Re: Re: SSD

[Guest guest]

.........ohhhhhhhhhhhhh I'm so sorry. I'm trying to get SSI right now and it's a bitch. I haVen't seen my medical records and frankly, I'm afraid too..........I also go to therapy and my mental health struggles (PTSD, Chronic anxiety and chronic depression), are also apart of my Fibro.........I had a pscy/medical evalualtion done by someone SS recommended. It was a VERY tramatic experience, but what they coudl deny that other docs may have said that it was somehow "psychosomatic", was only PARTLY true.......the SSI psych/phsyc. recommended that I NOT work. HAVe they sent you to someone THEY want, who would actually be there to find some waY NOT to let you get SSDI to see how you REALLY are????I don't know where you are in the process, but if you're bad enough, SS will want to "verify" that by sending you to someone of THEIR choosing.........only to find that you are as bad as you say you are..........for me, although traumatizing, it was

also very validating.........This is not ALL IN YOUR HEAD!!! It's in your body. You have rights becaUse of that.If you have medical records from Docs in calif. who contradict those in Ill., that is very telling. Request that SSDI have one of THEIR docs evaluate you.It's the best thing you cna do for yourself. They will see. And their recommendations go a long waY. It shuts up SSDI. K.Aura521@... wrote:

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I think that it is to your advantage that you have your records from California. The Social Security Administration works in mysterious ways. It is difficult how they will view the ignorant remarks of your current doctors. I would suggest that you contact your local Arthristis Foundation and request names of doctors who acknowledge fibromyalgia as a real disease. Another alternative would be to contact a teaching hospital and ask for their rheumatology clinic. I would also suggest you use the same method to have a psychological evaluation by a psychiatrist which will refute Dr. Dufus's medical records. It is so difficult to be disabled. There are so many losses. The self-esteem takes a beating. You are not crazy or a lier. You know that. You just need professionals who are willing to document your condition without prejudice. Good luck. Be Strong. I know this is a difficult process. You

don't have to defend yourself to these doctor's from the dark ages. Find doctors who know what they are doing and use their findings to support your SSD claim.

Margaret

Any advice?I was diagnosed with FM last year.. prior to that I was told that Ihad complex migraines combined with my back injuries (herniated discs) due to a car accident (which set off these ailments). In late 2003I had to move in with my mom, leaving the state of CA for IL. I havehad SO much trouble with the doctors I have seen in this state and nowthat I am in the last stages of SSD (trial coming soon) I have beentrying to obtain all of my medical records that I didn't havepreviously. Well, as they are coming and I've been actually readingthem.. the commentary has been atrotious! (sp?) Comments fromcomplete lies (saying I'm 100% better- where in the F!ING world did heget that!?) to saying its psychosemantic (sp?). Since these recordscombine

the last TWO years, I am very concerned as to what theserecords will do to my case. I cannot work, I cannot walk, sit orlaydown without pain. I have dizzy spells where I almost pass out. Not to mention the obvious lack of thinking that comes with it! I amhypersensitive to 99% of the drugs I've been given AND I've taken themwhen given until I end up with an allergic reaction, horrible sideeffects or stop due to not working on me (all of which my doctor wasinformed and THEY made the decision for me to stop taking a specificmed). NONE of my doctors (esp. the ones that are supportive to myface and say they BELIEVE that FM is a 'real' condition- not a'psychosemantic' condition) have written this in their records! Instead they say I refuse to take medications, say I 'claim' to havereactions to the medication and they say I refuse to follow theiradvice. This is total opposite as I have tried every option that

hasbeen given to me (except I did refuse to have Botox injections). Ihonestly don't understand how doctors work in this state. Why treat apatient, give diagnosis and treatment options but not write thosedown? Why do they not write down what my reaction was to thetreatment option (i.e. why did I stop, how long did I try, etc)? Isthere some sort of law suits happening in this state that preventsdoctors from actually writing down what REALLY is said and done byBOTH patient and doctor? I was ALWAYS treated with respect, care andsincerity by ALL my CA doctors.. and guess what? Their recordsactually match what took place in the doctors office andwhat/where/how my treatment options were working for me!Sorry, I am so upset. I feel that, once again, I am having to defendmyself. How can I defend myself to SSD if my doctors have notdepicted my care accurately? I wish

I had my old life back.. I would not have given it up and Ididn't give it up until I was too sick to keep pushing myself. Myoriginal doctor was recommending for over 6 months to put me ondisability until I was finally too sick where I had to (early 2003-been sick since 2001). I worked full-time and was a highly soughtafter employee who was a type of 'guru' in that work environment. Then I had my own business doing photography and web design. On topof that I had a great social life, was taking classes and was in theprocess of saving for my first home. How in the world can I get my FM to go into remission/under some sortof control when the doctors that say they are going to help you lie toyour face? Any advice, suggestions, etc? Again I'm sorry I'm ranting and Iappreciate this group's

opinions.________________________________________________________________________

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