Re: Introduction and a couple questions

[Guest guest]

Welcome to the group Alana

I have to say, having children and having Fibro is hard, I personally don't have children yet, as I am not married, but I have two sisters that have children and they are often at my place with them. Finding ways to explaine to a child that you're tired or sore is always a hard one. But the treatment for Fibro is different for everyone.

Most doctors I've spoken to have suggested light fitness for fibro patience. Usually a nice swim or even a short walk. Something to keep the blood flowing. I've tried that myself, the swimming seems to help, but the walking is out of the question. I've also noticed since being Diagnosed with Fibro back in 01 it seems that my energy level has gone down, now I've been told that is due to our lack of getting a full nights sleep, but sometimes I can nap in the middle of the day. Medication sometimes is the cause.

But at any rate, things will sometimes get better, being that you were just diagnosed it may take the doctor a few weeks to get the right regiment of medication diet and exercise so that you may still do things as normal as possible.

Good luck and welcome.

Hugs

Vicki/ Lady Vader

Group Co Owner Alana wrote:

Hello. My name is Alana, Im 29 and live in Ohio. I was just diagnosed with Fibromyalgia this afternoon. Ive always had periods of just not feeling well, but I havent felt well at all for the past 18 months...since my daughter was born. I went to the Dr a couple times...they checked my thyroid, told me I was probably just overwhelmed with 3 young children...etc. But the past couple months have been very bad...and my husband convinced me to go back to the Dr. I saw a different one today. While I was talking he just starting pressing parts of my back, I was in tears it hurt so bad. he told me I have fibro and recommended a book on alternative treatments.A lot of things make sense now....like never having enough energy to really play with my kids, or do things with my kids that other moms

do. I try really hard, but then crash SO hard. And then its hard to have friendships because when my friends come over with their kids and its chaotic, it takes SO much out of me. After I had my second son I was back in shape by 6 months post partum...I was training to compete in fitness, I felt awesome, could think clearly, had energy to spare. Then I was pregnant with dd and it was a miserable pregnancy and very painful and we ate take out and delivery all the time. After she was born we went vegan, and thats when my symptoms got worse and have continued to get worse. Is it possible that my diet is triggering things??? Im wondering if I should switch to a higher protein diet with grass fed meats, eggs and milk. Right now it just really hit me that I may never be able to really pursue fitness again, or be able to do the things with my children that I really want

to. Im about 30lbs overweight right now because I havent been able to really exercise this past year...Ive tried but then felt fluish for days after. Anyway....thanks for "listening"Alana

Vicki/Lady Vader

http://groups.yahoo.com/group/LadyVadersWritersCorner/?yguid=69932999

http://duttonandmcmahon.weddings.com

www.freewebs.com/victoriadutton __________________________________________________

[Guest guest]

Alana,

Welcome.

From what I have seen, there are 2 ways to help

yourself-one is research, learn about your condition,

there are wonderful sites on the web that can help, I

can send you these links to help with your research,

they are very informative. The second thing is a

little more difficult, and that is, to find a doctor

that understands what you are going through. My

clients go to Neurologists. One of my clients has gone

to a PsychNeuroEndocrinologist. He's very good and has

helped her immensely. I hope I have helped,

Aradia

--- Lady Vader/ Dutton

wrote:

> Welcome to the group Alana

>

> I have to say, having children and having Fibro is

> hard, I personally don't have children yet, as I am

> not married, but I have two sisters that have

> children and they are often at my place with them.

> Finding ways to explaine to a child that you're

> tired or sore is always a hard one. But the

> treatment for Fibro is different for everyone.

>

> Most doctors I've spoken to have suggested light

> fitness for fibro patience. Usually a nice swim or

> even a short walk. Something to keep the blood

> flowing. I've tried that myself, the swimming seems

> to help, but the walking is out of the question.

> I've also noticed since being Diagnosed with Fibro

> back in 01 it seems that my energy level has gone

> down, now I've been told that is due to our lack of

> getting a full nights sleep, but sometimes I can nap

> in the middle of the day. Medication sometimes is

> the cause.

>

> But at any rate, things will sometimes get better,

> being that you were just diagnosed it may take the

> doctor a few weeks to get the right regiment of

> medication diet and exercise so that you may still

> do things as normal as possible.

>

> Good luck and welcome.

