Re: Graduation date set! Why am I not happy?

[Guest guest]

,

It's totally normal to be feeling a little freaked out right about

now. On one hand you are anxious to be over with his treatment (as he

is), but on the other you are worried he hasnt had enough time to

take advantage of the full rounding potential. To top that off there

is that ever haunting regression fear all of us have to come to terms

with. Need I say more?

I know several members were quite pleased with the rounding from

their Cranio Caps. I hear that this type of helmet is based on growth

so another two weeks may capture another growth spurt. Sure wouldnt

hurt to keep it on him as long as it fits. Hopefully other members

will answer your question about the mold pouring.

Please don't fret about regression if he's a tummy sleeper. Diaper

changing and short car trips won't do anything either (I still have

the noggin nest in our carseat though). You could always get a large

foam peice for his seats when he's in them, just for your peace of

mind.

Good luck,

Crista-Grayslake, IL

D-11 mo old-brachy DOCgrad

-- In Plagiocephaly , " Tomaska "

<julietomaska@h...> wrote:

> Wow....who would have thought this would go so fast! We had Milan's

> OT appt yesterday and they decided he will only wear his helmet for

2

> more weeks (He will have had it on for 2 months exactaly). He has

> gotten great results and they feel it is done. I think he would

have

> said we could be done yesterday if I had not voiced my concerns

about

> regression etc...

>

> But it was so funny...our OT said " How about we keep it on for two

> more weeks? " and as soon as those words came out of his mouth Milan

> started screaming and crying so hard! It was so funny! He was happy

> and talking and smiling up until that point....maybe he is ready to

> be done! We do not do an exit casting at all which I thought we

> would. We will see his first casting. Which by the way I have a Q

> about - Do they take the mold and pour something into it to make a

> form of it? Or do we just see the plaster molding?

>

> I guess I should be very excited about him being done but I have

> mixed feelings. DH would take it off now if he could, but I am

> worried about it. The back is still pretty flat, but I guess they

say

> since it is growing in right direction it will continue to do so

and

> not go back to being flat. He sleeps on his tummy and does not

spend

> much time on his back in seats etc. anymore. I am just really

second

> guessing myself to death! I just dont want to do all this and stop

so

> fast and have to do it again in 5 months! ! Anyone have good

advice?

> I could really use it!

>

>

> Twin Cities, MN

> Milans mom 6mos CranioCap 8/12

[Guest guest]

Hi ,

I can understand your mixed feelings. The helmet is like a security

blanket! I'm sure it will become clearer and easier as the days go

by. I am still rolling Colin off of his back when I see him on it at

night and he is 12 mos. old! I'm sure if you keep up with repo (to

whatever extent possible) he will continue to improve without the

helmet. You sound very conscientious about it. Good luck and

pleeeease post " after " pics. If you want them set up like Colin F.,

please let me know and I would be glad to help you with that (the 4

in 1 shot).

Sue

Colin F., 1

STARband grad 9/15/04

Buffalo, NY

> Wow....who would have thought this would go so fast! We had Milan's

> OT appt yesterday and they decided he will only wear his helmet for

2

> more weeks (He will have had it on for 2 months exactaly). He has

> gotten great results and they feel it is done. I think he would

have

> said we could be done yesterday if I had not voiced my concerns

about

> regression etc...

>

> But it was so funny...our OT said " How about we keep it on for two

> more weeks? " and as soon as those words came out of his mouth Milan

> started screaming and crying so hard! It was so funny! He was happy

> and talking and smiling up until that point....maybe he is ready to

> be done! We do not do an exit casting at all which I thought we

> would. We will see his first casting. Which by the way I have a Q

> about - Do they take the mold and pour something into it to make a

> form of it? Or do we just see the plaster molding?

