Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi Jen, I'm so glad to hear that Miles' surgery went so well. I hope you're able to get his STARband adjusted ASAP to do away with those red spots. Maybe it's a sign he's had a big growth spurt! , mom to Hannah, DOCgrad 7/29 Cape Cod, Ma > Just wanted to update my story. Haven't been able to get on in quite > a while because we've been so busy. Miles had his surgery (unrelated > to plagio) on Aug. 30 and came through with flying colors. I went > back to work after my maternity leave that Wednesday. I've been > going off and on because of his surgery follow ups and his helmet. > We got the helmet a week after the surgery. We were faced with > making a choice on the helmet - Starband was covered, but we wanted > the DOC. Well, we went with the Starband because he will also be > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > identify any problems and direct the orthotist. > > So...we have our Starband. Have been wearing it for about a week > with no problems. Dr. Hall said yesterday that it was made nice and > symetrically though he had 2 red marks today that weren't going > away. They are the first he's had and I have to call the orthotist. > Gee, I guess I spoke too soon about no problems! But his sleep > habits haven't changed (in fact,they're better - the surgery really > messed him up) Plus he's in daycare now but they are really good it > seems with taking care and checking his head. > > Well, one week down, how many to go? I could swear I see some > correction already but I'm sure it's my imagination. The thing I > miss most is his blonde hair and cuddling his head. > > Oh...and here's a good sign. The first day I took him out with it, > I got 2 remarks - both from people whose children had been banded! > So to those still to be banded - don't worry the support is out there! > > Now that I'm at work and next to the computer, it'll be easier to > post! Thanks for all the help! > > JEN in NJ > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Lol...a growth spurt overnight...anything's possible with this bruiser! > > Just wanted to update my story. Haven't been able to get on in > quite > > a while because we've been so busy. Miles had his surgery > (unrelated > > to plagio) on Aug. 30 and came through with flying colors. I went > > back to work after my maternity leave that Wednesday. I've been > > going off and on because of his surgery follow ups and his > helmet. > > We got the helmet a week after the surgery. We were faced with > > making a choice on the helmet - Starband was covered, but we > wanted > > the DOC. Well, we went with the Starband because he will also be > > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > > identify any problems and direct the orthotist. > > > > So...we have our Starband. Have been wearing it for about a week > > with no problems. Dr. Hall said yesterday that it was made nice > and > > symetrically though he had 2 red marks today that weren't going > > away. They are the first he's had and I have to call the > orthotist. > > Gee, I guess I spoke too soon about no problems! But his sleep > > habits haven't changed (in fact,they're better - the surgery > really > > messed him up) Plus he's in daycare now but they are really good > it > > seems with taking care and checking his head. > > > > Well, one week down, how many to go? I could swear I see some > > correction already but I'm sure it's my imagination. The thing I > > miss most is his blonde hair and cuddling his head. > > > > Oh...and here's a good sign. The first day I took him out with > it, > > I got 2 remarks - both from people whose children had been > banded! > > So to those still to be banded - don't worry the support is out > there! > > > > Now that I'm at work and next to the computer, it'll be easier to > > post! Thanks for all the help! > > > > JEN in NJ > > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Jen~ I'm glad it's going well and you decided on the starband, I'm sure he will do great! The surgery must have been difficult for all of you. started daycare 2 weeks ago and is doing well, though I feel like everyone sees him as the " helmet baby " . I miss him like crazy. I have also met several people who have been banded. Good luck! Jenn & in NJ doc banded Aug. 13 > Just wanted to update my story. Haven't been able to get on in quite > a while because we've been so busy. Miles had his surgery (unrelated > to plagio) on Aug. 30 and came through with flying colors. I went > back to work after my maternity leave that Wednesday. I've been > going off and on because of his surgery follow ups and his helmet. > We got the helmet a week after the surgery. We were faced with > making a choice on the helmet - Starband was covered, but we wanted > the DOC. Well, we went with the Starband because he will also be > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > identify any problems and direct the orthotist. > > So...we have our Starband. Have been wearing it for about a week > with no problems. Dr. Hall said yesterday that it was made nice and > symetrically though he had 2 red marks today that weren't going > away. They are the first he's had and I have to call the orthotist. > Gee, I guess I spoke too soon about no problems! But his sleep > habits haven't changed (in fact,they're better - the surgery really > messed him up) Plus he's in daycare now but they are really good it > seems with taking care and checking his head. > > Well, one week down, how many to go? I could swear I see some > correction already but I'm sure it's my imagination. The thing I > miss most is his blonde hair and cuddling his head. > > Oh...and here's a good sign. The first day I took him out with it, > I got 2 remarks - both from people whose children had been banded! > So to those still to be banded - don't worry the support is out there! > > Now that I'm at work and next to the computer, it'll be easier to > post! Thanks for all the help! > > JEN in NJ > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi Jen, I'm happy to hear that Miles surgery went smoothly. Sounds like his band is working out well. Are you going in for an adjustment for the spots? Natasha -- In Plagiocephaly , " lovemybeetle " <greenbeetle@e...