Appointment with Dr Blecher --UK--

[Guest guest]

Hello all

we have managed to get an appointment with Dr Blecher / Dr Bentley in

London on 01.11.04 at 10 am which is great. At the moment we are still

trying to reposition Yannick (almost 5 months now). We have been doing

this for just over 5 weeks now and my Mom who has not seen Yannick for

a while thinks he has improved ! We will still see Dr Blecher in

November though to get his opinion.

Just a footnote: we initially saw our GP on the 10.08. who wrote us a

referral to a paediatrician the same day. We just got back from

holiday and found a letter from our hospital advising us we have been

placed on a non urgent waiting list and they would write to us again 6

weeks before an appointment would become available. We should not have

to wait any longer than 17 weeks !! I will phone them tomorrow and

tell them not to bother -- what a joke !

(mom to Matika 3 1/2 yrs and Yannick 4 1/2 months , plagio, currently

repositioning)

[Guest guest]

Hi ,

I'm glad you got an appointment-you really have to book those inital

appointments ahead now- he's so (too?) busy. You are doing

brilliantly with repoing Yannick- it might be he doesn't need a

helmet, or it might be you decide to go for one, but it will correct

quicker. Either way, you really seem on top of the situation.

Keep us updated- he's a great age to get correction.

Hannah (mum to Lucia, London, UK)

Plagio, Cranio helmet, 4th July '04

> Hello all

> we have managed to get an appointment with Dr Blecher / Dr Bentley

in

> London on 01.11.04 at 10 am which is great. At the moment we are

still

> trying to reposition Yannick (almost 5 months now). We have been

doing

> this for just over 5 weeks now and my Mom who has not seen Yannick

for

> a while thinks he has improved ! We will still see Dr Blecher in

> November though to get his opinion.

> Just a footnote: we initially saw our GP on the 10.08. who wrote

us a

> referral to a paediatrician the same day. We just got back from

> holiday and found a letter from our hospital advising us we have

been

> placed on a non urgent waiting list and they would write to us

again 6

> weeks before an appointment would become available. We should not

have

> to wait any longer than 17 weeks !! I will phone them tomorrow and

> tell them not to bother -- what a joke !

>

>

> (mom to Matika 3 1/2 yrs and Yannick 4 1/2 months , plagio,

currently

> repositioning)

[Guest guest]

Hello

yes, we are trying to stay sane and try to filter out

the information that is (or might be) relevant to our

situation. All the medical people we came across face

to face so far didn't have a clue, so we had to do

all the work on our own which mainly consisted of

surfing the net. With great success so far.

Being German myself I have high hopes regarding Dr

Blecher. I can speak German with him which might help

me understand facts and fiction much better and might

help to make an educated decision. I believe by the

time we get to see Dr Blecher Yannick might have

improved to a degree that it will come down to the

much feared " it's up to you " rather than a " I

recommend a helmet " or " I don't think a helmet is

necessary " .

We are quite lucky as especially my family in Germany

also agrees that Yannick's head shape is not normal

and should be investigated. Nobody said we are just

imagining things or we are just trying to find

faults...especially my mom is a great help. She keeps

encouraging us to pursue the matter and seek

specialist medical advice. Just like myself she keeps

visiting the german plagio chat board which is also

visited by Dr Blecher and he answers directly to

parents posts there, so I find that very interesting

and helpful, but again I try to filter the wealth of

information in order to stay focused on Yannick and

his condition and progress, which is not always easy.

Once the appointment has come and gone I will report

back on the outcome

--- hannah_farrimond <hannah_farrimond@...>

wrote:

---------------------------------

Hi ,

I'm glad you got an appointment-you really have to

book those inital

appointments ahead now- he's so (too?) busy. You are

doing

brilliantly with repoing Yannick- it might be he

doesn't need a

helmet, or it might be you decide to go for one, but

it will correct

quicker. Either way, you really seem on top of the

situation.

Keep us updated- he's a great age to get correction.

Hannah (mum to Lucia, London, UK)

Plagio, Cranio helmet, 4th July '04

> Hello all

> we have managed to get an appointment with Dr

Blecher / Dr Bentley

in

> London on 01.11.04 at 10 am which is great. At the

moment we are

still

> trying to reposition Yannick (almost 5 months now).

We have been

doing

> this for just over 5 weeks now and my Mom who has

not seen Yannick

for

> a while thinks he has improved ! We will still see

Dr Blecher in

> November though to get his opinion.

> Just a footnote: we initially saw our GP on the

10.08. who wrote

us a

> referral to a paediatrician the same day. We just

got back from

> holiday and found a letter from our hospital

advising us we have

been

> placed on a non urgent waiting list and they would

write to us

again 6

> weeks before an appointment would become available.

We should not

have

> to wait any longer than 17 weeks !! I will phone

them tomorrow and

> tell them not to bother -- what a joke !

>

>

> (mom to Matika 3 1/2 yrs and Yannick 4 1/2 months ,

plagio,

currently

> repositioning)

For more plagio info, go to

www.plagiocephaly.org/support

[Guest guest]

Hello

yes, here is the link to the forum I visit in Germany:

http://www.cranio-online.de/frame.cfm?name=Forum & prog=http://www5.transmit.de/tr\

ansmit/forum/list.cfm?SID=1 & forum=1

If the link does not work , go to

http://www.cranio-online.de and follow the links there

to the forum

Hope you find it as informative as I do !

Any problems contact me

--- hessstephanie <hessstephanie@...> wrote:

---------------------------------

Hi ,

You're very lucky to have your family pushing you and

I wish you luck

with the progress.

I would be really interested to join the German Plagio

board. Could

you give me the address of the web page? Thanks

(, 14 months, Plagio)

> > Hello all

> > we have managed to get an appointment with Dr

> Blecher / Dr Bentley

> in

> > London on 01.11.04 at 10 am which is great. At the

> moment we are

> still

> > trying to reposition Yannick (almost 5 months

now).

> We have been

> doing

> > this for just over 5 weeks now and my Mom who has

> not seen Yannick

> for

> > a while thinks he has improved ! We will still see

> Dr Blecher in

> > November though to get his opinion.

> > Just a footnote: we initially saw our GP on the

> 10.08. who wrote

> us a

> > referral to a paediatrician the same day. We just

> got back from

> > holiday and found a letter from our hospital

> advising us we have

> been

> > placed on a non urgent waiting list and they would

> write to us

> again 6

> > weeks before an appointment would become

available.

> We should not

> have

> > to wait any longer than 17 weeks !! I will phone

> them tomorrow and

> > tell them not to bother -- what a joke !

> >

> >

> > (mom to Matika 3 1/2 yrs and Yannick 4 1/2 months

,

> plagio,

> currently

> > repositioning)

>

>

>

> For more plagio info, go to

> www.plagiocephaly.org/support

>