>

> I guess I should be very excited about him being done but I have

> mixed feelings. DH would take it off now if he could, but I am

> worried about it. The back is still pretty flat, but I guess they

say

> since it is growing in right direction it will continue to do so

and

> not go back to being flat. He sleeps on his tummy and does not

spend

> much time on his back in seats etc. anymore. I am just really

second

> guessing myself to death! I just dont want to do all this and stop

so

> fast and have to do it again in 5 months! ! Anyone have good

advice?

> I could really use it!

>

>

> Twin Cities, MN

> Milans mom 6mos CranioCap 8/12

[Guest guest]

,

He's going to be out of his helmet before MacKenzie gets hers! No

fair, we won't be able to play the staring game with curious

onlookers! Anyways, I can see why you are worried. I read these

boards everyday and I listen to everyone talk about second and third

bands and regression and it scares me too, (and we haven't even

gotten ours yet!). Is it all worth it when they can't guarantee that

it will " stick " and they might end up banding again? It just seems so

discouraging, we all want the quick fix and no backpedaling. I guess

maybe becuase we read all the bad on here and don't hear a lot about

from the parents who have been done and moved on. There aren't alot

of them posting here, they probabley quit the boards. Thanks to the

mods and everyone who hangs around even when their babies have

graduated to tell us what we need to know and help us on this path.

Can we please hear from parents who have graduated and the correction

has " stuck " . I think we need to hear the positive stories, lol.

Thanks!

-- In Plagiocephaly , " Tomaska "

<julietomaska@h...> wrote:

> Wow....who would have thought this would go so fast! We had Milan's

> OT appt yesterday and they decided he will only wear his helmet for

2

> more weeks (He will have had it on for 2 months exactaly). He has

> gotten great results and they feel it is done. I think he would

have

> said we could be done yesterday if I had not voiced my concerns

about

> regression etc...

>

> But it was so funny...our OT said " How about we keep it on for two

> more weeks? " and as soon as those words came out of his mouth Milan

> started screaming and crying so hard! It was so funny! He was happy

> and talking and smiling up until that point....maybe he is ready to

> be done! We do not do an exit casting at all which I thought we

> would. We will see his first casting. Which by the way I have a Q

> about - Do they take the mold and pour something into it to make a

> form of it? Or do we just see the plaster molding?

>

> I guess I should be very excited about him being done but I have

> mixed feelings. DH would take it off now if he could, but I am

> worried about it. The back is still pretty flat, but I guess they

say

> since it is growing in right direction it will continue to do so

and

> not go back to being flat. He sleeps on his tummy and does not

spend

> much time on his back in seats etc. anymore. I am just really

second

> guessing myself to death! I just dont want to do all this and stop

so

> fast and have to do it again in 5 months! ! Anyone have good

advice?

> I could really use it!

>

>

> Twin Cities, MN

> Milans mom 6mos CranioCap 8/12

[Guest guest]

Hi ...My is a repo baby, so having not been in your place

I don't think I have any advice that would make you feel better. I

just wanted to tell you I feel for you and I can undersatnd how you

would be nervous about your son's graduation. I mea nwith the band

onhe was guaranteed to round or at least maintain. If your fear,

though, is regression, that happens in such a small percent of

people that you most likely won't have anything to worry about. You

will have moments later that you look at his head and think he has

regressed, we have all had those moments, but it's just nerves and

we eventually relax. Of course, if you see room for more

improvement, what could it hurt to ask about it? Let us know how

things are going.

Becky ('s mom) in Pgh, PA

> Wow....who would have thought this would go so fast! We had

Milan's

> OT appt yesterday and they decided he will only wear his helmet

for 2

> more weeks (He will have had it on for 2 months exactaly). He has

> gotten great results and they feel it is done. I think he would

have

> said we could be done yesterday if I had not voiced my concerns

about

> regression etc...

