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I just have to share how exciting all of this information is for

me!! I was diagnosed in '98 with Papillary - I was 28 at the time

and nobody around me knew anything about this. It was a very

isolating experience. So many things happened to me that weren't ever

validated as part of the side effects of treatment. So for example,

I was told that my nausea the night of my first RAI treatment must

have been because I was catching the flu - just coincidence; I

developed salivary gland stones but that took going to the dentist

for a suspected abcess - to an internist who sent me to the ENT - who

when I told him I had papillary carcinoma a year prior, he said he

was sorry and asked which breast! No kidding! He had no knowledge

of RAI treatment and salivary glad relationship and my endo had never

shared any possibilities of this with me.

Anyway - this is so exciting to see so many people discussing the

same things that I only had my mother to talk with. There is a lot

of good information here!

Thanks,

Bridget

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