Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 We've been out of helmet for 2 months now. Our son, Ian, was diagnosed with moderate-severe plagiocephaly and mild torticollis at 4 months. At 5 months of age, he was fitted with a helmet (Danmar) and wore for a total of 5 months. The tort was resolved via physical therapy. Now at one year, Ian went for his routine pediatrician exam and there is a concern with his head size. It has always been big, but now that he is at one year, there is a concern that the size is not trending down to catch up with his body. (Ian has always been smack- on average for height/weight and is at the 95th percentile in head size.) We are going for an ultrasound next week to rule out any fluid concerns. If the ultrasound does not read, then we will need to look at having a catscan. When I look at Ian's head - and of course compare with other one- year-olds - he has a long, narrow head shape with a protruding forehead. (Although helmet did correct alot of the assymetries, the bossed forehead has always been there.) I'm wondering if the forehead causes the measurement to jump! My question is if a large head size is a common theme with plagio babies? At one year of age, has anyone seen success with correcting bossed forehead via the banding? I hate to go down this road again (especially as we thought we were done), but I don't want to rule out what is best for our son. Any feedback/similar experiences is appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Hello , I am a relative newbie to the website but read posts when I have time. My son is now in his 2nd DOC band. He outgrew his first one in 5 weeks. Anyway at our 6 month appointment(one week ago) my pediatrician felt my son's head circumference was to large (also 95%) and his ht/wt were 50th. She was concerned. Anyway, he has some forehead bossing too, which I thought could affect the measurement negatively. Anyway, we just did the head ultrasound and everything was fine. What a relief. So I wouldn't worry to much. Let me know how it goes. mom to Plagio, 2nd DOC band, 6 months ? tort Phoenix, AZ. --- In Plagiocephaly , " soukasaurus " <soukup@c...> wrote: > > We've been out of helmet for 2 months now. Our son, Ian, was > diagnosed with moderate-severe plagiocephaly and mild torticollis at > 4 months. At 5 months of age, he was fitted with a helmet (Danmar) > and wore for a total of 5 months. The tort was resolved via > physical therapy. > > Now at one year, Ian went for his routine pediatrician exam and > there is a concern with his head size. It has always been big, but > now that he is at one year, there is a concern that the size is not > trending down to catch up with his body. (Ian has always been smack- > on average for height/weight and is at the 95th percentile in head > size.) We are going for an ultrasound next week to rule out any > fluid concerns. If the ultrasound does not read, then we will need > to look at having a catscan. > > When I look at Ian's head - and of course compare with other one- > year-olds - he has a long, narrow head shape with a protruding > forehead. (Although helmet did correct alot of the assymetries, the > bossed forehead has always been there.) I'm wondering if the > forehead causes the measurement to jump! > > My question is if a large head size is a common theme with plagio > babies? > > At one year of age, has anyone seen success with correcting bossed > forehead via the banding? I hate to go down this road again > (especially as we thought we were done), but I don't want to rule > out what is best for our son. Any feedback/similar experiences is > appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 , do you have pictures posted? I would like to see. My son's over all body is big along with head circ. but he has some major bossing which he was born with. I never thought about that affecting the circumfrence. Interestingly when we had our x-ray to get our helmet prescription, a large bit of that bulge was actually fat. That leads me to think that it will flatten as he gets older. I would sure like to see photos though to see if we are going through the same thing. Best to you! Janna Mom to Kellan St. Louis, Local Helmet --- In Plagiocephaly , " soukasaurus " <soukup@c...> wrote: > > We've been out of helmet for 2 months now. Our son, Ian, was > diagnosed with moderate-severe plagiocephaly and mild torticollis at > 4 months. At 5 months of age, he was fitted with a helmet (Danmar) > and wore for a total of 5 months. The tort was resolved via > physical therapy. > > Now at one year, Ian went for his routine pediatrician exam and > there is a concern with his head size. It has always been big, but > now that he is at one year, there is a concern that the size is not > trending down to catch up with his body. (Ian has always been smack- > on average for height/weight and is at the 95th percentile in head > size.) We are going for an ultrasound next week to rule out any > fluid concerns. If the ultrasound does not read, then we will need > to look at having a catscan. > > When I look at Ian's head - and of course compare with other one- > year-olds - he has a long, narrow head shape with a protruding > forehead. (Although helmet did correct alot of the assymetries, the > bossed forehead has always been there.) I'm wondering if the > forehead causes the measurement to jump! > > My question is if a large head size is a common theme with plagio > babies? > > At one year of age, has anyone seen success with correcting bossed > forehead via the banding? I hate to go down this road again > (especially as we thought we were done), but I don't want to rule > out what is best for our son. Any feedback/similar experiences is > appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Hi ...awww he's so handsome! I don't think his " bossing " looks unusual at all. Yes, a larger head is a common theme in plagio babies. That, and answers to other questions can be found in our " Polls " section (click at left.) Sue Colin F. 14 mos. STARband grad --- In Plagiocephaly , " soukasaurus " <soukup@c...> wrote: > > We've been out of helmet for 2 months now. Our son, Ian, was > diagnosed with moderate-severe plagiocephaly and mild torticollis at > 4 months. At 5 months of age, he was fitted with a helmet (Danmar) > and wore for a total of 5 months. The tort was resolved via > physical therapy. > > Now at one year, Ian went for his routine pediatrician exam and > there is a concern with his head size. It has always been big, but > now that he is at one year, there is a concern that the size is not > trending down to catch up with his body. (Ian has always been smack- > on average for height/weight and is at the 95th percentile in head > size.) We are going for an ultrasound next week to rule out any > fluid concerns. If the ultrasound does not read, then we will need > to look at having a catscan. > > When I look at Ian's head - and of course compare with other one- > year-olds - he has a long, narrow head shape with a protruding > forehead. (Although helmet did correct alot of the assymetries, the > bossed forehead has always been there.) I'm wondering if the > forehead causes the measurement to jump! > > My question is if a large head size is a common theme with plagio > babies? > > At one year of age, has anyone seen success with correcting bossed > forehead via the banding? I hate to go down this road again > (especially as we thought we were done), but I don't want to rule > out what is best for our son. Any feedback/similar experiences is > appreciated. > Quote Link to comment Share on other sites More sharing options...
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