Re: Letter of Intro

August 2, 2005

Welcome to our group Cat! I can very much relate to what your going through. I'm 28 & was diagnosd with FM last fall. My pain 1st started when I was rear ended in 1997, right after graduating from business college. I had just started my 1st full time job. The accident was so bad I could hardly move my neck for 3 yrs & they finally found that it fractured 4 levels of my spine, that never did heal correctly. I work in Insurance so I have to sit all day on a computer which gets hard.

Sometimes I would like to try to apply for disability but I really like me job & have such nice friends here at work. I think if I didn't have to get up every day I would just lay around & feel even more sorry for myself. I have been having a worse time coping with my pain since I found out I have fibro. It's weird because I was glad to finally know what's wrong with me & why I'm so tired but knowing that I have to live with this darn thing the rest of my life is very depressing. I get sick of having to take pain pills all the time & it's hard to even get comfy enough to sleep.

I do have good days sometimes though so that encourages me to keep going. But then I tend to over do the physical stuff when I do feel good, think I need to learn to pace myself more.

Fibro. is hard for my family & friends to understand because people tell me I look fine. I may look normal on the outside but inside I feel like a mess! Some days I feel 90 years old. Do you ever feel like that?

I'm glad to know you are close to my age & have been in an accident also.catmshultz wrote:

Hi,Just writing this to introduce myself to everyone.I am a newly diagnosed 31 year old.I am having a very rough time coping and have been for the last few years.My symptoms first started after a car wreck 3 years ago.They subsided after we treated the injuries i sustained only to get worse back in November when someone plowed into my car again,since then it has been unbearable.The Dcoctor says i need to file for disability...especially since i can no longer run my business (dog trainer) and i am very angry and don't know how to cope.I am pleased that i found this group and hope to meet lots of peeps like methankscat __________________________________________________

August 4, 2005

Hi there,

And before i even get started...yes i do sometimes feel like i am

90 years old.lol.its sad isnt it? I was finally diagnosed with this

back in June and the dr.that diagnosed me said what she would like

to do for treatments,but i could not afford her..so now i am

battling for a new primary care physician...i found one that has a

parent with fibro..now if they will only switch me to her.I had my

first wreck in 2002 i was also rearended...then right before last

thanksgiving we were hit from the side and my symptoms

increased.they say that fibro can be triggered from a wreck...what

do you think?I hope your day goes well and thank you for responding.

Cat

> Hi,

> Just writing this to introduce myself to everyone.I am a newly

> diagnosed 31 year old.I am having a very rough time coping and

have

> been for the last few years.My symptoms first started after a car

> wreck 3 years ago.They subsided after we treated the injuries i

> sustained only to get worse back in November when someone plowed

into

> my car again,since then it has been unbearable.The Dcoctor says i

need

> to file for disability...especially since i can no longer run my

> business (dog trainer) and i am very angry and don't know how to

cope.

> I am pleased that i found this group and hope to meet lots of

peeps

> like me

> thanks

> cat

>

> 1. While it is wonderful to share our experiences with everyone on

the list as to what treatments do and don't work for us, pls always

check with your dr. Some treatments are dangerous when given along

with other meds as well as to certain health conditions or just

dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is)

pls don't be afraid to ask for help. It is the first step to trying

to make that situation better.

>

> Have a nice day everyone.

>

August 4, 2005

Well yes I do think fibro. can probably be triggered from a wreck. My dr. told me that a lot of people get fibro. after a trauma to their spine or a jolt of some sort, like a wreck. She thinks my Fibro. happened due to my spine being fractured in that bad accident I was in. Before that I had never had any physical pain. My mom had severe injuries after being hit by a big pepsi semi, when I was in 3rd grade, luckily she was driving a big old station wagon, they think the big car saved her life. She now has very severe arthritus so she can understand my pain. Although she doesn't have fibro. so she doesn't get as tired as I do even though she's much older than me. She can't understand why I get tired so fast. I told her the dr. tells me it's normal with fibro.

I went to the eye dr. today & found out I don't have Glaucoma like she thought I might. I just need new glasses again. Just bought a new pair last summer. My stigmatism is getting much worse. Bad eyes run in my family. But I'm so happy that I don't have to start all those eye drops!

