where so far he's the only one with NF2 makes it

> even worse.

>

>

> I may be wrong here but I remember you posting you had moved to Edmonton

to

> be near your son's Doc's. I also live in ALBERTA, as well as and

> Dee-Ann. I also have met a few other ladies that have it!!!! So sorry

> your son is NOT the only one with NF2 in the province.

> Marnie

>

>

>

>

>

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Ho KHJ,

I am appalled at the suggestion that we blow gas ------- All the OZ males are appalled that you - the penicil of decorum would even suggest it - by saying such a terrible thing..

Just as well you can't hurt my feelings he he he he he he he he .

Glad to see you back on deck and churning out your KHJ special humour.....

- Who comes from the land down under, where woman glow, and men thunder and wishes that you could make it here next year da da da de da...

Re: NF on Telivision

from the land down under, where woman glow, and men thunder, da de dada da.............

_____________________________________________________

Are you sure its thunder.Maybe you all just got gas.

Jimmy

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"Battery Acid" Marnie I thought that yooooouuu had some. Oh well - when you get down here I'll bring you some Hoochie Cooch from the "Still" - very pooooowwwwerfuuuuull. Keep you warm (unconscious) in the winter.

Bri......from the land down under, where woman WILL glow, and men WILL thunder as we have a goooooood time..

NF on Telivision

> Bri> Sheesh and we would love to have you too!!> That means no "battery acid" as well.> Hugs> Marnie> > > > >

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Then all you Canadians start one - not formal - but as you find each other

just add them to the list. You will be surprised how quick the word gets

out.

Bri...... Pam did you get my stuff.

NF on Telivision

> Pam

> Ask your Neuro when I was diagnosed I phoned a lady in Edmonton but she

had

> just passed away. That was in 1991 and I don't know of any other

> group. That is why I am one the crew. I had very good intentions of

> starting one till I found out how rare this disease is.

> Sorry but Brain Tumor support group were blown away with the info I gave

> them. Sooooooo no help there.

> Marnie

>

>

>

>

>

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