RE: husbands/diabetes/LVAs

[Guest guest]

My HoH child is right handed. I have never heard that most are left handed.

Barb

[Guest guest]

Janet - you are a wonderful mother. My mom always said, " God only gives

these special children to special parents " - so see yourself as

blessed...just as your children are blessed to have a mother with an

attitude like yours!

Re: husbands/diabetes/LVAs

Kerry,

I want to add to your comment re " blame " . I have been an insulin

dependent diabetic for 22 years, and through all of my pregnancies. While

quite a few of the difficulties in my pregnancies were related to diabetes,

hearing loss is not considered one of them. I have five healthy children

proving yet again that diabetics can lead normal lives in every way, just

need good control and careful monitoring

I think the only time I ever asked myself " why " my son was born Deaf, was

about a week after he was diagnosed. It took me about a day of tossing it

around to come to the conclusion that IT DIDN'T MATTER. Spending days,

weeks, months and years trying to figure out why, or who to blame would be

just about the biggest waste of time needed for other things that I can

imagine.

What would it change to know why? Would that make him less Deaf? Even if

it could give me information on different things that I would want to try

working on, there is still no guarntee that any of those things would work,

so it's the same trial and error process regardless.

Would my other children have more of a proclivity to be born Deaf? Again,

what would knowing that change? Not to have them? What a shame that would

be.

I am so thrilled that the Deaf community has welcomed me and my son into a

place where deafness is something to be proud of. A place where " hearies "

like me are the minority. What a wake-up call for me to see what my son

experiences on a daily basis in terms of discrimination, ignorance,

loneliness, frustration when I found myself in the minority. But I was

embraced and welcomed when I made the effort to connect, and will always be

grateful to have this community of support for myself and my son. It is his

place, he doesn't need to " fit in " , he is in.

I celebrate my son's deafness. It brought me into a place I would never

known existed. Blame/reasons for deafness seem so minor to me....

Ramble ramble....smile,

Janet

[Guest guest]

Appreciate it, ,

I just " calls 'em as I sees 'em " , smile. Would hate to throw away my children's

childhood looking for " what could have been " . They are perfect the way they

are...(except the teenagers of course!!!)

Janet

[Guest guest]

> Wonder how many of these folks were deaf themselves??

The audiologist who diagnosed JD's hearing loss wore hearing aids himself. He

lost a good

chunk of his hearing in a hunting accident when he was a teen.

Hugs,

Kay

[Guest guest]

In my case, looking for the cause was going to be overwhelming and not

successful anyway...so we just concentrate on learning to communicate with

Hayley and read English. How many parents are looking for a cause to no

avail? I agree with you Kay, if it's available....I worry about parents who

search for the cause fruitlessly, and the important things (learning to

communicate and read) are secondary.

mary

>

>I also think it fair, as a child grows to adulthood, that he knows if his

>deafness is

>likely to be passed along to their offspring or not. How much importance

>they choose to

>give that information is up to them, but I do think it's an important piece

>of information

>for them to have, if it's available.

>

>Kay

>

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[Guest guest]

Janet...

hayley lost her hearing before she was two and I have no clear knowledge

why. She is now 8. She had been developing normal speech; now that is quite

gone. She uses sign language to communicate and when she wants to use her

voice it is quite lovely. As a single mom (for now ) with two other kids,

my goal for Hayley was communicate and learn to read. So that is what we

do; hayley is primarily an ASL child who is learning to read and write

English...she is " different " but I celebrate that and she has a charisma

that draws people to her. I've found that I have reached a happy medium

where this is what works for Hayley and her family and I have wonderful

friends whose children have CIs. Our end goals are the same. She is

probably more deaf than Deaf...but might change as she grows older to Deaf.