> wrote: > Just wanted to update my story. Haven't been able to get on in quite > a while because we've been so busy. Miles had his surgery (unrelated > to plagio) on Aug. 30 and came through with flying colors. I went > back to work after my maternity leave that Wednesday. I've been > going off and on because of his surgery follow ups and his helmet. > We got the helmet a week after the surgery. We were faced with > making a choice on the helmet - Starband was covered, but we wanted > the DOC. Well, we went with the Starband because he will also be > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > identify any problems and direct the orthotist. > > So...we have our Starband. Have been wearing it for about a week > with no problems. Dr. Hall said yesterday that it was made nice and > symetrically though he had 2 red marks today that weren't going > away. They are the first he's had and I have to call the orthotist. > Gee, I guess I spoke too soon about no problems! But his sleep > habits haven't changed (in fact,they're better - the surgery really > messed him up) Plus he's in daycare now but they are really good it > seems with taking care and checking his head. > > Well, one week down, how many to go? I could swear I see some > correction already but I'm sure it's my imagination. The thing I > miss most is his blonde hair and cuddling his head. > > Oh...and here's a good sign. The first day I took him out with it, > I got 2 remarks - both from people whose children had been banded! > So to those still to be banded - don't worry the support is out there! > > Now that I'm at work and next to the computer, it'll be easier to > post! Thanks for all the help! > > JEN in NJ > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi Jen, I'm in NJ, too (Bedminster). Where did you get your Starband (i.e. what city?) leigh Will 4/11/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 JEN! I'm so happy to hear it. It's sounds like you're off to a great start. Sucks to be back at work, huh? But having more computer time is a GREAT silver lining. Well Colin started at 9 mos. old and we stopped 11 wks. later. I know you shouldn't compare though and I would HIGHLY recommend NOT having a deadline in your head bcz it makes it harder (in my opinion)on you and others you might tell. Kind of like your e.d.d. when everyone says " is the baby HERE YET?!?! " So who knows, could be longer, could be shorter but the important thing is he is rounding out nicely as we speak!!! I'm glad it is going so well bcz it makes it so much better for you (sigh of relief). GL and keep us posted. Sue and Colin F., almost 1 yr. STARband 6/29-9/15/04 brachy, rt plagio Buffalo, NY > Just wanted to update my story. Haven't been able to get on in quite > a while because we've been so busy. Miles had his surgery (unrelated > to plagio) on Aug. 30 and came through with flying colors. I went > back to work after my maternity leave that Wednesday. I've been > going off and on because of his surgery follow ups and his helmet. > We got the helmet a week after the surgery. We were faced with > making a choice on the helmet - Starband was covered, but we wanted > the DOC. Well, we went with the Starband because he will also be > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > identify any problems and direct the orthotist. > > So...we have our Starband. Have been wearing it for about a week > with no problems. Dr. Hall said yesterday that it was made nice and > symetrically though he had 2 red marks today that weren't going > away. They are the first he's had and I have to call the orthotist. > Gee, I guess I spoke too soon about no problems! But his sleep > habits haven't changed (in fact,they're better - the surgery really > messed him up) Plus he's in daycare now but they are really good it > seems with taking care and checking his head. > > Well, one week down, how many to go? I could swear I see some > correction already but I'm sure it's my imagination. The thing I > miss most is his blonde hair and cuddling his head. > > Oh...and here's a good sign. The first day I took him out with it, > I got 2 remarks - both from people whose children had been banded! > So to those still to be banded - don't worry the support is out there! > > Now that I'm at work and next to the computer, it'll be easier to > post! Thanks for all the help! > > JEN in NJ > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 Jen, Miles is liking daycare too, though he's only gone 2 days so far. He's the only one who DOESN'T cry (one little girl cries ALL day, they say). It's a tiny bit easier to leave a baby who is smiling and happy, but not much! He is happy to see me when I come in the afternoon as I'm sure is. How is your class this year? I'll start taking my ESL kids next week. Monday is back to school night, what a silly night to pick! I know what you say about people seeing him as helmet baby. I used to get stopped nonstop about how cute he is (I don't have to be modest here, do I?) but now I notice more people doing that " I'm not staring...I'm just looking around laa dee da... " stare which I have been known to do in my time and have to stop since it's SO obvious! But for the most part, they think he's still a cutie...he has SOME smile, that one, even after all this. Good luck with school...talk to you soon. JEN (Miles' mom) > > Just wanted to update my story. Haven't been able to get on in > quite > > a while because we've been so busy. Miles had his surgery > (unrelated > > to plagio) on Aug. 30 and came through with flying colors. I went > > back to work after my maternity leave that Wednesday. I've been > > going off and on because of his surgery follow ups and his > helmet. > > We got the helmet a week after the surgery. We were faced with > > making a choice on the helmet - Starband was covered, but