Take care :)catmshultz wrote:

Hi there, And before i even get started...yes i do sometimes feel like i am 90 years old.lol.its sad isnt it? I was finally diagnosed with this back in June and the dr.that diagnosed me said what she would like to do for treatments,but i could not afford her..so now i am battling for a new primary care physician...i found one that has a parent with fibro..now if they will only switch me to her.I had my first wreck in 2002 i was also rearended...then right before last thanksgiving we were hit from the side and my symptoms increased.they say that fibro can be triggered from a wreck...what do you think?I hope your day goes well and thank you for responding.Cat> Hi,> Just writing this to introduce myself to everyone.I am a newly > diagnosed 31 year

old.I am having a very rough time coping and have > been for the last few years.My symptoms first started after a car > wreck 3 years ago.They subsided after we treated the injuries i > sustained only to get worse back in November when someone plowed into > my car again,since then it has been unbearable.The Dcoctor says i need > to file for disability...especially since i can no longer run my > business (dog trainer) and i am very angry and don't know how to cope.> I am pleased that i found this group and hope to meet lots of peeps > like me> thanks> cat> > > > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just

dangerous in general.> > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.> > > Have a nice day everyone.> > > > >

August 4, 2005

Hi Cat,

I had some pain issues before being diagnosed but nothing severe.

They kept testing me for arthritis and Lupus (lupus because my mom has

it) The test were always negative. After I slipped on ice in 95 the

symptoms increased alot and I my doctor routinely gave me cortizone

injections and and of course pain medications for it but I still

worked, he diagnosed me then with fibromyalgia. A few years later I

came down with rheumatic fever and I since then I have been full blown

fibromyalgia. So I do believe that trauma to the body can trigger the

beast.

My moms favorite thing to say to me is " your younger than me Dawn " I

use to try and explain to her that with this fibro sometimes I feel

MUCH older than she is. She is like so many, just because she seen me

doing something one time she thinks I should be able to do every it

time the need arises.

I better stop before I write another book...LOL

Hugz

Dawn

> catmshultz wrote:

>

> Hi there,

> And before i even get started...yes i do sometimes feel like i am

> 90 years old.lol.its sad isnt it? I was finally diagnosed with this

> back in June and the dr.that diagnosed me said what she would like

> to do for treatments,but i could not afford her..so now i am

> battling for a new primary care physician...i found one that has a

> parent with fibro..now if they will only switch me to her.I had my

> first wreck in 2002 i was also rearended...then right before last

> thanksgiving we were hit from the side and my symptoms

> increased.they say that fibro can be triggered from a wreck...what

> do you think?I hope your day goes well and thank you for responding.

> Cat

August 4, 2005

Hi ,

Isn't it great to have supportive moms?My mom doesn't understand the

fatigue as much either..but she knows all about pain shes had

migraines for years.Its very important to have that support i

believe...my partner and our son too..they are a blessing...we

homeschool him so that keeps me busy too...the kid is too smart..lol.

the only thing going on with my eyes is the astigmatism maybe

getting a little worse...and horrendous dry eye....thank god you

don't have glaucoma..It is great that i have met two people on here

i can totally relate too..

thanks,

Cat

> > Hi,

> > Just writing this to introduce myself to everyone.I am a newly

> > diagnosed 31 year old.I am having a very rough time coping and

> have

> > been for the last few years.My symptoms first started after a

car

> > wreck 3 years ago.They subsided after we treated the injuries i

> > sustained only to get worse back in November when someone plowed

> into

> > my car again,since then it has been unbearable.The Dcoctor says

i

> need

> > to file for disability...especially since i can no longer run my

> > business (dog trainer) and i am very angry and don't know how to

> cope.

> > I am pleased that i found this group and hope to meet lots of

> peeps

> > like me

> > thanks

> > cat

> >

> > 1. While it is wonderful to share our experiences with everyone

on

> the list as to what treatments do and don't work for us, pls

always

> check with your dr. Some treatments are dangerous when given

along

> with other meds as well as to certain health conditions or just

> dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it

is)

> pls don't be afraid to ask for help. It is the first step to

trying

> to make that situation better.