>

> Hugs

> Vicki/ Lady Vader

> Group Co Owner

>

> Alana wrote:

> Hello. My name is Alana, Im 29 and live in Ohio. I

> was just

> diagnosed with Fibromyalgia this afternoon. Ive

> always had periods

> of just not feeling well, but I havent felt well at

> all for the past

> 18 months...since my daughter was born. I went to

> the Dr a couple

> times...they checked my thyroid, told me I was

> probably just

> overwhelmed with 3 young children...etc. But the

> past couple months

> have been very bad...and my husband convinced me to

> go back to the

> Dr. I saw a different one today. While I was

> talking he just

> starting pressing parts of my back, I was in tears

> it hurt so bad.

> he told me I have fibro and recommended a book on

> alternative

> treatments.

>

> A lot of things make sense now....like never having

> enough energy to

> really play with my kids, or do things with my kids

> that other moms

> do. I try really hard, but then crash SO hard. And

> then its hard

> to have friendships because when my friends come

> over with their

> kids and its chaotic, it takes SO much out of me.

>

> After I had my second son I was back in shape by 6

> months post

> partum...I was training to compete in fitness, I

> felt awesome, could

> think clearly, had energy to spare. Then I was

> pregnant with dd and

> it was a miserable pregnancy and very painful and we

> ate take out

> and delivery all the time. After she was born we

> went vegan, and

> thats when my symptoms got worse and have continued

> to get worse.

> Is it possible that my diet is triggering things???

> Im wondering if

> I should switch to a higher protein diet with grass

> fed meats, eggs

> and milk.

>

> Right now it just really hit me that I may never be

> able to really

> pursue fitness again, or be able to do the things

> with my children

> that I really want to. Im about 30lbs overweight

> right now because

> I havent been able to really exercise this past

> year...Ive tried but

> then felt fluish for days after.

> Anyway....thanks for " listening "

> Alana

>

>

>

>

>

>

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

>

>

>

[Guest guest]

> Welcome to the group Alana

>

> I have to say, having children and having Fibro is hard, I

personally don't have children yet, as I am not married, but I have

two sisters that have children and they are often at my place with

them. Finding ways to explaine to a child that you're tired or sore

is always a hard one. But the treatment for Fibro is different for

everyone.

>

> Most doctors I've spoken to have suggested light fitness for fibro

patience. Usually a nice swim or even a short walk. Something to

keep the blood flowing. I've tried that myself, the swimming seems

to help, but the walking is out of the question. I've also noticed

since being Diagnosed with Fibro back in 01 it seems that my energy

level has gone down, now I've been told that is due to our lack of

getting a full nights sleep, but sometimes I can nap in the middle

of the day. Medication sometimes is the cause.

>

> But at any rate, things will sometimes get better, being that you

were just diagnosed it may take the doctor a few weeks to get the

right regiment of medication diet and exercise so that you may still

do things as normal as possible.

>

> Good luck and welcome.

>

> Hugs

> Vicki/ Lady Vader

> Group Co Owner

>

When my Dr pressed all the tender points on me, he looked at me and

said you have Fibro. Then he actually said " Its not a satisfactory

diagnosis for me or for you, because there is no way to fix it " he

then recommended that I look into alternative therapy because I

might find more answers there. Im not big on taking medicines....I

had 3 un medicated childbirths, and dont like to take OTC

medicines. He told me I should take a yoga, pilates, or fibro water

class or some other form of gentle exercise. What is so frustrating,

is between my 2nd and 3rd child I felt SO good, I was eating a clean

low carb diet, exercising and weight lifting daily, and was about to

begin training to compete in fitness...then I got pregnant with my

daughter and was so sick the whole time we ate take out and delivery

food. After she was born, we went vegan...felt great at first, but

have been feeling progressively worse...she is 19 mo now. Im

wondering if i do better on a protein based diet?

[Guest guest]

How do

I find a PsychNeuroEndocrinologist

I’m

in Detroit, mi

_ .---. _

(c/ @o@ \c)

( (_I_) )

..``---''.

/ (§) \

(_) `-' (_)

\ Y /

(___|___)

Samsoness

From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of Aradia

Sent: Friday, September 16, 2005

10:32 AM

To: Fibromyalgia_Support_Group

Subject: Re: Introduction

and a couple questions

Alana,

Welcome.

From what I have seen, there are 2 ways to help

yourself-one is research, learn about your

condition,

there are wonderful sites on the web that can

help, I

can send you these links to help with your

research,

they are very informative. The second thing is a

little more difficult, and that is, to find a doctor

that understands what you are going through. My

clients go to Neurologists. One of my clients has

gone

to a PsychNeuroEndocrinologist. He's very good and

has

helped her immensely. I hope I have helped,

Aradia

--- Lady Vader/ Dutton

wrote:

> Welcome to the group Alana

>

> I have to say, having children and having

Fibro is

> hard, I personally don't have children yet,

as I am

> not married, but I have two sisters that have

> children and they are often at my place with

them.

