Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Hi everyone, I am new here, my name is Sue, but I go by Suki. I have a 13 yr old daughter who is hearing impaired with a severe loss in the right ear and a moderate loss in the left ear. At about the age of 3 yrs old, we found out that she had a congenital defect in both ears, canal stenosis. After hoping that the ear canals would widen on there own, it was decided to surgically widen them. She had 4 operations to widen the right ear canal. The last 2 were in Boston MA. The first on lasted 10 hous because they found cholestiotoma in the ear canal, around the eardrum and around the first two hearing bones. The ear drum and hearing bones were removed and the ear canal was opened up. Two months later the ear canal was closed again and nothing was keeping it opened. she went back in for more surgery. In this surgery, the replaced the eardrum with a bigger one, and replaced the hearing bones with one prothesis. She has a new ear canal made in the mastiod bowl. This was done in 1996. Her hearing has gone down even more, but not a lot. She has hearing aids and has just started wearing the right one after years of not wanting to wear it. She has an IEP in school and has just been placed in a language based self contained special ed classroom in another junior high in our small city. We do have a case manager from the Commision for the deaf and hard of hearing and just finished up an Independent Educational Evaluation at the Boston Center for Deaf and Hearing Impaired Children. As well as being hearing impaired, Steph also has 2 heart conditions, ADD, and several different learning styles. She also has delays in her emotional, and behavioral developments. Since being placed in the special; ed class this school year, she has started doing wonderfully!! This is her second year in the 7th grade. At home, Steph has a 15 yr old sister, Aimee, and me, her mom. We also have a pet dwarf rabbit. Well thank you for letting me join this group and I apologize for such a long intro. suki Quote Link to comment Share on other sites More sharing options...
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