> >

> > Have a nice day everyone.

> >

August 4, 2005

Hello,

I can relate to all of theat too Dawn.. Here is my story including my

FU**** Drs Visit from today I hope it is not too long for you

I am sorry to hear about all your pain and suffering.. I bet it must be

hard dealing with the pain.. I hope that you find the releafe that you

ened to get on with life.. I wish I had that.

Enjoy and good luck

Starting

in 2001 I

was having bladder and back issues and was sent for Therapy that did

not work.. but that led to more discoveries

Between 2001 - 2002 I was on 3 different medications for back

pain and about 3 for the bladder.. They sent me to a pain specialist in

Ajax, Ontario, Canada who did not find anything wrong with me.. plus I

was sent for X-Rays at my Drs clinic were they found the Scolosis in my

spine.. and an ultrasound on my bladder that showed nothing was wrong

but yet I still suffer from bladder weakness. during all of this I am

caring for a young gal with Spina

Bifida

From 2002 - 2004 (Part 2005) I was sent for X-Rays at Lakeridge Health Oshawa

(Hospital) and showed that nothing changed.. I was then refered to

another dr in Oshawa and he was just a rehab dr and he found that

there was nothing he could do for me but did send me downstairs to a dr

for a Vokes Potential Nerve Conduction Study and found a delay in my

nerves from the movent in the body to the brain.. In between all of

that I was sent to Rothbart Pain Managment Clinc who tried to help me

out but since I don't drive the experamental laser treatment he could

not help me but he did diagnosis me with Fibromyalgia and also diagnozed

me with Arthrits

after a total body bone scan report that my family Dr. sent down and did

refer me

to a nerologist that sent me for 2 MRIs and some more X-Rays the final

diagnosis on that was a degenrative disc desease and he confirmed the

fibromyalgia..

2005 that is when all the problems started in my arms.. some

days the left arm would not move at all, some days the right arm would

not move at all and just about 2 weeks ago both arms would not move

from the wrist up they felt too heavy to move.. most days I would wake

up and the arms would not move and I would be stuck in bed till the arm

move.. I eventually found a way to get out of bed and use my legs to

move around the house.. and got good at using my mouse on either hand.

July 17th - 25th, 2005 knowing that I just live behind the hospital I walked up to

emergency for the second time with the right arm not working at 11:10

pm about 12:00 I got into emergency wating and finally at 2:30 saw a dr

by this time both arms quit. So at 3:00 am they admited me in to

Emergency Observation and I went to sleep. They fully admitted me on

Sunday afternoon and my monday afternoon I got a bed in the Pedatrics

Area (Kids Floor) and after 1 hour and some lunch and one arm working I

was admitted in to Floro 9 Acute Medcine. by this time my legs were so

heavy that I could not hang or move them over the bed to use the

bathroom.. a shower that took me 1/2 hour would now take me two and I

feel a sleep in it. The nurse woke me up.. I also that same night

almost fell off the toilet from dizzyness. Finally when I was able to

walk down the hall to the Lounge and start moving again.. they sent me

home (July 25th)

As of now (July 2005).. My Medications Toradol, Bacolfin

and Zanaflex are

making me dizzy, upset tummy, loss of appetite, loss of concentration,

and passing out. I am going back to see my dr on Thursday and find out

what they can do.. Not only that been on gov assistance is not helping

me pay for the medications. 2 of them are not coverd.. they are a total

of $61.00 CDN so I will keep you updated as to what is going on.

As of Today (August 4th, 2005).. Drs Suck.. I went to see my dr

and told me about what happend in the hospital and what was going on

with the medications and the pain .. and you know what after about a 15

min converstaion with him saying ever min to min and half "What do you

want me to do" I go no were he won't even fill out the drs part of the

disability transit appication for me (www.handitransit.com) and this

is after nurses in the hospital told me I was faking it and it was all

in my head. I am so FU***** sick of drs that I quit.. I give up on the

medical profession and refuse to let him help me anymore. I will finish

up my current appointments and tell the world to go to hell.. I am

done. I have seen 10 drs over a period of 4 years and all of them

except for 2 have told me they cannot help me.. I have two possiable 3

appointments left and I quit.

Dawn Blevins wrote: