Re: Update on our first appointment (UK, STARband)

[Guest guest]

Hi

I've just written you a reply offsite- but when I read about the

colour co-ordination problem (or not), I had to laugh. My husband

wanted to paint Lucia's helmet pink, and I seriously spent about 15

minutes trying to explain to him why that wouldn't go with her

orange outfits... In the end I was so lazy I just stuck multi-

coloured butterflies on it and now it goes (or doesn't go) with

everything...

Take care-catch up with you soon

Hannah (Mum to Lucia, London, UK)

Plagio, passive helmet, 4/7/04

--- In Plagiocephaly , " claire_reveley " <claire@c...>

wrote:

> Well, we had our appointment today and Toby's brachy is classed as

> severe. His head width is 98% of the length (apparently an ideal

> head should be 78%), so his head is very nearly square, bless! He

> only has an asymmetry of 6mm - but I didn't expect him to be very

> asymmetrical though.

>

> Steve Mottram told us we could hope for a 50% correction, and he

> thinks it should take about four months.

>

> Anyway, we're back in two weeks to have it fitted, so no going

back

> now! In fact, I'm rather looking forward to it all now, as the

> sooner we start, the sooner we'll be finished.

>

> My husband wouldn't let me have the plain old white band, so Toby

> will have a blue one with cartoon aliens in spaceships on it!

> There's no accounting for taste. I did try to explain to him that

> blue just won't go with some of his khaki and beige outfits, but

he's

> a man, so he doesn't understand. ;o))

>

> Sorry I didn't get to meet you, and - hope

your

> appointment went well. And a big hello to Max's Mum (sorry I

didn't

> catch your name) and thanks for letting us see Max in his band.

He

> looked so happy in it!

>

> , UK

> (Toby - 9.5 months, severe brachy, starting with a STARband in two

> weeks' time)

[Guest guest]

Hi ,

I feel exactly the same..just get on with it as soon as possible. I

did tell Steve Mottram I wanted to have a chat with my husband (he

couldn't come to the appointment), sleep over it and call him

tomorrow for the go ahead. I really appreciated that Steve Mottram

was not pushy at all.

's

1. Cephalic ratio: 0.835

2. Radial Symetry Index - RSI: 78.6

3. Diff. bet obliques at 30 deg: 19.8 mm (which from what I

understand is a severe plagiocephaly)

Does somebody know if there is somewhere a table available that

explains the results of the scan. Steve Mottram did explain

everything..but it was a bit hard to concentrate all the time with

who was very keen to say bye-bye!

I was so impressed with Max's photos...I think we're going to go for

the Fly and Drive too.

(Mum to , 14 months, plagiocephaly, STARband to be fitted in

two weeks time)

--- In Plagiocephaly , " claire_reveley " <claire@c...>

wrote:

> Well, we had our appointment today and Toby's brachy is classed as

> severe. His head width is 98% of the length (apparently an ideal

> head should be 78%), so his head is very nearly square, bless! He

> only has an asymmetry of 6mm - but I didn't expect him to be very

> asymmetrical though.

>

> Steve Mottram told us we could hope for a 50% correction, and he

> thinks it should take about four months.

>

> Anyway, we're back in two weeks to have it fitted, so no going back

> now! In fact, I'm rather looking forward to it all now, as the

> sooner we start, the sooner we'll be finished.

>

> My husband wouldn't let me have the plain old white band, so Toby

> will have a blue one with cartoon aliens in spaceships on it!

> There's no accounting for taste. I did try to explain to him that

> blue just won't go with some of his khaki and beige outfits, but

he's

> a man, so he doesn't understand. ;o))

>

> Sorry I didn't get to meet you, and - hope your

> appointment went well. And a big hello to Max's Mum (sorry I

didn't

> catch your name) and thanks for letting us see Max in his band. He

> looked so happy in it!

>

> , UK

> (Toby - 9.5 months, severe brachy, starting with a STARband in two

> weeks' time)

[Guest guest]

Hi

Here are Toby's measurements for a comparison:

1. Cephalic ratio: 0.956 (this is the one Steve told me was 98% - must just be a slight difference between "manual" measuring and the scan)

2. Radial Symmetry index: 27.1 (I can't remember what this measurement shows)

3. Diff between obliques - 7.8mm (again, a slight difference to the manual measurement of 6mm)

, UK

(and Toby, 9.5 months old, severe brachy, two weeks to fitting of a STARband)