Glad to have you in the group.

mary

>

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: husbands/diabetes/LVAs

>Date: Fri, 02 Mar 2001 11:32:44 -0500

>

>,

>

>Agree with your position, I think mine is being misunderstood. I am

>talking about kids who are born Deaf, not those who are losing their

>hearing for whatever reason. Same as knowing about different diseases or

>syndromes where hearing loss is an integral part, or perhaps a possible

>outcome. Not the same scenario.

>

>Janet

>

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[Guest guest]

I also had another person tell me that. Mr. Hensley at the Kentucky School

for the Deaf. His parents are deaf and his sons are. His first question to

me was is Left handed. He said about 80% of the kids that attend

Danville,KSD. was left handed. It just amazed me. Mr. Hensley is a life

saver in my case. He help me with the early intervention and the sending him

to pre-school and now kindergarten. Ever time his name is mentioned at

school, they asked me if I have a problem that needs to be talked about. He

knows the laws and how to work the schools. They don't like him very much.

But, I love him to death.

Bonnie

Re: husbands/diabetes/LVAs

> In a message dated 3/2/2001 11:02:15 AM Eastern Standard Time,

> 66bonnie@... writes:

>

>

> > I don't know why. that if a

> > child is left handed to watch out for some kind of disabilities. Does

any

> > one know any thing about this?

> >

>

> I had a retired special ed teacher ask me if my ADHD/ODD son was left

handed

> to which I said yes. She said in her years and years of teaching a very

high

> majority of the ADHD, dyslexia and such kids were lefties. My deaf son is

a

> righty and I think he has ADHD too. We know he has ODD. We are trying to

> have him evaluated for ADHD soon.

> Elaine.

>

>

> Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99

>

>

>

[Guest guest]

In a message dated 3/2/01 11:09:45 AM Eastern Standard Time,

craddock@... writes:

> the doctor told us

> > that most deaf or HOH kids are left handed. I don't know why. that if a

> > child is left handed to watch out for some kind of disabilities. Does any

> > one know any thing about this?

> >

> > Bonnie

>

is right handed and hearing impaired. All my nieces and nephews

that are left handed do not have any disabilities. My parents are both left

handed and do not have any disabilities.

suki

[Guest guest]

,

I agree!!!!!

Bobbie

[Guest guest]

Interesting theory, but i believe thats all it is. My HH son is Left handed,

but so is my dh and if he has hearing loss it due to being a *ahem*

" man " .....lol.

Betty

> the doctor told us

that most deaf or HOH kids are left handed. I don't know why. that if a

child is left handed to watch out for some kind of disabilities. Does any

one know any thing about this?

>Bonnie

[Guest guest]

At 10:39 AM 3/4/01 -0500, you wrote:

>Interesting theory, but i believe thats all it is. My HH son is Left

>handed, but so is my dh and if he has hearing loss it due to being a

>*ahem* " man " .....lol.

So far I've found one study that demonstrates a higher incidence of

left-handedness with deafness.

http://duke.usask.ca/~elias/left/groups.htm

One prevailing theory of the cause of left-handedness associates it with

pre-natal vestibular and hearing development.

There are a significant number of neurologically based diseases and

anomalies that are associated with a higher prevalence of

left-handedness. It seems to me that hearing loss could, indeed, have such

an association as well.

Since evidence seems to point to environmental influences causing

left-handedness, it seems to me that left-handedness would be less likely

associated with syndromic, heritable hearing loss, but quite possibly

associated with losses caused by developmental anomalies or mutations, or

birth trauma.

Some more articles:

http://hcs.harvard.edu/~husn/BRAIN/vol2/left.html

http://news.bbc.co.uk/hi/english/health/newsid_684000/684236.stm

http://duke.usask.ca/~elias/left/causes.htm

Barbara Handley

Ten Great Reasons to Homeschool Your Deaf or Hard of Hearing Child

http://www.themestream.com/articles.370344.html

[Guest guest]

Not interested!

Betty

>Interesting theory, but i believe thats all it is. My HH son is Left

>handed, but so is my dh and if he has hearing loss it due to being a

>*ahem* " man " .....lol.