>

> But it was so funny...our OT said " How about we keep it on for two

> more weeks? " and as soon as those words came out of his mouth

Milan

> started screaming and crying so hard! It was so funny! He was

happy

> and talking and smiling up until that point....maybe he is ready

to

> be done! We do not do an exit casting at all which I thought we

> would. We will see his first casting. Which by the way I have a Q

> about - Do they take the mold and pour something into it to make a

> form of it? Or do we just see the plaster molding?

>

> I guess I should be very excited about him being done but I have

> mixed feelings. DH would take it off now if he could, but I am

> worried about it. The back is still pretty flat, but I guess they

say

> since it is growing in right direction it will continue to do so

and

> not go back to being flat. He sleeps on his tummy and does not

spend

> much time on his back in seats etc. anymore. I am just really

second

> guessing myself to death! I just dont want to do all this and stop

so

> fast and have to do it again in 5 months! ! Anyone have good

advice?

> I could really use it!

>

>

> Twin Cities, MN

> Milans mom 6mos CranioCap 8/12

[Guest guest]

Crista,

Thanks...I am just having issues w/ all of this. We just bought him

his new car seat last night, was going to gett boppy noggin thing

also, but the were out. Thanks for the advice!

> > Wow....who would have thought this would go so fast! We had

Milan's

> > OT appt yesterday and they decided he will only wear his helmet

for

> 2

> > more weeks (He will have had it on for 2 months exactaly). He

has

> > gotten great results and they feel it is done. I think he would

> have

> > said we could be done yesterday if I had not voiced my concerns

> about

> > regression etc...

> >

> > But it was so funny...our OT said " How about we keep it on for

two

> > more weeks? " and as soon as those words came out of his mouth

Milan

> > started screaming and crying so hard! It was so funny! He was

happy

> > and talking and smiling up until that point....maybe he is ready

to

> > be done! We do not do an exit casting at all which I thought we

> > would. We will see his first casting. Which by the way I have a

Q

> > about - Do they take the mold and pour something into it to make

a

> > form of it? Or do we just see the plaster molding?

> >

> > I guess I should be very excited about him being done but I have

> > mixed feelings. DH would take it off now if he could, but I am

> > worried about it. The back is still pretty flat, but I guess

they

> say

> > since it is growing in right direction it will continue to do so

> and

> > not go back to being flat. He sleeps on his tummy and does not

> spend

> > much time on his back in seats etc. anymore. I am just really

> second

> > guessing myself to death! I just dont want to do all this and

stop

> so

> > fast and have to do it again in 5 months! ! Anyone have good

> advice?

> > I could really use it!

> >

> >

> > Twin Cities, MN

> > Milans mom 6mos CranioCap 8/12

[Guest guest]

Sue,

I am sure I will be peeking in on him to make sure he is not on his

back...I plan to post plenty of B & A pics don't worry

Thanks!

> > Wow....who would have thought this would go so fast! We had

Milan's

> > OT appt yesterday and they decided he will only wear his helmet

for

> 2

> > more weeks (He will have had it on for 2 months exactaly). He

has

> > gotten great results and they feel it is done. I think he would

> have

> > said we could be done yesterday if I had not voiced my concerns

> about

> > regression etc...

> >

> > But it was so funny...our OT said " How about we keep it on for

two

> > more weeks? " and as soon as those words came out of his mouth

Milan

> > started screaming and crying so hard! It was so funny! He was

happy

> > and talking and smiling up until that point....maybe he is ready

to

> > be done! We do not do an exit casting at all which I thought we

> > would. We will see his first casting. Which by the way I have a

Q

> > about - Do they take the mold and pour something into it to make

a

> > form of it? Or do we just see the plaster molding?

> >

> > I guess I should be very excited about him being done but I have

> > mixed feelings. DH would take it off now if he could, but I am

> > worried about it. The back is still pretty flat, but I guess

they

> say

> > since it is growing in right direction it will continue to do so

> and

> > not go back to being flat. He sleeps on his tummy and does not

> spend

> > much time on his back in seats etc. anymore. I am just really

> second

> > guessing myself to death! I just dont want to do all this and

stop

> so

> > fast and have to do it again in 5 months! ! Anyone have good

> advice?

