Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 , Just a quick side note....my son has the CranioCap and it is passive, the cranio facial surg. and OT's say that to get good correction children should be banded by 6 months. After that the results may not be as dramatic in a short time. Good luck w/ the band, I think you are making right decision! Twin Cities, MN Milan's mom 6mos CranioCap 8/12 > > Dianna > > > > Thanks for your kind words. > > > > At first I was quite discouraged about what Dr Blecher had said, > and I - > > like - found myself wondering if what he said was true > and so I > > started questioning the decision I was making for Toby. > > > > But after " sleeping on it " , I realise I am making the right > decision and > > know that I trust Steve Mottram and have read of some very good > STARband > > results. I've re-checked also about the CranioCap (sorry - called > it the > > DOCband before) and it is definitely passive, whereas the STARband > is active > > (its very name means Symmetry Through ACTIVE Remolding). Dr > Blecher thinks > > my son does not need treatment, yet just today I saw a seven or > eight year > > old with brachy - and he had precisely the same head shape as my > son. He > > had shaved hair, so you could see the brachy really well. I felt > sorry for > > him as I'm sure he gets teased. That's when I remembered why I am > doing > > this for Toby. > > > > So, much as I was hurt at first, I think I'm now newly galvanised > into > > action, so in a strange way I am grateful to Blecher for his > comments. > > I'm sure he is a great doctor and has himself had great success. > And I am > > sure those currently under his care have every reason to feel > confident > > about his treatment. I just wish he was better informed and more > tactful in > > his emails. > > > > Anyway, less than two weeks to go before we get Toby's STARband, > and so by > > about the beginning of February, I'll be sending Dr Blecher some > new photos. > > This time, of my son's lovely rounded head! > > > > Thanks all for your positive comments. They've really helped. > > > > , UK > > Toby - 9.5 months, severe brachy, STARband in about ten days or so > > > > > > Re: Shocking- to and > > > > > > and , > > > > I was very upset when I read that both of you have had similiar > > experiences with Dr. Blecher. I know that several parents have > had > > great success with him and that he is viewed as an excellent > > provider in this field. It's great how he travels all over Europe > > and provides free appointments, etc. > > > > However, I am appauled at his correspondence with the both of you. > > If he is so " good " he should be educated enough to know that older > > children can receive correction. He should also know that 95- 96% > > for a cephalic ratio is severe ( I think, at least it's more than > 2 > > standard deviations from the norm). Just because he doesn't treat > > older kids, doesn't mean that he should discourage it. It disturbs > > me that he is misinforming people that 9 months old is too late to > > start treatment. > > > > Why is he saying that the CranioCap and STARBand are the same? > > Isn't one passive and the other active? > > > > Finally, I don't like how he talks about Dr. Mottram. I can > handle > > blunt language, but this is beyond that. He is slamming the > > reputation of Dr. Mottram by making warnings about his motives for > > banding. Wouldn't it be nice if Dr. Belcher could acknowledge the > > limitations of his treatment and support the alternative that Dr. > > Mottram offers? His personal opinion may keep parents from > seeking > > other options and that is a disgrace. > > > > Good Luck to both of you!! I think it's great that you followed > up > > with Dr. Mottram despite the warnings of Dr. Blecher. Keep us > posted > > on any progress. And make sure you contact Dr. Blecher and let him > > know about the correction both of your children receive. Maybe > that > > will help change his mind!! > > > > Dianna > > Mom to > > DOC Band 9/13 > > plagio/brachy Quote Link to comment Share on other sites More sharing options...
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