Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Thanks ... I am logged on DALnet most of the time, but usually I'm asleep so I might not actually be there. But, you can try to send me a message by using the command /msg and I'll answer if I'm there and awake. I am glad you liked , he is really nice, but also a very good teaser, just like my brothers. hehe. Love, Johanna > Johanna, > > I just chatted with your friend in the chatroom, what a wonderful > person! I just wanted to check in with you and see if I can help you at > all. I am a great person to vent with, and we could schedule a time in the > chatroom for you if that'd help. Please let me know what I can do. > > #1 > > PS...chin up girl! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Hi Johanna So glad that you are back, Love your spunk, you are a tough lady! Love and hugs Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 <<< How are things over there right now for you and > your family?> fine...... we are dragging teh masks with us everywhere we go because teh alert state here is not over yet. the kids complain about it now a lot..... but I rather carry these boxes al day and not use it, then not carry it and find ouselves in a terrible situation....... Thanks, Fania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Johanna of course, you are talking to a person who has never been out of a 50 mile radius of where she was born LOL!!!!!!! We are really considering moving to Florida. Although I like NJ - no hurricanes, no tornados, no alligators, no snakes to speak of - like Rattlesnakes in the garage - things like that, no flooding, no tarantulas, no extreme heat - like AZ or extreme cold - like ND - there are other things. Like too much air pollution and chemical plants and high car insurance and high property taxes. The other big thing is - we already have a house in Florida that we rent out and it is in a very nice area. Pensacola, home of the white beaches and blue/aqua water. My dh checked out the job situation and it really isn't going to be a problem. The problem is . . . . . I have never been out of a 50 mile radius of where I was born. hahaha - so what to do?? what to do?? I think - I'll go for it. If I don't like it, I can always move back - right? right. (easier said than done, but you only live once) So - good luck with the move and the school - if it comes through. Talk to ya' Dawn Thanks, Dawn...also for your stim input. I will try that. I know what you are talking about with the move....and I totally agree, but my natural reaction is to whine first LOL, and then I adjust. Change is not great for me and it takes me time to get used to it, then I'm fine From what I have seen so far searching the net, that area seems to have a lot of support systems so it could be just what my ds needs. I'll keep ya posted:) Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 In a message dated 7/21/2003 12:16:43 PM Eastern Daylight Time, dayton@... writes: > Although I like NJ - no hurricanes, no tornados, no alligators, > no snakes to speak of - like Rattlesnakes in the garage - things > like that, no flooding, I beg to differ! Ok I live in a flood zone where it took 3 weeks for the water to recede in our basement. It took a long time for us to recover from Hurricane Floyd. Also there are a whole lot of rattlesnakes in NJ. I ran into one camping and the ranger told us we couldn't kill him but he could kill us. They are endangered species and are coming back in NJ. LOL! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 thanks, Johanna! he is right, though, I am really the one who always stop him / well, otherwise he would continue doing whatever he is doing like in perpetuom mobile...... it's like he HAS to do the action all the way to its completion or else... but the gameboy is never completed! f Re: ( )Fania/ re RAGE In a message dated 7/30/2003 2:05:15 PM Pacific Daylight Time, uplift@... writes: > go in and tell him to turn off the light, he whines; " you always STOP me > from doing things!!! " . > oh, well! > F > Fania, Hats off to you for handling the whole situation with M. I think you did a great exemplary job! This line made me smile, however, as my nt 17 yr old says something similar.... " you always hold me back " we have LOTS of discussions about this and if she can leave with one thing it would be taking responsibility for her actions. I know I am taking what was said and going off the subject, but I just wanted to tell you I enjoyed hearing it. Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Johanna GREAT NEWS!!!!! one step at a time Mom, one step at a time ) *** way to go Joe!!!!!!!!*** Joe being stiff as a board reminded me of something funny We have a one word command for them to stop in their tracks immediately ** FREEZE** it used to be (Freeze like a statue) but we worked it down to just freeze and it really works out well. You never know when you might need it - car coming - poo poo that you don't want them to step in *hahaha* but it does come in handy - for both kids. Take care Dawn Hi everyone, I just wanted to report that Joe is starting to become aware of his stimming behavior and I'm very excited. He is 4+ but up until the other day, he seemed to be in a fog while stimming. When he starts the stimming, (self stimulatory behavior) I just state what he is doing like " you are feeling jump " or that his hands are flapping, and even though it hasn't lessened its a start. I think once we find out if we are moving (I love being up in the air ~ LOL) I ll get a private OT and see if we can desensitize him with the movement stuff. Most of the stims result