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NCU Re: Yeti Lips..

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I understand what you felt. When I have " Yeti-lips " I don't want to

go to work either. I know they're all going to ask " what happened to

you?! " And most of the time I feel like I'd break down and cry if

they asked me that.

It's hard to get used to the fact that you can't just hide all day

when your face is swollen. It doesn't seem fair, but we just have to

deal with it.

Sherry

> Sian - don't hide and let it become a mental crutch. Don't let it

drive

> you. You must drive it. I have dermographism. When the meds wear

off, if

> I blow my nose, rub my face or touch my neck, it looks like I was

attacked

> by a wild animal. I have trained myself to only touch areas

covered by my

> clothing as much as possible. But sometimes you just have to touch

your

> face. People will ask and I say it's my allergies because it is

what they

> can understand.

>

> I like the Yeti-lips. That's really creative. My kids will write

their

> names on my arms or legs and watch until they welt up - Wow Mom,

that's

> cool!!! It's hard to get angry at a child for being observant,

they mean no

> harm by it.

>

> Glad you got out there and let your personality do the talking.

Way to

> go!!!

>

>

>

>

> >From: " Sian " <sianfiddle@h...>

> >Reply-To: urticaria@y...

> >To: urticaria@y...

> >Subject: Yeti Lips..

> >Date: Sun, 01 Apr 2001 20:35:55 -0000

> >

> >This is how my partner's 10 year old boy deals with my angiodema.

> >I'm not sure how his imagination works, but it's now become the

> >household name. He knows that when I get Yeti-lips, I get cranky

and

> >we cant do as much as we normally do together. He's seen my hives

and

> >he's also seen me at my worst (lips, eyelids and cheeks swollen).

> >He's not cruel about it, and you've got to admit - Yeti-lips is one

> >of those make you smile phrases!

> >

> >My partner didnt quite understand what was happening to me, until I

> >showed him the primary email from this group. We spend the evening

> >really talking this through and he approves of me joining the

group,

> >if it helps me. (I'd be here even if he didnt approve!)

> >

> >Last night I had a bad attack of angiodema, I awoke at 7am to get

> >ready for work and had really bad Yeti-lips. I tried phoning in

sick,

> >but was made to feel guilty about my worksplace's staffing crisis

and

> >the desparate need for someone of my experience. (I work as a Chef

du

> >Ronde in a 5 star hotel as well as being a musician) - after all it

> >was April Fools day - they must have thought that I was joking!.

When

> >I arrived, my supervisor was horrified by my appearance and said

that

> >she was sorry about the situation and that I could work the Still

> >(making toast tea and coffee -back of house work). I spent 4 hours

> >doing the best I could, feeling lightheaded, with painful joints,

> >body itch and Yeti-lips... most of my colleagues are younger than

me,

> >and I had so many questions from them about why and on...

> >

> >My manager came in at noon, by which time a lot of the swelling had

> >gone from my eyes and my lips had evened up - but they were still

> >swollen. He was sympathetic but said that I would have to 'go out

> >front' as we had a busy lunch time, there was no option! I had a

> >fuller set of lips that some women pay thousands for!

> >

> >My point...?

> >

> >I'm coming to terms with these swellings. I dont want to have to

hide

> >every time, sometimes we perceive ourselves to be hideous monsters

> >and want to stay away from people. My guests didnt know any better,

> >that I was 'suffering'. It was hard to take the first step through

> >the doors from the kitchen to the restaurant... for anyone feeling

as

> >low as I did this morning... remember - you are still the same

person

> >inside!

> >

> >I made nearly £50 ($75) in tips this lunchtime - was it my

> >personality and professionalism or my face?

> >

> >Sian

> >

> >

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

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