So far I've found one study that demonstrates a higher incidence of

left-handedness with deafness.

http://duke.usask.ca/~elias/left/groups.htm

One prevailing theory of the cause of left-handedness associates it with

pre-natal vestibular and hearing development.

There are a significant number of neurologically based diseases and

anomalies that are associated with a higher prevalence of

left-handedness. It seems to me that hearing loss could, indeed, have such

an association as well.

Since evidence seems to point to environmental influences causing

left-handedness, it seems to me that left-handedness would be less likely

associated with syndromic, heritable hearing loss, but quite possibly

associated with losses caused by developmental anomalies or mutations, or

birth trauma.

Some more articles:

http://hcs.harvard.edu/~husn/BRAIN/vol2/left.html

http://news.bbc.co.uk/hi/english/health/newsid_684000/684236.stm

http://duke.usask.ca/~elias/left/causes.htm

Barbara Handley

Ten Great Reasons to Homeschool Your Deaf or Hard of Hearing Child

http://www.themestream.com/articles.370344.html

[Guest guest]

Thanks ,

I really do advocate whatever " works " for folks, just wish they knew of all the

options when they are starting out.

Your daughter sounds like she has found her niche comfortably, and honestly, the

more the kids can swing between the cultures, the better off they are.

Single mom of two huh?? Got you beat there, smile, try single mom of 5!!

Janet

[Guest guest]

Single mom of THREE! YOu still have me beat!

Welcome to the group,

>>

>Single mom of two huh?? Got you beat there, smile, try single mom of 5!!

>

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[Guest guest]

Not Competing here, are we?

Judith

single mom of eight from March 1993 until October 1998, when I began to

share the load

Single mom of THREE! YOu still have me beat!

Welcome to the group,

>>

>Single mom of two huh?? Got you beat there, smile, try single mom of 5!!

>

[Guest guest]

Judith,

You win!!

[Guest guest]

Can someone answer a question for me? What is LVAS? My Audie told me to

keep ny out of sports too. In the thirty years she has been an

Audiologist, she had one case of a child falling down the stairs and losing

the rest of his hearing. She said tennis would be a safe sport.

Donna

mother to ny 5, mod/severe

2, hearing

[Guest guest]

LVAS and EVAS are the same thing. LVAS = large vestibular aqueduct

syndrome. EVAS = enlarged vestibular aqueduct syndrome. I think this

condition is just so new in the medical community (new being a relative

term) that there doesn't seem to be a consensus on what to call it. I've

found journal articles referring to it both ways. My doctor calls it

LVA...and corrects me when I refer to EVAS (which I learned on this listserv

and which makes more sense to me!) :-)

Children who have EVAS (see, I've picked a side! LOL!) should avoid

activities which might cause a blow to the head or a sudden or severe change

in intracranial pressure. Some research is underway to give parents better

guidelines but for now I think most of us are just using our best

judgement...and sharing what we know with each other.

Carol

> Can someone answer a question for me? What is LVAS? My Audie told me to

> keep ny out of sports too. In the thirty years she has been an

> Audiologist, she had one case of a child falling down the stairs and

losing

> the rest of his hearing. She said tennis would be a safe sport.

>

> Donna

> mother to ny 5, mod/severe

> 2, hearing

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

I've also seen it as Wide or Dilated vestibular aqueduct. Someone needs to

make a decision!

Randie

LVAS and EVAS are the same thing. LVAS = large vestibular aqueduct

syndrome. EVAS = enlarged vestibular aqueduct syndrome. I think this

condition is just so new in the medical community (new being a relative

term) that there doesn't seem to be a consensus on what to call it.

Children who have EVAS (see, I've picked a side! LOL!) should avoid

activities which might cause a blow to the head or a sudden or severe change

in intracranial pressure. Some research is underway to give parents better

guidelines but for now I think most of us are just using our best

judgement...and sharing what we know with each other.

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