Re: Pain pump.(Patsy W)

[Guest guest]

((((((((Terry))))))) I just wanted to say that I am so sorry to hear about all

your pain. I hope you get results with the new pain doctor. that is not good

news about that doctor getting jail time for the pt dying. It is hard enough to

find doctors now that will treat pain, even for someone like me who is not in as

severe pain as you are.

Wishing you a happy and manageable holiday season. I will keep positive

thoughts for you finding good pain management.

Gentle hugs, Tami

--- Terry wrote:

>

> I need to start living again, So I would sure appreciate some info from

someone who uses the pain pump.

> If I could get a pump will it be the same as in the hosp? I would love to not

have to take so many pills but do they taper you off the oral meds or does the

med in the pump just take over?

[Guest guest]

that not many Docs are willing to treat me. I live in Ks. where we just had a

Doc get 30 yrs for treating pain " aggressively " and some patients died.

The media never tells the other side of the story. Namely, how many patients

died (suicide) because they could not get their pain adquately treated. Nor

does the media tell us how many patients die from schedule 3,4 or 5 drugs. The

" war on drugs " and media brain wash people to believe schedule 2 drugs are bad.

.

[Guest guest]

Hi Terry:

I will be happy to tell you about my pain pump and the great relief it has given

me.

I have Neuropathy in both my feet and legs. The pain is BRUTAL.

In June of this year I had a pain pump implant that has saved my life!!

I am amazed that more people in chronic pain do not get pain pumps. They are

safe. I never worry about mine.

The pump is about the size of a hocky puck and is implanted in your side just

below your rib cage and mine does protrude a bit but that is no biggie. Getting

rid of the pain is what is important.

Most Doctor start out with morphine in the pump but because I cannot take

morphine I have diladuid in mine. I still take oral pain meds for break through

pain. 3 Oxycodone a day when needed.

The Doctor will not take you off oral pain meds until you feel the pump is

helping enough without them. Then you will taper off them.

My pain pump has saved my life. My pain was always undertreated and my life was

a nightmare! I tried the SCS but all it did was tingle on TOP of my pain. Some

people have both an SCS and a pain pump but I do not know why. The pump will

take care of back and leg pain or even whole body pain.

A catheter runs from the pump to your spine and a constant drip of pain meds

bathe the spinal cord with medication. You will feel relief the first day you

have the implant. How much depends on the dose the Doctor starts you out on. You

do have to go in for increases if you need them and for refills. Refills are a

breeze, takes about 10 minutes.

Battery life is about 5 to 6 years before the pump must be replaced.

You will have a trial before the permanent implant.

A Neurosurgeon who does a lot of pain pumps implanted mine and also takes care

of it. You need to have a good relationship with your Doctor because you will be

seeing a lot of him/her.

Best of luck to you. If you have any questions please ask. I will be more than

happy to answer anyone.

Patsy W

In chronic_pain , stonycreek14u@...

> My question is about the post from " patsy w " about her pain pump implant.

> Any info would be appreciated.

> Thanks in advance

> Terry

[Guest guest]

Hi patsy,

Thats really interesting about the pain pump, sorry its 3am so i may not have

read it all correctly but how often does it dose into your spine and how much?

Is it automatic or do you have control over it? I dont personally know anyone in

the UK who has one to ask about their experience of it.

The pump sounds quite large and i'm really tiny and thin so i'm not sure how

much it would stick out. I did have my womb removed last year, and my appendix

and a third of my bowel removed when i was a child so i guess i have a bit extra

space in me to place one hehe. I'm going to mention it to my doc and see what

she thinks of them.

Thanks for the info, it sounds like a godsend for you.

Love,

Rach xxxx

[Guest guest]

Hi patsy,

Thats really interesting about the pain pump, sorry its 3am so i may not have

read it all correctly but how often does it dose into your spine and how much?

Is it automatic or do you have control over it? I dont personally know anyone in

the UK who has one to ask about their experience of it.

The pump sounds quite large and i'm really tiny and thin so i'm not sure how

much it would stick out. I did have my womb removed last year, and my appendix

and a third of my bowel removed when i was a child so i guess i have a bit extra

space in me to place one hehe. I'm going to mention it to my doc and see what

she thinks of them.

Thanks for the info, it sounds like a godsend for you.

Love,

Rach xxxx

[Guest guest]

Good point karen! The media does also not know about how chronic pain takes it

toll on the body physically and mentally. How over time untreated chronic pain

can lead to other health problems that require treatment.

I don't even tell many people what I take because I am tired of the looks and

comments.

Have a low pain holiday season. Hugs, Tami

>

>

>

> that not many Docs are willing to treat me. I live in Ks. where we just had a

Doc get 30 yrs for treating pain " aggressively " and some patients died.

>

> The media never tells the other side of the story. Namely, how many patients

died (suicide) because they could not get their pain adquately treated. Nor

does the media tell us how many patients die from schedule 3,4 or 5 drugs. The

" war on drugs " and media brain wash people to believe schedule 2 drugs are bad.

>

> .

>

[Guest guest]

> I don't even tell many people what I take because I am tired of the looks and

comments.

Do not tell people for you own safety, too. You do not want jumped by someone

trying to steal your meds.