> Finding ways to explaine to a child that

you're

> tired or sore is always a hard one. But the

> treatment for Fibro is different for

everyone.

>

> Most doctors I've spoken to have suggested

light

> fitness for fibro patience. Usually a nice

swim or

> even a short walk. Something to keep the

blood

> flowing. I've tried that myself, the swimming

seems

> to help, but the walking is out of the

question.

> I've also noticed since being Diagnosed with

Fibro

> back in 01 it seems that my energy level has

gone

> down, now I've been told that is due to our

lack of

> getting a full nights sleep, but sometimes I

can nap

> in the middle of the day. Medication

sometimes is

> the cause.

>

> But at any rate, things will sometimes get

better,

> being that you were just diagnosed it may

take the

> doctor a few weeks to get the right regiment

of

> medication diet and exercise so that you may

still

> do things as normal as possible.

>

> Good luck and welcome.

>

> Hugs

> Vicki/ Lady Vader

> Group Co Owner

>

> Alana wrote:

> Hello. My name is Alana, Im 29 and live in Ohio. I

> was just

> diagnosed with Fibromyalgia this

afternoon. Ive

> always had periods

> of just not feeling well, but I havent felt

well at

> all for the past

> 18 months...since my daughter was born.

I went to

> the Dr a couple

> times...they checked my thyroid, told me I

was

> probably just

> overwhelmed with 3 young

children...etc. But the

> past couple months

> have been very bad...and my husband convinced

me to

> go back to the

> Dr. I saw a different one today. While

I was

> talking he just

> starting pressing parts of my back, I was in

tears

> it hurt so bad.

> he told me I have fibro and recommended a

book on

> alternative

> treatments.

>

> A lot of things make sense now....like never

having

> enough energy to

> really play with my kids, or do things with

my kids

> that other moms

> do. I try really hard, but then crash

SO hard. And

> then its hard

> to have friendships because when my friends

come

> over with their

> kids and its chaotic, it takes SO much out of

me.

>

> After I had my second son I was back in shape

by 6

> months post

> partum...I was training to compete in

fitness, I

> felt awesome, could

> think clearly, had energy to spare.

Then I was

> pregnant with dd and

> it was a miserable pregnancy and very painful

and we

> ate take out

> and delivery all the time. After she

was born we

> went vegan, and

> thats when my symptoms got worse and have

continued

> to get worse.

> Is it possible that my diet is triggering

things???

> Im wondering if

> I should switch to a higher protein diet with

grass

> fed meats, eggs

> and milk.

>

> Right now it just really hit me that I may

never be

> able to really

> pursue fitness again, or be able to do the

things

> with my children

> that I really want to. Im about

30lbs overweight

> right now because

> I havent been able to really exercise this

past

> year...Ive tried but

> then felt fluish for days after.

> Anyway....thanks for " listening "

> Alana

>

>

>

>

>

>

>

> 1. While it is wonderful to share our

experiences

> with everyone on the list as to what

treatments do

> and don't work for us, pls always check with

your

> dr. Some treatments are dangerous when

given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation

(doesn't

> matter what it is) pls don't be afraid to ask

for

> help. It is the first step to trying to

make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one

member

> to be feeling bad at the same time when it

comes to

> flares and b/c of that potentially take

something

> another member says the wrong way. And

that

> includes the things that one member may find

funny

> (even if it's laughing at fibro itself) even

though

> we who deal with illness whether one such as

fibro

> or multiple illnesses try to keep a sense of

humor.

>

> 5. Pls let's be gentle with each other, and

if you

> are having a bad day pls let us know so that

we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

>

>

>

>

[Guest guest]

Alana, I am new to the group so I hope I am doing this right. I

had fibromyalgia for eight years. I am now cured. My diet was the

reason for my pain. Let me explain. I have always been allergic to

dairy. About 8 years ago after so much stomach trouble I went to

see a doctor when I lived in Texas and he said maybe your intolerant

to dairy. I thought okay I'll give up dairy and start drinking soy

milk.I also started eating Tofu and a lot of stuff with soy in it.

