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Re: advice needed please

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ALice,

It's a BAD fit. This band needs a serious adjustment. It needs to be

kept off the baby until it's adjusted. No band should ever make a

baby's head bleed. Call the ortho and get in asap. The band can't be

worn again until her head heals.

How much experience does this ortho have?

>

> hi there

>

> i was wondering about the possibility of some advice please,

another

> child who just went into a hemmet for plagio last week is having

> some serious teething probs in so far as she has had a lump come up

> behind her ear , which did go down the next day and now the helmet

> (starband ) is causing chaffing which is actually bleeding, as a

> result of this the child is unable to wear the helmet for the

> full23/24 duration, has any one else experienced this please get

> back to me asap. the baby is not due to see orthotist for 5 days,

>

> Many thanks

>

> Alice

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hi there

thank you for your advice and i have passed it on, you may well be right

about the helmet and the mother is going back on wednesday , however the

actual ortho is one of threee in the uk, we are a bit behind here but i am

sure he knows his stuff as he has made absolute fantastic improvement s with

all of his clients and has 100% positive feedback . i have read on this site

that others have had the lump etc... as for the chaffing alot of this is

that the baby will not settle when laying doen therefore the helmet is

causing chaffing through friction rather then mis fitting, atleast i hope

this is the case , but you are definately right that she needs to be seen

asap will keep you informed

Alice

>From: " stripes6060 " <taime@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: advice needed please

>Date: Fri, 31 Dec 2004 17:10:49 -0000

>

>

>ALice,

>It's a BAD fit. This band needs a serious adjustment. It needs to be

>kept off the baby until it's adjusted. No band should ever make a

>baby's head bleed. Call the ortho and get in asap. The band can't be

>worn again until her head heals.

>How much experience does this ortho have?

>

>

> >

> > hi there

> >

> > i was wondering about the possibility of some advice please,

>another

> > child who just went into a hemmet for plagio last week is having

> > some serious teething probs in so far as she has had a lump come up

> > behind her ear , which did go down the next day and now the helmet

> > (starband ) is causing chaffing which is actually bleeding, as a

> > result of this the child is unable to wear the helmet for the

> > full23/24 duration, has any one else experienced this please get

> > back to me asap. the baby is not due to see orthotist for 5 days,

> >

> > Many thanks

> >

> > Alice

>

>

>

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A helmet should never be worn with an open wound, either from

chaffing or pressure. It won't heal well under the band which will

just prolong the lenght of time she'll ultimately be out of it.

Blythe had skin breakdown which caused some " weepiness " on the back

of her head with her second DOC after it was tightened with 2 bands

(Bi-Cal band for scaphy). She couldn't wear it at all for 10 days

until the wound (which looked like a heel blister from a tight shoe)

was COMPLETELY healed. These things can happen quickly and some kids

are just more prone than others-- it doesn't necessarily mean the

ortho is bad; however, she will may need to be adjusted/monitiored a

little more closely than the " typical " protocol. We went to CT in

Dallas 2 times a week, instead of once, until everyone was satisfied

that everytthing was OK.

Breakdown can happen VERY fast- for us, Blythe's DOC was adjusted on

a Thursday. By Friday, there was a red spot, but she is very fair so

I didn't think too much about it. On Saturday, it was worse. I took

her band off for most of the day, but thought she should sleep in it.

Clearly by Sunday, it was getting much worse, not better, and I knew

we needed to get down to CT.

>

> hi there

>

> i was wondering about the possibility of some advice please,

another

> child who just went into a hemmet for plagio last week is having

> some serious teething probs in so far as she has had a lump come up

> behind her ear , which did go down the next day and now the helmet

> (starband ) is causing chaffing which is actually bleeding, as a

> result of this the child is unable to wear the helmet for the

> full23/24 duration, has any one else experienced this please get

> back to me asap. the baby is not due to see orthotist for 5 days,

>

> Many thanks

>

> Alice

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  • 3 months later...
Guest guest

It would probably be a good idea for you to take your child to an

endocrinologist for a full work up. While many doctors may brush it off, it

could be an

early symptom of a growth disorder called Congenital Adrenal Hyperplasia

(CAH). This is an enzyme deficiency that causes a chain reaction in hormone

production that leads to too much testosterone in the system. A websearch will

bring up many degrees of the disorder. My nephew has one of the milder forms.

The doctors brushed off these very early, subtle symptoms so his was not caught

before his growth plates started to close.

Gaylen

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Guest guest

They call it precosous puberty. It is a real diagnosis, Dr. Gier

mentioned it at a DAN conference. I know a 7 year old who was

developing breasts. Your child might be a candidate for some of the

work that is going on with a " script " and chelation. That's all I

can remember. YOu may want to contact a no. of DAN and see if they

are working on this. I had heard Neubranders name mentioned on the

groups as looking into this but I would watch Neubrander and his

chelation protocol.

Holly

> hi

> i have a question.

> i have not wrote for a while, i have been so busy witht he new

baby and daily

> life well i am sure you all understand.

> anyway my 6 year old has started to grow pubic hair. i dont know

if this is

> normal or something way out there but if anyone has any advice iw

oudl love to

> know.

