Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 We just had a bit of a surprise/shock/unexpected result. Last week, JD had audiological testing for insurance purposes. Guess what they found out? Half of his 100dB hearing loss, previously thought to be sensorineural, is actually conductive. Testing this afternoon by a different audiologist on different equipment confirmed this. Why in the heck are they just now figuring out? Why didn't they ever test for it before? He's 14 now! He's had over 40 audiograms, and over a dozen audiologists testing him! I was so shocked/surprised that I haven't really been able to concentrate or think straight since then. You can't believe the questions running through my mind. Of course, of primary importance is if his amplification in his unimplanted ear is appropriate - or can his conductive loss be corrected? Now we get to bounce around trying to find an ENT who will handle this (they'll probably refer us to his implanting audiologist, but our insurance has decided he's not a network provider so we can't! - we've done this song-and-dance before.) Anyway, if I seem a bit pre-occupied, or doing things you don't expect me to do, that's why. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Kay, I will be thinking of you guys. Interesting that it happened this way because several of the AN kids are turning out to have a slight conductive component that wasn't caught until later on when they went for CI evals. They were so tied up testing for the AN they completely overlooked the conductive components. Good luck with a solution, Elaine Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Kay, What kind of audiological testing do they do to find out whether the loss is conductive or sensorineural? Thanks! Amy At 09:52 PM 5/16/01 -0500, you wrote: >We just had a bit of a surprise/shock/unexpected result. Last week, JD had audiological >testing for insurance purposes. Guess what they found out? Half of his 100dB hearing loss, >previously thought to be sensorineural, is actually conductive. Testing this afternoon by >a different audiologist on different equipment confirmed this. Why in the heck are they >just now figuring out? Why didn't they ever test for it before? He's 14 now! He's had over >40 audiograms, and over a dozen audiologists testing him! I was so shocked/surprised that >I haven't really been able to concentrate or think straight since then. You can't believe >the questions running through my mind. Of course, of primary importance is if his >amplification in his unimplanted ear is appropriate - or can his conductive loss be >corrected? > >Now we get to bounce around trying to find an ENT who will handle this (they'll probably >refer us to his implanting audiologist, but our insurance has decided he's not a network >provider so we can't! - we've done this song-and-dance before.) > >Anyway, if I seem a bit pre-occupied, or doing things you don't expect me to do, that's >why. > >Kay > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Hi Kay: That is quite a shock! What kind of conductive loss is it? What made them go looking for this? This is so important for all of us considering cochlear implantation for our kids. Please keep us posted. J.D. will most certainly be in my thoughts and I hope that you are able to get answers from the professionals soon! Regards, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 On Thu, 17 May 2001 07:00:27 -0500 amy schmidt wrote: > Kay, > > What kind of audiological testing do they do to find out > whether the loss > is conductive or sensorineural? Usually it's a bone conduction test, either in a soundbooth or via an ABR. At JD's age, probably the booth. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Kay: I can understand your being shocked. I am shocked that your past audiograms weren't testing for SNHL Vs. conductive! My daughters always do. My daughter hates the bone conduction test - says it hurts her head. Our dr. told us ( & my reading of medical journal articles) that LVA commonly is a mixture of both types of loss, and they vary over time with the proportion of which type it is. He said it tends to start out as more conductive and progress to snhl over time. Another interesting thing (which I don't understand) is that the conductive loss is a cochlear conductive loss not a middle ear conductive loss. My daughter has been mostly conductive but her audio last month showed she had switched to mostly snhl. mom to Karina (11 - LVA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 > What kind of audiological testing do they do to find out whether the loss > is conductive or sensorineural? They put a bone oscillator unit on and do bone conduction test. It's on kind of a headband thing that has a tight fit and presses the bone oscillator against the mastoid. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 > That is quite a shock! What kind of conductive > loss is it? Won't know till he sees the ENT. Right now, you folks pretty much know as much as I do, which isn't very much. > What made them go looking for this? He happened to see an audiologist who's protocol includes bone conduction testing. Before the test she said we both knew the results from the testing wouldn't show anything, but boy was she wrong. Even she was stumped. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 > Usually it's a bone conduction test, either in a soundbooth > or via an ABR. At JD's age, probably the booth. Your right this one was in the booth, but they're also considering doing ABR just to see if the results are any different. This is throwing all the professionals for a loop too because there haven't been any indicators of any conductive loss up till now. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 > My daughter hates the bone conduction test - says it hurts > her head. So did JD. > Our dr. told us ( & my reading of medical journal articles) > that LVA commonly is a mixture of both types of loss, and they vary > over time with the proportion of which type it is. Interestingly, they had tested for it some time before his implant - he saw the same audiologist as this time. At that time she strongly felt that JD was responding to " felt " tones, and wrote it off as not being relevant and not worth pursuing. She was going to do that again this time, but I asked her to talk to JD and see if he could understand her. If he was responding to felt tones, he shouldn't have known what she was saying. Not only was he able to repeat her words (you know the ones, baseball, ice-cream, cowboy, etc.), he was able to answer her questions (what's your name, what's your last name, where do you go to school, etc.) This test, and the last one are in pretty much the same range. > He said it tends > to start out as more conductive and progress to snhl over time. JD's diagnostic ABR didn't show a conductive componenet. His s/n loss is now at about the same range as his originally diagnosed hearing loss. I figure the " progressive " nature of his hearing loss is actually conductive, though I'm not sure where or how. > Another interesting thing (which I don't understand) is that the > conductive loss is a cochlear conductive loss not a middle ear > conductive loss. Can anyone explain this to us? Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 On Thu, 17 May 2001 11:58:25 -0500 " Listen-Up! " wrote: > > Usually it's a bone conduction test, either in a > soundbooth > > or via an ABR. At JD's age, probably the booth. > > Your right this one was in the booth, but they're > also considering doing ABR just > to see if the results are any different. This is throwing > all the professionals for a loop > too because there haven't been any indicators of any > conductive loss up till now. Kay, I strongly suggest that you get a second opinion. Maybe Brad can help you find an audiologist. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 In a message dated 5/17/01 1:10:23 PM Central Daylight Time, listenup@... writes: > Should have continued on to say ...so she did the audiogram yesterday to try > to prove last > week's false. Unfortunately, it didn't prove false. > > Kay > Wow, Kay, I'm sorry that someone didn't find it sooner. Did the AVT at Sunshine Cottage say if any of it can be corrected? Sorry my response is this late, I just checked my mail after finally moving to Austin. So my family is here now - in our new house. My prayers are with you. Please let me know if we can meet each other sometime. Suzette Quote Link to comment Share on other sites More sharing options...
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