Re: Shocking- ..I would be so lost

[Guest guest]

To everyone who responded, thank you so much. I would be so lost

without you all. It is really great to be part of a group like this,

to be able to exchange ideas freely, to learn from everybody's

experiences, to be reassured, warned and encouraged.

To all the doctors treating plagio and brachy, please learn how to

work together!!

--- In Plagiocephaly , " Kerr " <claire@c...>

wrote:

> Dianna

>

> Thanks for your kind words.

>

> At first I was quite discouraged about what Dr Blecher had said,

and I -

> like - found myself wondering if what he said was true

and so I

> started questioning the decision I was making for Toby.

>

> But after " sleeping on it " , I realise I am making the right

decision and

> know that I trust Steve Mottram and have read of some very good

STARband

> results. I've re-checked also about the CranioCap (sorry - called

it the

> DOCband before) and it is definitely passive, whereas the STARband

is active

> (its very name means Symmetry Through ACTIVE Remolding). Dr

Blecher thinks

> my son does not need treatment, yet just today I saw a seven or

eight year

> old with brachy - and he had precisely the same head shape as my

son. He

> had shaved hair, so you could see the brachy really well. I felt

sorry for

> him as I'm sure he gets teased. That's when I remembered why I am

doing

> this for Toby.

>

> So, much as I was hurt at first, I think I'm now newly galvanised

into

> action, so in a strange way I am grateful to Blecher for his

comments.

> I'm sure he is a great doctor and has himself had great success.

And I am

> sure those currently under his care have every reason to feel

confident

> about his treatment. I just wish he was better informed and more

tactful in

> his emails.

>

> Anyway, less than two weeks to go before we get Toby's STARband,

and so by

> about the beginning of February, I'll be sending Dr Blecher some

new photos.

> This time, of my son's lovely rounded head!

>

> Thanks all for your positive comments. They've really helped.

>

> , UK

> Toby - 9.5 months, severe brachy, STARband in about ten days or so

>

>

> Re: Shocking- to and

>

>

> and ,

>

> I was very upset when I read that both of you have had similiar

> experiences with Dr. Blecher. I know that several parents have

had

> great success with him and that he is viewed as an excellent

> provider in this field. It's great how he travels all over Europe

> and provides free appointments, etc.

>

> However, I am appauled at his correspondence with the both of you.

> If he is so " good " he should be educated enough to know that older

> children can receive correction. He should also know that 95-96%

> for a cephalic ratio is severe ( I think, at least it's more than

2

> standard deviations from the norm). Just because he doesn't treat

> older kids, doesn't mean that he should discourage it. It disturbs

> me that he is misinforming people that 9 months old is too late to

> start treatment.

>

> Why is he saying that the CranioCap and STARBand are the same?

> Isn't one passive and the other active?

>

> Finally, I don't like how he talks about Dr. Mottram. I can

handle

> blunt language, but this is beyond that. He is slamming the

> reputation of Dr. Mottram by making warnings about his motives for

> banding. Wouldn't it be nice if Dr. Belcher could acknowledge the

> limitations of his treatment and support the alternative that Dr.

> Mottram offers? His personal opinion may keep parents from

seeking

> other options and that is a disgrace.

>

> Good Luck to both of you!! I think it's great that you followed

up

> with Dr. Mottram despite the warnings of Dr. Blecher. Keep us

posted

> on any progress. And make sure you contact Dr. Blecher and let him

> know about the correction both of your children receive. Maybe

that

> will help change his mind!!

>

> Dianna

> Mom to

> DOC Band 9/13

> plagio/brachy