I also was in great shape. I worked out 6 days a week and was the

size I wanted to be. However over the 8 years I started having a

lot of muscle pain, brain fog, constant depression, forgettig words

ect... Two years ago however I went to culinary school, even though

I was in constant pain. Anyway, I worked for about three months and

I was hurting so bad I thought I can't take this any more. I went

to a naturopathic doctor and she told me to do a food elimination

diet. I thought that is just too much work I will get my food

allergies tested. Sure enough I was allergic to soy, and dairy plus

a few nuts and mushrooms. Once I quit eating soy and dairy all my

pain went away. I am now pain free for 6 months! The problem is

that soy is in everything, even tuna! I sure am glad I have

culinary training; it helps me with recipe substitutions. I have

even created a vegan cheese sauce that doesn't have soy in it. I

intend to market, unfortunately I am allergic to the nuts it is made

from but hopefully others won't be. Take care and I hope this

helps, Loretta

> Hello. My name is Alana, Im 29 and live in Ohio. I was just

> diagnosed with Fibromyalgia this afternoon. Ive always had

periods

> of just not feeling well, but I havent felt well at all for the

past

> 18 months...since my daughter was born. I went to the Dr a couple

> times...they checked my thyroid, told me I was probably just

> overwhelmed with 3 young children...etc. But the past couple

months

> have been very bad...and my husband convinced me to go back to the

> Dr. I saw a different one today. While I was talking he just

> starting pressing parts of my back, I was in tears it hurt so

bad.

> he told me I have fibro and recommended a book on alternative

> treatments.

>

> A lot of things make sense now....like never having enough energy

to

> really play with my kids, or do things with my kids that other

moms

> do. I try really hard, but then crash SO hard. And then its hard

> to have friendships because when my friends come over with their

> kids and its chaotic, it takes SO much out of me.

>

> After I had my second son I was back in shape by 6 months post

> partum...I was training to compete in fitness, I felt awesome,

could

> think clearly, had energy to spare. Then I was pregnant with dd

and

> it was a miserable pregnancy and very painful and we ate take out

> and delivery all the time. After she was born we went vegan, and

> thats when my symptoms got worse and have continued to get worse.

> Is it possible that my diet is triggering things??? Im wondering

if

> I should switch to a higher protein diet with grass fed meats,

eggs

> and milk.

>

> Right now it just really hit me that I may never be able to really

> pursue fitness again, or be able to do the things with my children

> that I really want to. Im about 30lbs overweight right now

because

> I havent been able to really exercise this past year...Ive tried

but

> then felt fluish for days after.

> Anyway....thanks for " listening "

> Alana

[Guest guest]

Loretta,

Is soy listed on the tuna cans?

I can't believe its in tuna unless packed in oil? I only use the water packed.

/Dachsies for Life

[Guest guest]

, I only eat water packed tuna too and yes soy is listed on the

cans. I have to go to our local New Seasons to get tuna which has

more small company products. Check it out when you go shopping

next time. Lecithin is usally soy derived so if foods have that

listed I stay away from them too. I went to an allergy, asthama and

dermetologist clinic to have my foods tested because my insurance

paid for it. One can also go to a naturopathic doctor to get test.

I think they do blood test which covers more allergies. Here in

Oregon the cost is about 200 dollars out of pocket. Hope you have a

good day today. Loretta

> Loretta,

> Is soy listed on the tuna cans?

> I can't believe its in tuna unless packed in oil? I only use the

water

> packed.

>

>

>

> /Dachsies for Life

[Guest guest]

Yes Alana, If you made a drastic diet change and eliminated meat,

otherwise known as protein it could be responcible for your apparent

decline in health. People with fibromyalgia dont process nutients

properly, have problems converting the foods we eat and then our

muscles also have trouble using those nutrients. So its important to

continue eating protein and to take vitamin supplements. A

vegatarian diet is wonderful for people whose bodys work correctly.

But if our bodies worked correctly we wouldnt have fibromyalgia.

deb

[Guest guest]

>

>

> > Loretta,

> > Is soy listed on the tuna cans?

> > I can't believe its in tuna unless packed in oil? I only use

the

> water

> > packed.

> >

> >

> >

> > /Dachsies for Life

I was reading tuna cans at the store yesterday, and was amazed! I

finally found some that is packed just in olive oil, nothing else,

and was reasonably priced....some were like 4$ a can!

Ok....Im not vegan anymore. i saw my chiro on Friday...first visit,

and he told me to get the meat back in my diet YESTERDAY! LOL! I

have to admit...that the brain fog has lifted, Im feeling a bit more

energy and feel better than I have for the first time in over a

year. He also told me to take CoQ10 and fish oils along with my

multi vitamins. The chiro visit felt so good. It was a little

nervewracking having someone yanking and pushing all over my

body...but afterwards my muscles were so relaxed and I just felt

good. He also did some sort of light therapy where he put this thing

on all the tender spots that I have. I think its photon light

therapy? He said it helps heal inflammation. He worked on me for

over an hour, my back was a mess.