> > I could really use it!

> >

> >

> > Twin Cities, MN

> > Milans mom 6mos CranioCap 8/12

[Guest guest]

,

I had a feeling he would be out of it before she was in it! We can

still meet up and Milan can wear a funny hat You have a good

point about parents not coming back w/ positive feedback from

parents who graduated and had no regression. I am sure I will be

lurking around here for awhile! It has become part of my daily

routine to check boards, I can't stop cold turkey I will post

pics asap. Lets still keep in touch also.

> > Wow....who would have thought this would go so fast! We had

Milan's

> > OT appt yesterday and they decided he will only wear his helmet

for

> 2

> > more weeks (He will have had it on for 2 months exactaly). He

has

> > gotten great results and they feel it is done. I think he would

> have

> > said we could be done yesterday if I had not voiced my concerns

> about

> > regression etc...

> >

> > But it was so funny...our OT said " How about we keep it on for

two

> > more weeks? " and as soon as those words came out of his mouth

Milan

> > started screaming and crying so hard! It was so funny! He was

happy

> > and talking and smiling up until that point....maybe he is ready

to

> > be done! We do not do an exit casting at all which I thought we

> > would. We will see his first casting. Which by the way I have a

Q

> > about - Do they take the mold and pour something into it to make

a

> > form of it? Or do we just see the plaster molding?

> >

> > I guess I should be very excited about him being done but I have

> > mixed feelings. DH would take it off now if he could, but I am

> > worried about it. The back is still pretty flat, but I guess

they

> say

> > since it is growing in right direction it will continue to do so

> and

> > not go back to being flat. He sleeps on his tummy and does not

> spend

> > much time on his back in seats etc. anymore. I am just really

> second

> > guessing myself to death! I just dont want to do all this and

stop

> so

> > fast and have to do it again in 5 months! ! Anyone have good

> advice?

> > I could really use it!

> >

> >

> > Twin Cities, MN

> > Milans mom 6mos CranioCap 8/12

[Guest guest]

Becky,

I think that there is some room for improvement on the back of his

head, but both the OT and my DH feel it is time to stop. I think

everyone is ready for it to be done but me...I am sure I will stare

at his head for a long time and 'think' I see regression. Either

way, his head shape is much much better than before!

Thanks,

> > Wow....who would have thought this would go so fast! We had

> Milan's

> > OT appt yesterday and they decided he will only wear his helmet

> for 2

> > more weeks (He will have had it on for 2 months exactaly). He

has

> > gotten great results and they feel it is done. I think he would

> have

> > said we could be done yesterday if I had not voiced my concerns

> about

> > regression etc...

> >

> > But it was so funny...our OT said " How about we keep it on for

two

> > more weeks? " and as soon as those words came out of his mouth

> Milan

> > started screaming and crying so hard! It was so funny! He was

> happy

> > and talking and smiling up until that point....maybe he is ready

> to

> > be done! We do not do an exit casting at all which I thought we

> > would. We will see his first casting. Which by the way I have a

Q

> > about - Do they take the mold and pour something into it to make

a

> > form of it? Or do we just see the plaster molding?

> >

> > I guess I should be very excited about him being done but I have

> > mixed feelings. DH would take it off now if he could, but I am

> > worried about it. The back is still pretty flat, but I guess

they

> say

> > since it is growing in right direction it will continue to do so

> and

> > not go back to being flat. He sleeps on his tummy and does not

> spend

> > much time on his back in seats etc. anymore. I am just really

> second

> > guessing myself to death! I just dont want to do all this and

stop

> so

> > fast and have to do it again in 5 months! ! Anyone have good

> advice?

> > I could really use it!

> >

> >

> > Twin Cities, MN

> > Milans mom 6mos CranioCap 8/12