from moving objects or things. The other day I brought it up that the electric train was making his arms wiggle and the next time he put it down he said " look mom, I'm not wiggling " but I can tell you he was stiff as a board the whole 20 seconds ...but like I said its a start and I'm encouraged! Johanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Are you guys feeling this too? ***********absolutely!!!!!! I love just kicking back and not worrying about school and all the hassles that go with it. I casually mentioned that he was going to be 5 in 3 months and I was just saying it because it seemed to be here so quickly. Well, he apparently didn t like the idea at all and started yelling, " no, he didn't want to be 5! " . And he wouldn't give me a reason when I asked. I just told him I thought it would be fun to be 5 but the meltdown continues. I really never saw it coming. Argh. **********I know what you mean woman!!! sometimes they go off on stuff that you never would have thought would rock their boat and the next thing you know - your knee deep in it. Hang in there - I know it's frustrating!! The interesting thing is in 3 weeks a new class starts and we all know what that means (for us its 3 weeks of hard days and then it gets a little better). Dawn, send me a funny story I'm in big need of them!!! Johanna, slowly going nuts. *******ROFLOL!!!!!!!!!!!!!!!! such pressure - such pressure - hmmm let me think ok - I will get you one by tomorrow. ) Take care Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Hi Johanna I don't have anything to add, just a hug (((Johanna))) and a " hang in there " Dawn We just got some news however that will " stir the pot " a little.....our move date was changed and it appears we have 4-5 weeks. Now, I'm thinking Joe will just be starting to settle down in his current classroom, my 17 yr old will be getting the hang of getting up at the crack of dawn and then we move.... oh, boy. I think I liked the other plan better! Joe had his first day of school and I thought he did great til this morning when every little thing upset him to the point of melting....it just went on and on....this afternoon, he was more withdrawn, probably tired too. I just wish it didn't have to be so hard for him. Thanks for the suggestion of pictures to help him...I remember that now:) Johanna trying to stay afloat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 <<<<<<this is just the beginning. Soon you could be Fania renown speaker going on a US tour >>>> ha ha ha.. I will make sure to visit teh cities where teh list members are!!! :-) F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 ha ha ha.. I will make sure to visit teh cities where teh list members are!!! :-) F> Make sure you get Ohio on that list... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 > ha ha ha.. I will make sure to visit teh cities where teh list members > are!!! :-) > F> Wouldn't that be lovely? Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 <<<<<<He can also put together anything even without a manual which in my book is very impressive.>> up to this point, I thought you were describing my dh...... now I am sure it is yours, not mine .. mine will spoil everything with manual or without...... lol F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 Johanna, thank you F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 Johanna, I'm sorry I'm not in Texas, I'm in Virginia. I was speaking about the transplant workup and used the abbreviation TX. Sorry if I was confusing. I've been running a fever and have a kidney infection, kidney stone and gallstone so I'm not making a lot of sense at time. Today I feel much better though. Glad to be back and I missed you guys a lot. I look forward to talking to everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Hi Johanna, I am actually located on the Iron Range, and we got the CranioCap thru Gillette's extension site in Duluth. Travel time is 2 hours round trip from up here. Thanks for your opinion on a 2nd band also. I appreciate it. Silent reflux is just a mild version of reflux. Jaden seemed to be " chewing cud " at times, swallowing loudly, sometimes arched his back during feedings, and in the beginning for the first 3 or 4 months could not lay him down w/o him " leaking " his formula back out of his mouth, even during diaper changes. He never once thru up or had projectile vomit as in the classic case of reflux. He also would cough ever so often before or after " chewing " and swallowing. I had him on Zantac for a while, and altho it didn't stop his spit up, I know it reduced the acidity in his throat and it helped prevent esophagial damage. I heard from lots of parents that Prevacid has worked wonders for their babies. Hope that helps answer your question. Post again should you have more. Amy, mommy to Jaden 11 mo's MN CranioCap grad From: " johanna Chamberlin " <tatismom20@m...> Date: Tue Oct 5, 2004 3:01 pm Subject: RE: Front Page Star/ Jaden's Story Amy, Thank you for sharing Jaden's story. I see you are from the Twin Cities. I grew up in Stillwater, MN, but now live in Kansas. My opinion is that Jaden would probably benenfit from a second band. But go with your gut instinct. I know everyone here would support you in your decision. One question for you. In Jaden's story you mentioned silent reflux. I was wondering what the silent reflux means. My daughter lyse has reflux, but I didn't know if there was a difference with silent reflux and reflux. Johanna and repo'in lyse Quote Link to comment Share on other sites More sharing options...
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