we > wanted > > the DOC. Well, we went with the Starband because he will also be > > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > > identify any problems and direct the orthotist. > > > > So...we have our Starband. Have been wearing it for about a week > > with no problems. Dr. Hall said yesterday that it was made nice > and > > symetrically though he had 2 red marks today that weren't going > > away. They are the first he's had and I have to call the > orthotist. > > Gee, I guess I spoke too soon about no problems! But his sleep > > habits haven't changed (in fact,they're better - the surgery > really > > messed him up) Plus he's in daycare now but they are really good > it > > seems with taking care and checking his head. > > > > Well, one week down, how many to go? I could swear I see some > > correction already but I'm sure it's my imagination. The thing I > > miss most is his blonde hair and cuddling his head. > > > > Oh...and here's a good sign. The first day I took him out with > it, > > I got 2 remarks - both from people whose children had been > banded! > > So to those still to be banded - don't worry the support is out > there! > > > > Now that I'm at work and next to the computer, it'll be easier to > > post! Thanks for all the help! > > > > JEN in NJ > > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 Thanks for the kind words Natasha. We go tomorrow (Friday) for our first follow up. They look better and seem to go away quicker so we'll see what the orthotist says! > > Just wanted to update my story. Haven't been able to get on in > quite > > a while because we've been so busy. Miles had his surgery > (unrelated > > to plagio) on Aug. 30 and came through with flying colors. I went > > back to work after my maternity leave that Wednesday. I've been > > going off and on because of his surgery follow ups and his > helmet. > > We got the helmet a week after the surgery. We were faced with > > making a choice on the helmet - Starband was covered, but we > wanted > > the DOC. Well, we went with the Starband because he will also be > > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > > identify any problems and direct the orthotist. > > > > So...we have our Starband. Have been wearing it for about a week > > with no problems. Dr. Hall said yesterday that it was made nice > and > > symetrically though he had 2 red marks today that weren't going > > away. They are the first he's had and I have to call the > orthotist. > > Gee, I guess I spoke too soon about no problems! But his sleep > > habits haven't changed (in fact,they're better - the surgery > really > > messed him up) Plus he's in daycare now but they are really good > it > > seems with taking care and checking his head. > > > > Well, one week down, how many to go? I could swear I see some > > correction already but I'm sure it's my imagination. The thing I > > miss most is his blonde hair and cuddling his head. > > > > Oh...and here's a good sign. The first day I took him out with > it, > > I got 2 remarks - both from people whose children had been > banded! > > So to those still to be banded - don't worry the support is out > there! > > > > Now that I'm at work and next to the computer, it'll be easier to > > post! Thanks for all the help! > > > > JEN in NJ > > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 Leigh, We live in Brick but went to Nouveau Prostetics and Orthotics in I believe Hazlet. It's on rt. 36 over there near Keyport. Not the busiest place in the world (in the 3 times i've been there, I haven't seen any other " patients " ) but they seem nice and the Dr. in Hackensack said it was made correctly - nice and symetrical. Glad to have the second opinion of the fancy Dr. Where have you gone for the band? We should start a NJ playgroup! Jen > Hi Jen, > I'm in NJ, too (Bedminster). Where did you get your Starband (i.e. > what city?) > > leigh > Will 4/11/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 Thanks for the kind words. Oh I remember those " When's the baby coming " days! My SIL gets it worse...this last one (#5) was almost 2 weeks late! JEN > > Just wanted to update my story. Haven't been able to get on in > quite > > a while because we've been so busy. Miles had his surgery > (unrelated > > to plagio) on Aug. 30 and came through with flying colors. I went > > back to work after my maternity leave that Wednesday. I've been > > going off and on because of his surgery follow ups and his helmet. > > We got the helmet a week after the surgery. We were faced with > > making a choice on the helmet - Starband was covered, but we wanted > > the DOC. Well, we went with the Starband because he will also be > > seen by Dr. Fancypants (AKA Dr. Hall in Hackensack) who could > > identify any problems and direct the orthotist. > > > > So...we have our Starband. Have been wearing it for about a week > > with no problems. Dr. Hall said yesterday that it was made nice > and > > symetrically though he had 2 red marks today that weren't going > > away. They are the first he's had and I have to call the > orthotist. > > Gee, I guess I spoke too soon about no problems! But his sleep > > habits haven't changed (in fact,they're better - the surgery really > > messed him up) Plus he's in daycare now but they are really good it > > seems with taking care and checking his head. > > > > Well, one week down, how many to go? I could swear I see some > > correction already but I'm sure it's my imagination. The thing I > > miss most is his blonde hair and cuddling his head. > > > > Oh...and here's a good sign. The first day I took him out with > it, > > I got 2 remarks - both from people whose children had been banded! > > So to those still to be banded - don't worry the support is out > there! > > > > Now that I'm at work and next to the computer, it'll be easier to > > post! Thanks for all the help! > > > > JEN in NJ > > (Miles, 8 mo. yesterday, Starband 9/7/04) Quote Link to comment Share on other sites More sharing options...
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