-----Original Message-----From: hessstephanie [mailto:hessstephanie@...]Sent: 15 September 2004 21:26Plagiocephaly Subject: Re: Update on our first appointment (UK, STARband)Hi ,I feel exactly the same..just get on with it as soon as possible. I did tell Steve Mottram I wanted to have a chat with my husband (he couldn't come to the appointment), sleep over it and call him tomorrow for the go ahead. I really appreciated that Steve Mottram was not pushy at all.'s1. Cephalic ratio: 0.8352. Radial Symetry Index - RSI: 78.63. Diff. bet obliques at 30 deg: 19.8 mm (which from what I understand is a severe plagiocephaly) Does somebody know if there is somewhere a table available that explains the results of the scan. Steve Mottram did explain everything..but it was a bit hard to concentrate all the time with who was very keen to say bye-bye!I was so impressed with Max's photos...I think we're going to go for the Fly and Drive too. (Mum to , 14 months, plagiocephaly, STARband to be fitted in two weeks time)> Well, we had our appointment today and Toby's brachy is classed as > severe. His head width is 98% of the length (apparently an ideal > head should be 78%), so his head is very nearly square, bless! He > only has an asymmetry of 6mm - but I didn't expect him to be very > asymmetrical though.> > Steve Mottram told us we could hope for a 50% correction, and he > thinks it should take about four months.> > Anyway, we're back in two weeks to have it fitted, so no going back > now! In fact, I'm rather looking forward to it all now, as the > sooner we start, the sooner we'll be finished.> > My husband wouldn't let me have the plain old white band, so Toby > will have a blue one with cartoon aliens in spaceships on it! > There's no accounting for taste. I did try to explain to him that > blue just won't go with some of his khaki and beige outfits, but he's > a man, so he doesn't understand. ;o))> > Sorry I didn't get to meet you, and - hope your > appointment went well. And a big hello to Max's Mum (sorry I didn't > catch your name) and thanks for letting us see Max in his band. He > looked so happy in it!> > , UK> (Toby - 9.5 months, severe brachy, starting with a STARband in two > weeks' time)For more plagio info

[Guest guest]

Hey ,

Well you are on your way! Steve sounds like a great ortho from the

posts we've had recently. Nice to see some plagio support in the

UK, finally! Keep us posted .

Natasha

--- In Plagiocephaly , " claire_reveley " <claire@c...>

wrote:

> Well, we had our appointment today and Toby's brachy is classed as

> severe. His head width is 98% of the length (apparently an ideal

> head should be 78%), so his head is very nearly square, bless! He

> only has an asymmetry of 6mm - but I didn't expect him to be very

> asymmetrical though.

>

> Steve Mottram told us we could hope for a 50% correction, and he

> thinks it should take about four months.

>

> Anyway, we're back in two weeks to have it fitted, so no going

back

> now! In fact, I'm rather looking forward to it all now, as the

> sooner we start, the sooner we'll be finished.

>

> My husband wouldn't let me have the plain old white band, so Toby

> will have a blue one with cartoon aliens in spaceships on it!

> There's no accounting for taste. I did try to explain to him that

> blue just won't go with some of his khaki and beige outfits, but

he's

> a man, so he doesn't understand. ;o))

>

> Sorry I didn't get to meet you, and - hope

your

> appointment went well. And a big hello to Max's Mum (sorry I

didn't

> catch your name) and thanks for letting us see Max in his band.

He

> looked so happy in it!

>

> , UK

> (Toby - 9.5 months, severe brachy, starting with a STARband in two

> weeks' time)

[Guest guest]

Hi !

Colin was 98% too! LOL I look forward to hearing about Toby's

progress. Thank you for sharing. You are on your way. P.S. Men just

do *not* get it.

Sue

and Colin F., almost 1 yr.

STARband 6/29-9/15/04 brachy, rt plagio

Buffalo, NY

--- In Plagiocephaly , " claire_reveley " <claire@c...>

wrote:

> Well, we had our appointment today and Toby's brachy is classed as

> severe. His head width is 98% of the length (apparently an ideal

> head should be 78%), so his head is very nearly square, bless! He

> only has an asymmetry of 6mm - but I didn't expect him to be very

> asymmetrical though.

>

> Steve Mottram told us we could hope for a 50% correction, and he

> thinks it should take about four months.

>

> Anyway, we're back in two weeks to have it fitted, so no going back

> now! In fact, I'm rather looking forward to it all now, as the

> sooner we start, the sooner we'll be finished.

>

> My husband wouldn't let me have the plain old white band, so Toby

> will have a blue one with cartoon aliens in spaceships on it!

> There's no accounting for taste. I did try to explain to him that

> blue just won't go with some of his khaki and beige outfits, but

he's

> a man, so he doesn't understand. ;o))

>

> Sorry I didn't get to meet you, and - hope your

> appointment went well. And a big hello to Max's Mum (sorry I

didn't

> catch your name) and thanks for letting us see Max in his band. He

> looked so happy in it!

>

> , UK

> (Toby - 9.5 months, severe brachy, starting with a STARband in two

> weeks' time)