Re: vestibulectomy anyone?

[Guest guest]

Laurie,

I noticed you are from Toronto - do you know a good gynocologist in this

area?

Marnie

[Guest guest]

I'm confused why you wouldn't try the antidepressants given that they

are for a physical problem. Nerves firing too frequently is

definitely a physical problem, and providing a chemical " stop " for the

nerves to not fire so frequently is definitely not trying to say it's

a psychological problem! :-) But they do seem to have worked for some

women. Personally, I've been doing biofeedback and physical therapy,

antihistamines and estrogen cream, and I've seen a fair amount of

improvement. I'd try _everything_ before sugery, because surgery is

not reversible. But that's just MHO.

> Hi! I am new!!! I am so glad to have found a way to actually find

> other women out there like me who can't have sex or insert tampons,

> or anything else that involves penetration!!! What suggestions do

you

> all have? I have been diagnosed with BOTH VV and VAG and my doctor

> now wants to perform surgery on me this upcoming July. I am getting

> married next March and I really want to cure this problem so that I

> can consummate my marriage on my wedding night!!!! PLEASE, HELP ME

> FIND A SOLUTION!!! I should also mention that another doctor tried

to

> perscribe me and antidepressant and some nerve medicine to help

block

> the nerve reactants to touch around the vulvar area, but I knew that

> my condition was not psychological in nature, but was purely

> physical. Has anyone had any success with anything? I am feeling

> really hopeless!

>

> Jess

> P.S. I live in VA, near Charlottesville...does anyone else live by

> here that knows of a good doctor?

[Guest guest]

Hi Jess!! I'm trying my 2nd type of anitdepressants now... I have

already tried amitriptyline and am now trying nortriptline. I have

pain with penetration (tampons, sex, whatever...). I didn't have any

luck with the amitriptyline but haven't been taking the notriptline

long enough to know if it's going to help yet. I have also been

considering surgery and have heard mixed opinions on it... some

people are very against it and some aren't. I had normal sexual

activity for a few years with my one and only partner and then all of

a sudden this just popped up out of nowhere. I've now been dealing

with this for 2 years and have just gotten a proper diagnosis a

couple of months ago. It's comforting to know that there are other

women out there that have this problem too. I'm 24 years old and

want my " normal " life back!! I know that antidepressant medications

are actually used in fighting chronic pain of all sorts and are not

strictly for psychological issues. You may have some luck on them...

it's always worth a try. I have spoken with my doctor about going

for a surgical consult and will set up an appointment next time I see

him (April). I want to keep all options open... especially since

nothing seems to be working... just going to the consult doesn't

mean that I have to commit to it and I have read MANY studies that

have said surgery has the highest success rate... you've just got to

do your research first.

Hope this helps!

Laurie ) (Toronto, Canada)

[Guest guest]

Hi Marnie,

I've only been to see 2 gynocologist's, one in Brampton, Dr. Senik,

and one in Hamilton, Dr. Lamont at the Hamilton Health Sciences

Centre. Dr. Lamont was a specialist and he seemed really great but

told me that the amitriptyline was my last hope. Dr. Senik seems

like a good doctor but didn't know what to do for me either after the

topical creams he prescribed didn't work... I'm actually seeing a

neurologist at Mt. Sinai hospital now. He's been the best at helping

me so far, even though nothing has relieved my pain, he's had the

most options to try... his name is Dr. Gordon (I got his name from

Dr. Glazer in New York). You need a referral from your doctor and

you have to fill out this huge survey to send to the hospital. It's

a lengthy process but seems to be worth it.

> Laurie,

> I noticed you are from Toronto - do you know a good gynocologist in

this

> area?

> Marnie

[Guest guest]

Funny thing - I was about to send an email recommending Dr. Gordon as someone to

contact for the information requested. I presume that is Dr. Alan Gordon. He

used to be a member of this list and comes back occasionally.

Ora

>Hi Marnie,

>

>I've only been to see 2 gynocologist's, one in Brampton, Dr. Senik,

>and one in Hamilton, Dr. Lamont at the Hamilton Health Sciences

>Centre. Dr. Lamont was a specialist and he seemed really great but

>told me that the amitriptyline was my last hope. Dr. Senik seems

>like a good doctor but didn't know what to do for me either after the

>topical creams he prescribed didn't work... I'm actually seeing a

>neurologist at Mt. Sinai hospital now. He's been the best at helping

>me so far, even though nothing has relieved my pain, he's had the

>most options to try... his name is Dr. Gordon (I got his name from

>Dr. Glazer in New York). You need a referral from your doctor and

>you have to fill out this huge survey to send to the hospital. It's

>a lengthy process but seems to be worth it.

>

>

[Guest guest]

Hi Ora, yes that's him... he mentioned to me at my last appointment

that he used to be a member of this list.

[Guest guest]

Hi Ora, yes that's him... he mentioned to me at my last appointment

that he used to be a member of this list.

[Guest guest]

Hi

Before you decide to have a surgery make sure you do lots of research. That

could be lots of other options that you should try first. I know you want

to have normal sex for your wedding, but you might even end up with

something worse than what you had before.

Surgery is not for everybody. Lots of docs recommend it b/c thay do not

what else to do.

Talk to some ladies on the list

Anja

*Clipped & Edited for brevity by Moderator*