Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 , I live in London (N6) and have just joined the group! I have my first appointment with Steve Mottram tomorrow! who is 13 months has plagiocepahly. I would love to hear how you're doing with the STARband. --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 , Just wanted to welcome you to our group. I'm a brachy parent as well and have been down the same road that you are on just a few short months ago. My son, , was born with a perfect head, but it gradually flattened over the first few months of his life because of back sleeping, overuse of bouncy seat and swing. After about four months of agressive repositioning my husband and I decided to go with the DOCband. We wanted to make sure his head was really going to round out. Active bands seem to be the priciest, but really they do seem to work the quickest. Well worth the investment! There are quite a few UK members here and it looks like you've been in touch with some already. Just wanted to say good luck with everything. Toby is a cute little guy. I'm sure he'll do just fine with the STARband. Crista-Grayslake, IL Mom to D-11 mo old brachy DOCgrad --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 ..... I just realised ..we both have our first appointment with Steve Mottram tomorrow! What time is your appointment? I will be there (10 Harley Street) at 3 PM! --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Hello Welcome! I'm so glad that you have some local support too that you can *really* meet! You will not regret your deicision and Toby will have a much rounder head soon. GL tomorrow and please let us know if you have any questions or concerns. Toby has a good mum! Sue Colin F. 11 mos, brachy, rt plagio STARband 6/29 Buffalo, NY --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Hi , Toby is so handsome. You will be glad in the future that you got him a helmet. I also questioned having my daughter banded, but I didn't want to regret not doing anything years down the road. Good luck to both of you. - adorable 's mom (STARbanded) --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Hi , Toby, (I love that name) is a doll, thanks for sharing his pics with us. Let us know how you make out at your appt tomorrow. Good luck. --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Hi : Toby is adorable!! Good luck in your appointment tomorrow. Please let us know how it goes. We will be heard as a back up to support you guys J Re: New member - first appointment tomorrow Hi , Toby, (I love that name) is a doll, thanks for sharing his pics with us. Let us know how you make out at your appt tomorrow. Good luck. --- In Plagiocephaly , " claire_reveley " <claire@c...> wrote: > Just thought I'd take a moment to introduce myself, as I'm a new > member. > > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment. > > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age. > > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now. > > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it. > > I've put some photos of Toby in the " Our Plagio kids " folder, which > will now serve as his before photos. > > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too? > > > Toby, 9.5 months old, brachycephalic > Starting the STARband process tomorrow! For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 hi ! I second - Toby is a handsome little fellow. GL with your appointment. monica mom to na DOC Grad SC <angembal@...> wrote: Hi ,Toby is so handsome. You will be glad in the future that you got him a helmet. I also questioned having my daughter banded, but I didn't want to regret not doing anything years down the road. Good luck to both of you.- adorable 's mom (STARbanded)> Just thought I'd take a moment to introduce myself, as I'm a new > member.> > I'm , 37 and Mum to Toby, who's 9.5 months old. He has > brachycephaly and I've been concerned about it for some time. All I > ever hear from health visitors and others though is that it would > round out when he started to sit up and not sleep on his back. Well, > he's been doing that for some time now, and I've not seen any > improvement, so I've taken the decision to start treatment.> > Thanks to Hannah (Mum to Lucia), I've got the info for a couple of > specialists in the UK, and I've decided I want to go with the > STARband, because it's active and will work better for Toby bearing > in mind his age.> > I've managed to get an appointment with Steve Mottram in London > tomorrow, so there's not really any going back now.> > It's a very expensive process it seems. £150 for the assessment, > scan and report; then £1500 for the whole treatment - both plus VAT I > think too. As it's not available on the NHS, then I'm just going to > have to spend that rainy day money after all - at the same time as > hoping we win the lottery! I'm certain in my own mind though that > the money will be worth it.> > I've put some photos of Toby in the "Our Plagio kids" folder, which > will now serve as his before photos.> > I'm hoping to meet up with Hannah and with Jo (Mum to Cammy) soon so > that we can share experiences. Are there any others from the UK out > there too?> > > Toby, 9.5 months old, brachycephalic> Starting the STARband process tomorrow!For more plagio info Quote Link to comment Share on other sites More sharing options...
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