> is this something that special needs or autistic children

sometimes go

> through? is puberty early for someof our children? should i worry

> any advice would be appreciated

>

> thanks so much

> joey

>

> The best thing you can spend on your children is time.

> http://www.nationalautismassociation.org/

> Think Autism.

> Think Cure.

> http://www.mercola.com/

>

>

>

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Guest guest

The reason for precocious puberty is xeno-estrogens (from pesticides and

insecticides) in the environment

Average age of puberty 100 years ago was 17 and now it is 10, average

age of menopause was mid 60's and now it is late 40's

Bruce H. Berman, MD

Re: [ ] advice needed please

This also happened to our daughter. She had early pubic hair at 6 or

7 (I dont remember which and also early underarm odor, and now breast

buds at age 10. At first, the pediatrician labeled it " precocious

puberty " , but when the development did not continue at its orginal

pace, but came in spurts instead as my daughter aged, she dismissed it

as " within normal ranges " for puberty.

We suspect that since our daughter was bottle-fed a lot of soy formula

in her first 3 years, that this may have been a contributing factor,

since components in soy formula can mimic estrogen and other hormones.

Of course, we cannot prove this with any certainty, and it could also

be caused by food additives, such as growth hormones in meats. We

really do not know.

What is more concerning is the " new normal " for puberty. Young women

used to start menstruating at 13 or 14, not at 10 or 11 years of age!

Yet this appears to be the case for our daughter. And doctors will

cite a new lower range for the onset of puberty. No one has asked WHY

IS THIS HAPPENING?

In any case, I do not believe it is an autism-related thing. It might

be heavy metals-related, as my daughter was exposed to arsenic in

utero, but again, I cannot say this is the cause for certain.

BTW, we found no treatment for this, except to stop using soy

products and watch and wait...

Email me if you have further questions - will be glad to help.

WTW2

On Apr 6, 2005 11:31 AM, ummezahid@... <ummezahid@...> wrote:

> hi

> i have a question.

> i have not wrote for a while, i have been so busy witht he new baby

and

> daily

> life well i am sure you all understand.

> anyway my 6 year old has started to grow pubic hair. i dont know if

this is

> normal or something way out there but if anyone has any advice iw

oudl love

> to

> know.

> is this something that special needs or autistic children sometimes

go

> through? is puberty early for someof our children? should i worry

> any advice would be appreciated

>

> thanks so much

> joey

>

> The best thing you can spend on your children is time.

> http://www.nationalautismassociation.org/

> Think Autism.

> Think Cure.

> http://www.mercola.com/

>

>

>

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Guest guest

Often this is caused by the growth hormones in meat and dairy products.

S

<tt>

hi<BR>

i have a question.<BR>

i have not wrote for a while, i have been so busy witht he new baby and daily

<BR>

life well i am sure you all understand.<BR>

anyway my 6 year old has started to grow pubic hair. i dont know if this is <BR>

normal or something way out there but if anyone has any advice iw oudl love to

<BR>

know.<BR>

is this something that special needs or autistic children sometimes go <BR>

through? is puberty early for someof our children? should i worry<BR>

any advice would be appreciated<BR>

<BR>

thanks so much<BR>

joey<BR>

<BR>

The best thing you can spend on your children is time. <BR>

<a

href= " http://www.nationalautismassociation.org/ " >http://www.nationalautismassoci\

ation.org/</a><BR>

Think Autism.<BR>

Think Cure. <BR>

<a href= " http://www.mercola.com/ " >http://www.mercola.com/</a><BR>

<BR>

<BR>

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Guest guest

I've read " Our Stolen Future " which is a great book explaining the

environment and endocrine disruptors. What leaves me confused is

why would is precocious puberty (reportedly) even more common in the

African American community?

Mindy

> > hi

> > i have a question.

> > i have not wrote for a while, i have been so busy witht he new

baby

> and

> > daily

> > life well i am sure you all understand.

> > anyway my 6 year old has started to grow pubic hair. i dont

know if

> this is

> > normal or something way out there but if anyone has any advice

iw

> oudl love

> > to

> > know.

> > is this something that special needs or autistic children

sometimes

> go

> > through? is puberty early for someof our children? should i

worry

> > any advice would be appreciated

> >

> > thanks so much

> > joey

> >

> > The best thing you can spend on your children is time.

> > http://www.nationalautismassociation.org/

> > Think Autism.

> > Think Cure.

> > http://www.mercola.com/

> >

> >

> >

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Guest guest

Soya contains phytoestrogens that protect cells from xeno estrogens.

A balanced soy protein has the opposite effect, rather than causing

premature puberty.

> > hi

> > i have a question.

> > i have not wrote for a while, i have been so busy witht he new

baby and

> > daily

> > life well i am sure you all understand.

> > anyway my 6 year old has started to grow pubic hair. i dont know

if this is

> > normal or something way out there but if anyone has any advice iw

oudl love

> > to

> > know.

> > is this something that special needs or autistic children

sometimes go

> > through? is puberty early for someof our children? should i worry

> > any advice would be appreciated

> >

> > thanks so much

> > joey

> >

> > The best thing you can spend on your children is time.

> > http://www.nationalautismassociation.org/

> > Think Autism.

> > Think Cure.

> > http://www.mercola.com/

> >

> >

> >

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