Re: Awesome Experince this Weekend

September 20, 2004

HI ,

Sounds like you did a good plagio education job there! It all helps-

I'm sure that is how so many people find out about plagio in the

first place, because it sure isn't from their doctors or health

visitors.

Sounds like you enjoyed yourself too!

Hannah (mum to Lucia, London, UK)

Plagio, Cranio helmet, 4th July '04

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> I had The Most Awesome Experience this Weekend. I

educated, preached, and just plain dominated the crowd...ok in my

mind at least...lol. Every year hubby and I work at the Alliance

Air Show in Fort Worth as Ticket Attendants and with that job we get

in free and get some great perks ie: free stuff !!!. I am a big

people watcher and now that I am a member of the Plagio Police you

would not believe how many plagio babies there are.

> Anyways, as I was going around with my bestest friend in

her Golf cart (Perks are Great) we saw a booth for Angel Flight and

of course I had to stop. Imagine my joyful surprise when I saw that

on his table promenintly (sp?) displayed for all to see was a

picture of a beautiful banded baby...WHOOHOOO!!!! I commented on the

baby and he seemed surprised to hear I knew what the band was, so I

explained to him my daughter had worn one, to make a long story

short, by the time I was done I had a small crowd listening and I

heard one woman as I was leaving comment to her friend that she

thought her niece had tort and plagio and she was going to send her

to the net to find more info.

> So I (pumped up on excitement now) jop back in the golf cart

with my bestest friend and continue down the tarmac when I notice

another picture of a banded baby again displayed for all to see, so

of course we stopped. This was a booth for Freedom Flight which is

much like Angel Flight but mainly in Texas and surrounding states.

The man asked if I knew someone who needed their services and I

sorta laughed and said OH YEAH !!! So....once again I told 's

story and mixed in many of the parents' stories I know have had to

travel for treatment and once again I had a small crowd listening.

Now the only thing I was missing was :-( . Thank Goodness

for pictures....LOL. I had some people ask questions and some even

pointed me out to others as they were leaving, (Hope they weren't

saying I was funny looking...lol) and one woman asked if I knew of

web sites she could visit for more info because she was positive her

grandson has plagio/brachy...well of course she walked away

> with a ton of info...lol.

> Now to top all of this off I got to see Melany and Kody

from our playgroup, Kody is DOC banded and is the sweetest thing :-)

and I was so happy to see he is doing great with his band and

doesn't have much longer.

> So enough of my rambling, I just had to tell someone,

thanks for listening if you're still reading...lol

>

> in Texas

> Mom to , 9/7/03, DOC Grad 7/04

> Plagio/Brachy/Tort

>

> Visit 's Web Page at:

> www.babiesonline.com/babies/k/kathryn9703

> Make sure to Sign Her guestbook!!!

> Banded Baies Are Beautiful :-)

September 20, 2004

As I told you in chat: that is wonderful!! I liked the long version

even better. Good for you for using that great opportunity to the

fullest extent. It must feel so good to know that you may be helping

more babies.

Sue

Colin F.

STARband grad 9/15/04

Buffalo, NY

--- In Plagiocephaly , kelly <docbandbabies@s...>

wrote:

> HI Everyone,

>

> I had The Most Awesome Experience this Weekend. I

educated, preached, and just plain dominated the crowd...ok in my

mind at least...lol. Every year hubby and I work at the Alliance Air

Show in Fort Worth as Ticket Attendants and with that job we get in

free and get some great perks ie: free stuff !!!. I am a big people

watcher and now that I am a member of the Plagio Police you would not

believe how many plagio babies there are.

> Anyways, as I was going around with my bestest friend in

her Golf cart (Perks are Great) we saw a booth for Angel Flight and

of course I had to stop. Imagine my joyful surprise when I saw that

on his table promenintly (sp?) displayed for all to see was a picture

of a beautiful banded baby...WHOOHOOO!!!! I commented on the baby and

he seemed surprised to hear I knew what the band was, so I explained

to him my daughter had worn one, to make a long story short, by the

time I was done I had a small crowd listening and I heard one woman

as I was leaving comment to her friend that she thought her niece had

tort and plagio and she was going to send her to the net to find more

info.

> So I (pumped up on excitement now) jop back in the golf cart

with my bestest friend and continue down the tarmac when I notice

another picture of a banded baby again displayed for all to see, so

of course we stopped. This was a booth for Freedom Flight which is

much like Angel Flight but mainly in Texas and surrounding states.

The man asked if I knew someone who needed their services and I sorta

laughed and said OH YEAH !!! So....once again I told 's story

and mixed in many of the parents' stories I know have had to travel

for treatment and once again I had a small crowd listening. Now the

only thing I was missing was :-( . Thank Goodness for

pictures....LOL. I had some people ask questions and some even