Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Thank you! That gives me hope!!!! We are blessed to have been diagnosed at such a young age and blessed to be in Phoenix. > > > > > > HI! This seems like a great " support " group! I am new to the > > > group. Over a month ago my daughter, , was diagnosed > with > > > Plagio. Since then I have been trying to do repositioning with > > > working on her torticollis muscle and have been frustrated. I > see > > a > > > little improvement in her looking to the left (rarely would > > before) > > > and lots of improvement in her neck strength from Tummy Time. > But > > > she still loves her right side and has trouble sleeping on the > > > left. I often find myself giving in and allowing her to go to > > sleep > > > on the right. I am not one to normally give in, but it gets so > > > tiring. She is a great sleeper otherwise! We do have a sleep > > > positionser that we got from Target. It has the memory foam > > > pillow. She doesn't mind it as long as she can be on her > right. > > > Yesterday we got a call from Cranial Tech...(they are so nice!) > > and > > > found we were declined ins coverage from Schaller . We > > are > > > waiting on the explanation letter. I have read some of the > > > posts and I see that it might work to our advantage to appeal > once > > > we know the reason for the decline. I am up for whatever. I > > think > > > I will schedule another appt with Cranial Tech to see if there > are > > > any changes in their suggestions. Last month they said she > > > was " moderate " whatever that means. I look at her and it makes > me > > > sad for her. Her one cheek protrudes beyond the other, her head > > has > > > an long angled shape, and her ears are different sizes and at > > least > > > a 1/2 inch off in allignment. She is so beautiful but I don't > > want > > > her to have to deal with this forever! > > > Any suggestions??? > > > Thanks!!! > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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